(Q38866477)

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:27307420%20AND%20SRC:MED&resulttype=core&format=json

14 March 2020

title

Is Safety in the Eye of the Beholder? Safeguards in Research With Adults With Intellectual Disability (English)

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:27307420%20AND%20SRC:MED&resulttype=core&format=json

14 March 2020

1

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:27307420%20AND%20SRC:MED&resulttype=core&format=json

14 March 2020

author name string

Nicole E Conroy

2

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:27307420%20AND%20SRC:MED&resulttype=core&format=json

14 March 2020

Carolyn I Kim

3

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:27307420%20AND%20SRC:MED&resulttype=core&format=json

14 March 2020

Emily J LoBraico

4

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:27307420%20AND%20SRC:MED&resulttype=core&format=json

14 March 2020

Ellis M Prather

5

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:27307420%20AND%20SRC:MED&resulttype=core&format=json

14 March 2020

Robert S Olick

6

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:27307420%20AND%20SRC:MED&resulttype=core&format=json

14 March 2020

publication date

31 July 2016

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:27307420%20AND%20SRC:MED&resulttype=core&format=json

Journal of Empirical Research on Human Research Ethics

14 March 2020

published in

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:27307420%20AND%20SRC:MED&resulttype=core&format=json

14 March 2020

volume

11

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:27307420%20AND%20SRC:MED&resulttype=core&format=json

14 March 2020

issue

5

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:27307420%20AND%20SRC:MED&resulttype=core&format=json

14 March 2020

page(s)

424-438

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:27307420%20AND%20SRC:MED&resulttype=core&format=json

What's the Harm? Harms in Research With Adults With Intellectual Disability

14 March 2020

cites work

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5568911

Is It Worth It? Benefits in Research With Adults With Intellectual Disability

17 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5568911

Public preferences and the challenge to genetic research policy

17 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5568911

The ethics and regulatory landscape of including vulnerable populations in pragmatic clinical trials

17 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5568911

"You can't be cold and scientific": community views on ethical issues in intellectual disability research.

17 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5568911

Parent ratings of ability to consent for clinical trials in fragile X syndrome

17 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5568911

Out of sight, out of mind? The inclusion and identification of people with intellectual disability in public health research

17 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5568911

Giving voice to study volunteers: comparing views of mentally ill, physically ill, and healthy protocol participants on ethical aspects of clinical research

17 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5568911

A critical assessment of supported decision-making for persons aging with intellectual disabilities

17 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5568911

Measuring how people view biomedical research: Reliability and validity analysis of the Research Attitudes Questionnaire

17 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5568911

Participation in intellectual disability research: a review of 20 years of studies

17 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5568911

Surrogate consent for dementia research: a national survey of older Americans

17 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5568911

Gatekeepers of science: attitudes toward the research participation of adults with intellectual disability

17 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5568911

How the powerful decide: access to research participation by those at the margins

17 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5568911

Influence of ethical safeguards on research participation: comparison of perspectives of people with schizophrenia and psychiatrists

17 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5568911

Ethical challenges in the conduct of research involving persons with mental retardation

17 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5568911

The human rights context for ethical requirements for involving people with intellectual disability in medical research

17 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5568911

Protection, participation and protection through participation: young people with intellectual disabilities and decision making in the family context

22 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5568911

"We want respect": adults with intellectual and developmental disabilities address respect in research.

22 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5568911

'You need to let your voice be heard': research participants' views on research

22 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5568911

The views of Alzheimer disease patients and their study partners on proxy consent for clinical trial enrollment

22 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5568911

What do people at risk for Alzheimer disease think about surrogate consent for research?

22 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5568911

Ethics and intellectual disability.

22 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5568911

Recruiting people with disabilities as research participants: challenges and strategies to address them.

22 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5568911

Schizophrenia research participants' responses to protocol safeguards: recruitment, consent, and debriefing.

22 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5568911

Impaired decision-making ability in subjects with Alzheimer's disease and willingness to participate in research.

22 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5568911

Patient and psychiatrist ratings of hypothetical schizophrenia research protocols: assessment of harm potential and factors influencing participation decisions.

22 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5568911

Perspectives of patients with schizophrenia and psychiatrists regarding ethically important aspects of research participation

22 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5568911

Using thematic analysis in psychology

22 August 2018

1 reference

https://api.crossref.org/works/10.1177%2F1556264616651182

Assessments by Patients With Schizophrenia and Psychiatrists of Relative Risk of Research Procedures

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1556264616651182

Attitudes of patients with schizophrenia and depression towards psychiatric research

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1556264616651182

Paradigm shifts in disability and health: toward more ethical public health research

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1556264616651182

To include or not to include? That is the ethical question

21 January 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=5568911

Where are persons with intellectual disabilities in medical research? A survey of published clinical trials

2 December 2018

1 reference

12 December 2020

Assessments by patients with schizophrenia and psychiatrists of relative risk of research procedures

1 reference

12 December 2020

Guidelines from the consumer: improving consumer involvement in research and training for persons with mental retardation

1 reference

12 December 2020

Views of potential subjects toward proposed regulations for clinical research with adults unable to consent

1 reference

12 December 2020

Identifiers

DOI

10.1177/1556264616651182

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:27307420%20AND%20SRC:MED&resulttype=core&format=json

14 March 2020

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:27307420%20AND%20SRC:MED&resulttype=core&format=json

14 March 2020

PubMed publication ID

27307420

1 reference