(Q41456572)

30 September 2017

title

Living with and treating rare diseases: experiences of patients and professional health care providers (English)

1 reference

30 September 2017

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Lorenza Garrino

1

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30 September 2017

Elisa Picco

2

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30 September 2017

Ivana Finiguerra

3

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30 September 2017

Daniela Rossi

4

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30 September 2017

Paola Simone

5

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30 September 2017

Dario Roccatello

6

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30 September 2017

language of work or name

1 reference

9 February 2015

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Qualitative Health Research

30 September 2017

published in

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30 September 2017

volume

25

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30 September 2017

issue

5

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30 September 2017

page(s)

636-651

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Patient power and control: a study of women with uncertain illness trajectories.

30 September 2017

cites work

1 reference

https://api.crossref.org/works/10.1177%2F1049732315570116

Narrative medicine: form, function, and ethics.

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1049732315570116

What is a good death? Health care professionals' narrations on end-of-life care

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1049732315570116

The body in health and illness

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1049732315570116

The qualitative research interview.

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1049732315570116

What, if anything, is specific about having a rare disorder? Patients' judgements on being ill and being rare.

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1049732315570116

Life with a rare chronic disease: the scleroderma experience

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1049732315570116

Chronic illness self-management: taking action to create order.

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1049732315570116

Mutual influence in shared decision making: a collaborative study of patients and physicians

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1049732315570116

Why rare diseases are an important medical and social issue

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1049732315570116

Patients' evaluations of the quality of care: influencing factors and the importance of engagement

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1049732315570116

Acceptance and denial: implications for people adapting to chronic illness: literature review

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1049732315570116

A journey of hope: lessons learned from studies on rare diseases and orphan drugs

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1049732315570116

Using patient stories to inspire quality improvement within the NHS Modernization Agency collaborative programmes

21 January 2018

1 reference

https://api.crossref.org/works/10.1177%2F1049732315570116

21 January 2018

Identifiers

DOI

10.1177/1049732315570116

1 reference

30 September 2017

1 reference