(Q36725147)

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:27012247%20AND%20SRC:MED&resulttype=core&format=json

31 March 2020

title

Survey of healthcare experiences of Australian adults living with rare diseases (English)

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:27012247%20AND%20SRC:MED&resulttype=core&format=json

31 March 2020

1 reference

1

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:27012247%20AND%20SRC:MED&resulttype=core&format=json

31 March 2020

author name string

Debra Urwin

2

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:27012247%20AND%20SRC:MED&resulttype=core&format=json

31 March 2020

Louisa Di Pietro

3

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:27012247%20AND%20SRC:MED&resulttype=core&format=json

31 March 2020

Megan Fookes

4

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:27012247%20AND%20SRC:MED&resulttype=core&format=json

31 March 2020

Dianne Petrie

5

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:27012247%20AND%20SRC:MED&resulttype=core&format=json

31 March 2020

Sharon van der Laan

6

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:27012247%20AND%20SRC:MED&resulttype=core&format=json

31 March 2020

Hugh Dawkins

7

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:27012247%20AND%20SRC:MED&resulttype=core&format=json

31 March 2020

publication date

24 March 2016

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:27012247%20AND%20SRC:MED&resulttype=core&format=json

Orphanet Journal of Rare Diseases

31 March 2020

published in

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:27012247%20AND%20SRC:MED&resulttype=core&format=json

31 March 2020

volume

11

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:27012247%20AND%20SRC:MED&resulttype=core&format=json

31 March 2020

page(s)

30

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:27012247%20AND%20SRC:MED&resulttype=core&format=json

https://scigraph.springernature.com/pub.10.1186/s13023-016-0409-z

31 March 2020

exact match

0 references

cites work

Alopecia areata: an evidence-based treatment update

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4806449

Self-rated health and public health: a critical perspective

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4806449

Australian families living with rare disease: experiences of diagnosis, health services use and needs for psychosocial support

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4806449

Unmasking Kabuki syndrome

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4806449

Key outcomes from stakeholder workshops at a symposium to inform the development of an Australian national plan for rare diseases

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4806449

The impact of single gene and chromosomal disorders on hospital admissions in an adult population

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4806449

Ethical aspects on rare diseases

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4806449

Patient registries: utility, validity and inference

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4806449

Mortality prediction with a single general self-rated health question. A meta-analysis

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4806449

Integrated care programmes for chronically ill patients: a review of systematic reviews

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4806449

National registries of rare diseases in Europe: an overview of the current situation and experiences

30 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4806449

Awakening Australia to Rare Diseases: symposium report and preliminary outcomes.

28 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4806449

Transition from child-centered to adult health-care systems for adolescents with chronic conditions. A position paper of the Society for Adolescent Medicine

5 September 2018

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/27012247

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Call for a national plan for rare diseases

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/27012247

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Challenges of transition to adult health services for patients with rare diseases

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/27012247

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Identifiers

DOI

10.1186/S13023-016-0409-Z

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:27012247%20AND%20SRC:MED&resulttype=core&format=json

Dimensions Publication ID

31 March 2020

0 references

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:27012247%20AND%20SRC:MED&resulttype=core&format=json

31 March 2020

1 reference