(Q33696521)

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:20854664%20AND%20SRC:MED&resulttype=core&format=json

14 February 2020

2 references

8 September 2020

21 April 2021

Designing and implementing a longitudinal study of children with neurological, genetic or metabolic conditions: charting the territory (English)

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:20854664%20AND%20SRC:MED&resulttype=core&format=json

14 February 2020

1 reference

19 September 2019

1 reference

8 September 2020

2 references

8 September 2020

21 April 2021

2 references

19 September 2019

21 April 2021

1 reference

8 September 2020

1

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:20854664%20AND%20SRC:MED&resulttype=core&format=json

14 February 2020

Rollin Brant

3

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:20854664%20AND%20SRC:MED&resulttype=core&format=json

14 February 2020

Kimberley Widger

7

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:20854664%20AND%20SRC:MED&resulttype=core&format=json

14 February 2020

author name string

Rose Steele

2

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:20854664%20AND%20SRC:MED&resulttype=core&format=json

14 February 2020

Susan Cadell

4

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:20854664%20AND%20SRC:MED&resulttype=core&format=json

14 February 2020

Betty Davies

5

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:20854664%20AND%20SRC:MED&resulttype=core&format=json

14 February 2020

Lynn Straatman

6

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:20854664%20AND%20SRC:MED&resulttype=core&format=json

14 February 2020

Gail S Andrews

8

1 reference

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14 February 2020

language of work or name

1 reference

20 September 2010

7 references

22 April 2019

20 June 2019

22 June 2019

19 September 2019

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:20854664%20AND%20SRC:MED&resulttype=core&format=json

14 February 2020

8 September 2020

21 April 2021

7 references

22 April 2019

20 June 2019

22 June 2019

19 September 2019

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:20854664%20AND%20SRC:MED&resulttype=core&format=json

14 February 2020

8 September 2020

21 April 2021

10

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:20854664%20AND%20SRC:MED&resulttype=core&format=json

14 February 2020

page(s)

67

1 reference

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Creative Commons Attribution 2.0 Generic

14 February 2020

copyright license

6 references

22 April 2019

20 June 2019

22 June 2019

19 September 2019

8 September 2020

on focus list of Wikimedia project

21 April 2021

copyright status

copyrighted

0 references

ScienceSource

0 references

exact match

https://scigraph.springernature.com/pub.10.1186/1471-2431-10-67

0 references

cites work

Conducting end-of-life studies in pediatric oncology

1 reference

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Identifying, recruiting, and retaining seriously-ill patients and their caregivers in longitudinal research

14 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2954926

The natural history of juvenile or subacute GM2 gangliosidosis: 21 new cases and literature review of 134 previously reported.

14 July 2018

1 reference

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A population-based nationwide study of parents' perceptions of a questionnaire on their child's death due to cancer

14 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2954926

Bereaved parents’ experience of research participation

14 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2954926

Does research into sensitive areas do harm? Experiences of research participation after a child's diagnosis with Ewing's sarcoma

14 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2954926

Experiences of families in which a child has a prolonged terminal illness: modifying factors

14 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2954926

Testing the grief to personal growth model using structural equation modeling.

14 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2954926

The measurement of symptoms in young children with cancer: the validation of the Memorial Symptom Assessment Scale in children aged 7-12.

14 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2954926

Paediatric palliative care: a lack of research-based evidence

14 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2954926

The measurement of symptoms in children with cancer.

14 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2954926

Symptoms and suffering at the end of life in children with cancer

14 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2954926

The Spiritual Involvement and Beliefs Scale. Development and testing of a new instrument.

14 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2954926

Meaning in caregiving and its contribution to caregiver well-being

14 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2954926

Home care of the dying child

14 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2954926

Stress and coping in caregiving partners of men with AIDS.

14 July 2018

1 reference

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Ethical issues in palliative care research.

14 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2954926

A global measure of perceived stress

14 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2954926

Circumplex Model VII: validation studies and FACES III.

14 July 2018

1 reference

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Concurrent and construct validity of the Pediatric Evaluation of Disability Inventory.

14 July 2018

1 reference

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A survey of signs, symptoms and symptom control in 30 terminally ill children.

14 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2954926

Cornerstone care for families of children with life-threatening illness.

14 July 2018

1 reference

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Symptoms in children/young people with progressive malignant disease: United Kingdom Children's Cancer Study Group/Paediatric Oncology Nurses Forum survey.

14 July 2018

1 reference

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The psychosocial well-being of children with chronic disease, their parents and siblings: an overview of the research evidence base.

21 January 2018

1 reference

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Shifting place of death among children with complex chronic conditions in the United States, 1989-2003.

21 January 2018

1 reference

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Family perspectives on the quality of pediatric palliative care.

21 January 2018

1 reference

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Research with bereaved parents: a question of how not why.

21 January 2018

1 reference

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The CES-D Scale: A Self-Report Depression Scale for Research in the General Population

21 January 2018

1 reference

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The Posttraumatic Growth Inventory: measuring the positive legacy of trauma.

21 January 2018

1 reference

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Palliative Care for Children

21 January 2018

1 reference

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Differences on psychosocial outcomes between male and female caregivers of children with life-limiting illnesses

21 January 2018

1 reference

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Research priorities in pediatric palliative care: a Delphi study.

30 October 2018

1 reference

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Living in a world without closure: reality for parents who have experienced the death of a child.

30 October 2018

1 reference

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Strategies used by families to navigate uncharted territory when a child is dying.

30 October 2018

1 reference

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Navigating uncharted territory: experiences of families when a child is dying.

30 October 2018

1 reference

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Trajectory of certain death at an unknown time: children with neurodegenerative life-threatening illnesses.

30 October 2018

1 reference

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Pediatric deaths attributable to complex chronic conditions: a population-based study of Washington State, 1980-1997.

30 October 2018

1 reference

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Home care for the dying child. A parent's perception.

30 October 2018

1 reference

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Medical and nursing problems of children with neurodegenerative disease

30 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2954926

American Academy of Pediatrics. Committee on Bioethics and Committee on Hospital Care. Palliative care for children

30 October 2018

1 reference

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Deaths attributed to pediatric complex chronic conditions: national trends and implications for supportive care services

30 October 2018

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12 December 2020

Pediatric palliative care: the time has come

1 reference

12 December 2020

Development of a brief coping checklist for use with pediatric populations

1 reference

12 December 2020

Strategies to minimize attrition in longitudinal studies

1 reference

12 December 2020

Facilitating the care of terminally Ill children

1 reference

12 December 2020

Factors influencing family participation in a longitudinal study: comparison of pediatric and healthy samples

1 reference

12 December 2020

Living with dying: families coping with a child who has a neurodegenerative genetic disorder

1 reference

12 December 2020

Recruitment and retention in a longitudinal palliative care study

1 reference

12 December 2020

Impact on parents when a child has a progressive, life-threatening illness

1 reference

12 December 2020

Identifiers

DOI

10.1186/1471-2431-10-67

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:20854664%20AND%20SRC:MED&resulttype=core&format=json

Dimensions Publication ID

14 February 2020

1 reference

https://scigraph.springernature.com/pub.10.1186/1471-2431-10-67

9 September 2019

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:20854664%20AND%20SRC:MED&resulttype=core&format=json

14 February 2020

PubMed publication ID

20854664

1 reference