(Q41039624)

25 September 2017

title

The Impact of Neurofibromatosis Type 1 on the Health and Wellbeing of Australian Adults (English)

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25 September 2017

7

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25 September 2017

Hilda A Crawford

1

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25 September 2017

Belinda Barton

2

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25 September 2017

Meredith J Wilson

3

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25 September 2017

Yemima Berman

4

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25 September 2017

Valerie J McKelvey-Martin

5

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25 September 2017

Patrick J Morrison

6

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25 September 2017

publication date

19 April 2015

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Journal of Genetic Counseling

25 September 2017

published in

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25 September 2017

volume

24

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25 September 2017

issue

6

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25 September 2017

page(s)

931-944

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Gender response to neurofibromatosis 1.

25 September 2017

cites work

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Depression and pain comorbidity: a literature review

21 January 2018

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'It's like a bag of pick and mix--you don't know what you are going to get': young people's experience of neurofibromatosis Type 1.

21 January 2018

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Neurofibromatosis type 1 (NF1): knowledge, experience, and reproductive decisions of affected patients and families

21 January 2018

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https://api.crossref.org/works/10.1007%2FS10897-015-9829-5

Communication and Uncertainty Management

21 January 2018

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Interpretation of quality-of-life scores

21 January 2018

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The Skindex instruments to measure the effects of skin disease on quality of life

21 January 2018

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Neurological complications of neurofibromatosis type 1 in adulthood.

21 January 2018

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Malignant peripheral nerve sheath tumours in inherited disease

21 January 2018

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Neurofibromatosis 1 and neurofibromatosis 2: a twenty first century perspective.

21 January 2018

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Intellectual impairment in neurofibromatosis 1.

21 January 2018

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Guidelines for the diagnosis and management of individuals with neurofibromatosis 1

21 January 2018

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Young adults' experience of living with neurofibromatosis type 1.

21 January 2018

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Von Recklinghausen neurofibromatosis. A clinical and population study in south-east Wales.

21 January 2018

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The nature and frequency of cognitive deficits in children with neurofibromatosis type 1.

21 January 2018

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Clinical and genetic aspects of neurofibromatosis 1.

21 January 2018

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Acne vulgaris and the quality of life of adult dermatology patients.

21 January 2018

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Behaviour in children with neurofibromatosis type 1: cognition, executive function, attention, emotion, and social competence

21 January 2018

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Field notes and theoretical memos in grounded theory

21 January 2018

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https://api.crossref.org/works/10.1007%2FS10897-015-9829-5

Young Australian adults with NF1 have poor access to health care, high complication rates, and limited disease knowledge.

21 January 2018

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The impact of ADHD on the cognitive and academic functioning of children with NF1.

21 January 2018

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Social functioning in adults with neurofibromatosis type 1.

21 January 2018

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Neurofibromatosis type 1 in genetic counseling practice: recommendations of the National Society of Genetic Counselors

21 January 2018

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Psychological distress in adults with neurofibromatosis type 1: a longitudinal study

21 January 2018

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Unravelling the genetic basis of variable clinical expression in neurofibromatosis 1.

21 January 2018

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Adult psychological functioning of individuals born with craniofacial anomalies.

21 January 2018

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How to do a grounded theory study: a worked example of a study of dental practices.

21 January 2018

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Women with neurofibromatosis 1 are at a moderately increased risk of developing breast cancer and should be considered for early screening

21 January 2018

1 reference

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Appearance concerns among women with neurofibromatosis: examining sexual/bodily and social self-consciousness

21 January 2018

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Adjusting to disfigurement: processes involved in dealing with being visibly different.

21 January 2018

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Emotional functioning of patients with neurofibromatosis tumor suppressor syndrome

21 January 2018

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Quality-of-life impairment in neurofibromatosis type 1: a cross-sectional study of 128 cases.

21 January 2018

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21 January 2018

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Birth incidence and prevalence of tumor-prone syndromes: Estimates from a UK family genetic register service

21 January 2018

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21 January 2018

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Neurofibromatosis 1: Analysis of the demand for prenatal diagnosis in a French cohort of 361 patients

21 January 2018

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What do French patients and geneticists think about prenatal and preimplantation diagnoses in Marfan syndrome?

21 January 2018

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12 December 2020

Influence of learning disabilities on the tumour predisposition syndrome NF1--survey from adult patients' perspective.

1 reference

12 December 2020

The impact of chronic urticaria on the quality of life.

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12 December 2020

Reproductive decisions after prenatal diagnosis in neurofibromatosis type 1: importance of genetic counseling

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12 December 2020

The neurofibromatoses

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12 December 2020

Neurofibromatosis. Conference statement. National Institutes of Health Consensus Development Conference

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12 December 2020

[Psychological impact of neurofibromatosis type 1: the analysis of interviews with 12 patients with regard to an evaluation of the quality of life]

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12 December 2020

From "reducing" to "coping with" uncertainty: reconceptualizing the central challenge in breast self-exams

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12 December 2020

The impact of psoriasis on quality of life: results of a 1998 National Psoriasis Foundation patient-membership survey.

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12 December 2020

Neurofibromatosis: a neoplastic birth defect with two age peaks of severe problems

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12 December 2020

On the natural history of von Recklinghausen neurofibromatosis

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12 December 2020

Body image and disfigurement: issues and interventions

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12 December 2020

Impact of ADHD in adults with neurofibromatosis type 1: associated psychological and social problems.

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12 December 2020

Variable expression of neurofibromatosis 1 in monozygotic twins

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12 December 2020

Neurofibromatosis. A clinical and genetic study of 96 cases in Gothenburg, Sweden

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12 December 2020

Constructing Grounded Theory: A practical guide through qualitative analysis

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12 December 2020

10.1007/S10897-015-9829-5

Identifiers

DOI

1 reference

25 September 2017

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