(Q34318434)

1 August 2017

title

The best interests of the child and the return of results in genetic research: international comparative perspectives (English)

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1 August 2017

3

Bartha Maria Knoppers

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Ma'n H Zawati

series ordinal

1

object named as

Ma'n H Zawati

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1 August 2017

David Parry

2

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1 August 2017

publication date

4 October 2014

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1 August 2017

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1 August 2017

volume

15

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1 August 2017

page(s)

72

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Return of individual research results and incidental findings: facing the challenges of translational science

1 August 2017

cites work

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4192737

ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4192737

Next-generation sequencing: does the next generation still have a right to an open future?

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4192737

Whole-genome sequencing in health care: recommendations of the European Society of Human Genetics

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4192737

Technical report: Ethical and policy issues in genetic testing and screening of children

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4192737

Perspectives of clinical genetics professionals toward genome sequencing and incidental findings: a survey study

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4192737

Developing a policy for paediatric biobanks: principles for good practice

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4192737

The legal risks of returning results of genomics research

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4192737

Children, biobanks and the scope of parental consent

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4192737

Parental Authority and Pediatric Bioethical Decision Making

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4192737

Genetic testing in asymptomatic minors: background considerations towards ESHG Recommendations

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4192737

Genetic testing in asymptomatic minors: Recommendations of the European Society of Human Genetics

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4192737

Using the Best Interests Standard to decide whether to test children for untreatable, late-onset genetic diseases

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4192737

The genetic testing of children. Working Party of the Clinical Genetics Society (UK)

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4192737

International normative perspectives on the return of individual research results and incidental findings in genomic biobanks

6 July 2018

1 reference

https://api.crossref.org/works/10.1186%2F1472-6939-15-72

Communication of results and disclosure of incidental findings in longitudinal paediatric research

21 January 2018

1 reference

https://api.crossref.org/works/10.1186%2F1472-6939-15-72

Incidental findings in clinical genomics: a clarification

21 January 2018

1 reference

https://api.crossref.org/works/10.1186%2F1472-6939-15-72

Predictive genetic testing of children and the role of the best interest standard

21 January 2018

1 reference

https://api.crossref.org/works/10.1186%2F1472-6939-15-72

Building a foundation for biobanking: the 2009 OECD guidelines on human biobanks and genetic research databases (HBGRDs).

21 January 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4192737

Young people and sexual health: whose rights? Whose responsibilities? R. (on the application of Axon) v. Secretary of State for Health & another

28 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4192737

Convention on the Rights of the Child, 20 November 1989.

28 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4192737

The emergence of an ethical duty to disclose genetic research results: international perspectives

28 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4192737

Gillick v West Norfolk and Wisbech Area Health Authority

28 October 2018

1 reference

12 December 2020

Universal declaration on the human genome and human rights (revised draft)

1 reference

12 December 2020

Promotion of children's rights and prevention of child maltreatment

1 reference

12 December 2020

Pediatric research 'personalized'? International perspectives on the return of results

1 reference

12 December 2020

Convention for the protection of human rights and dignity of the human being with regard to the application of biology and medicine: convention on human rights and biomedicine (adopted by the Committee of Ministers on 19 November 1996). Council of E

1 reference

12 December 2020

Identifiers

DOI

10.1186/1472-6939-15-72

1 reference

Dimensions Publication ID

1 August 2017

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1 August 2017

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