(Q35627358)

9 August 2017

title

You never call, you never write: why return of 'omic' results to research participants is both a good idea and a moral imperative (English)

1 reference

9 August 2017

Misha Angrist

1

1 reference

9 August 2017

language of work or name

English

0 references

publication date

1 November 2011

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9 August 2017

published in

Personalized Medicine

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9 August 2017

volume

8

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9 August 2017

issue

6

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9 August 2017

page(s)

651-657

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Disentangling the exposure experience: the roles of community context and report-back of environmental exposure data

9 August 2017

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12 July 2018

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Rapid detection of a mutation causing X-linked leucoencephalopathy by exome sequencing

12 July 2018

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Power to the people: participant ownership of clinical trial data

12 July 2018

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Effect of direct-to-consumer genomewide profiling to assess disease risk

12 July 2018

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Disclosure of individual genetic data to research participants: the debate reconsidered

12 July 2018

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Making a definitive diagnosis: successful clinical application of whole exome sequencing in a child with intractable inflammatory bowel disease

12 July 2018

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Haplotype-resolved genome sequencing of a Gujarati Indian individual.

12 July 2018

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A timely arrival for genomic medicine

12 July 2018

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Whole-exome-sequencing-based discovery of human FADD deficiency

12 July 2018

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Molecular diagnosis of neonatal diabetes mellitus using next-generation sequencing of the whole exome.

12 July 2018

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The characterization of twenty sequenced human genomes

12 July 2018

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Sequencing and analysis of an Irish human genome

12 July 2018

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Statement of the ESHG on direct-to-consumer genetic testing for health-related purposes

12 July 2018

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Identification by whole-genome resequencing of gene defect responsible for severe hypercholesterolemia

12 July 2018

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Varietas: a functional variation database portal

12 July 2018

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The role of disease perceptions and results sharing in psychological adaptation after genetic susceptibility testing: the REVEAL Study

12 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

Whole-genome sequencing of a single proband together with linkage analysis identifies a Mendelian disease gene

12 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

The rules remain the same for genomic medicine: the case against "reverse genetic exceptionalism".

12 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

Sharing health data for better outcomes on PatientsLikeMe

12 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

Personal genomes in progress: from the human genome project to the personal genome project

12 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

An approach to evaluating the therapeutic misconception

12 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

Disclosure of APOE genotype for risk of Alzheimer's disease

12 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

Does genomic risk information motivate people to change their behavior?

12 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

Toxic ignorance and right-to-know in biomonitoring results communication: a survey of scientists and study participants

12 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

Incidental findings in genetics research using archived DNA

12 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

Genetic discrimination in health insurance: current legal protections and industry practices

12 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

The uneasy ethical and legal underpinnings of large-scale genomic biobanks

12 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

The incidentalome: a threat to genomic medicine

12 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

Utility and limitations of genetic testing and information

12 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

A literature review of the psychological impact of genetic testing on breast cancer patients

12 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

A review and analysis of the clinical laboratory improvement amendment of 1988: compliance plans and enforcement policy

12 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

12 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

Ethical and institutional review board issues

12 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

Feedback of individual genetic results to research participants: in favor of a qualified disclosure policy

12 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

The rise of the genome bloggers

25 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

The world of e-patients: A content analysis of online social networks focusing on diseases.

25 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

Evidence-based classification of recommendations on use of genomic tests in clinical practice: dealing with insufficient evidence

25 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

The property/privacy conundrum over human tissue.

25 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

Consumer perceptions of direct-to-consumer personalized genomic risk assessments

25 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

The concept analysis of therapeutic misconception

25 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

Straight talk with...Mac Cowell and Jason Bobe. Interview by Prashant Nair

25 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

An unwelcome side effect of direct-to-consumer personal genome testing: raiding the medical commons

25 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

Gene concepts and genethics: beyond exceptionalism.

25 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

25 September 2018

The scientist delusion.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

The dysregulation of human subjects research.

25 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

Common sense for our genomes

25 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

Genes and spleens: property, contract, or privacy rights in the human body?

25 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

Investigating genetic discrimination in the Australian life insurance sector: the use of genetic test results in underwriting, 1999-2003.

25 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

Access to health insurance: experiences and attitudes of those with genetic versus non-genetic medical conditions.

25 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

Johnson v. Superior Court.

25 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

Who owns your body? A patient's perspective on Washington University v. Catalona

25 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

Geneticists' views on science policy formation and public outreach.

25 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

Psychological distress in the 5-year period after predictive testing for Huntington's disease

25 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

25 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

Aspects of the history of prenatal diagnosis.

25 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

As the use of donor sperm increases, secrecy can be a health hazard

25 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

Deflating the Genomic Bubble

23 October 2018

1 reference

Crossref

https://api.crossref.org/works/10.2217%2FPME.11.62

Not yet in sequence: Clinical, technical, ethical questions linger over personal genomics

21 January 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3243914

Genomics: launching a revolution in medicine

7 December 2018

1 reference

12 December 2020

Prioritizing science education

1 reference

12 December 2020

Science education: neglected

1 reference

12 December 2020

Genetic information nondiscrimination act insurance protections issued

1 reference

12 December 2020

Genetic exceptionalism

1 reference

12 December 2020

Answering the hard questions: the Genetic Testing Registry and its request for information

1 reference

12 December 2020

DNA, drugs and chariots: on a decade of pharmacogenomics at the US FDA

1 reference

12 December 2020

Personalized investigation

1 reference

12 December 2020

Personal genomics: information can be harmful

1 reference

12 December 2020

The trajectory of psychological impact in BRCA1/2 genetic testing: does time heal?

1 reference

12 December 2020

Identifiers

DOI

10.2217/PME.11.62

1 reference

9 August 2017

1 reference

9 August 2017

1 reference