(Q37327449)

19 August 2017

Information management in families who have a child with a genetic condition (English)

1 reference

19 August 2017

Agatha M Gallo

1

1 reference

PMCID

2735554

19 August 2017

Kathleen A Knafl

series ordinal

2

1 reference

PMCID

2735554

19 August 2017

Denise B Angst

series ordinal

3

1 reference

19 August 2017

1 June 2009

1 reference

Journal of Pediatric Nursing

19 August 2017

1 reference

19 August 2017

24

1 reference

19 August 2017

194-204

1 reference

19 August 2017

3

1 reference

Newborn screening for cystic fibrosis: evaluation of benefits and risks and recommendations for state newborn screening programs.

19 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2735554

Online pediatric information seeking among mothers of young children: results from a qualitative study using focus groups

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2735554

Within-case and across-case approaches to qualitative data analysis

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2735554

Racial and ethnic disparities in the primary care experiences of children: a review of the literature

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2735554

Parents' needs for knowledge concerning the medical diagnosis of their children

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2735554

The needs of parents with chronically sick children: a literature review.

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2735554

Teaching about cystic fibrosis carrier screening by using written and video information

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2735554

Quality of life index: development and psychometric properties

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2735554

Issues involved in the definition and classification of chronic health conditions.

14 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2735554

Chronic illness: the importance of support for families caring for a child with cystic fibrosis

28 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2735554

Information giving in medical care.

26 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2735554

The effect of poverty and caregiver education on perceived need and access to health services among children with special health care needs.

26 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2735554

Children with a long-term illness: parents' experiences of care.

2 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2735554

Parents sharing information with their children about genetic conditions.

2 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2735554

Numbers or words? A randomized controlled trial of presenting screen negative results to pregnant women.

2 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2735554

Measures of family functioning for research and practice

2 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2735554

Psychometric assessment of the Quality of Life Index

2 September 2018

1 reference

12 December 2020

Challenges of rearing a chronically ill child. Caring and coping

1 reference

12 December 2020

The family APGAR: a proposal for a family function test and its use by physicians

1 reference

12 December 2020

Parent factors and adolescent sickle cell disease: associations with patterns of health service use

1 reference

12 December 2020

The effect of patient race and socio-economic status on physicians' perceptions of patients

1 reference

12 December 2020

10.1016/J.PEDN.2008.07.010

Identifiers

DOI

1 reference

19 August 2017

1 reference

19 August 2017

1 reference

PMCID

2735554