(Q43101541)

13 November 2017

Quality of life in spina bifida: importance of parental hope (English)

1 reference

13 November 2017

1 reference

1 reference

Kirpalani HM

1

1 reference

13 November 2017

Parkin PC

2

1 reference

13 November 2017

Willan AR

3

1 reference

13 November 2017

Fehlings DL

4

1 reference

13 November 2017

Rosenbaum PL

5

1 reference

13 November 2017

King D

6

1 reference

13 November 2017

Van Nie AJ

7

1 reference

13 November 2017

language of work or name

English

0 references

publication date

1 October 2000

1 reference

Archives of Disease in Childhood

13 November 2017

1 reference

13 November 2017

83

1 reference

13 November 2017

4

1 reference

13 November 2017

293-297

1 reference

Recommendations for the management of galactosaemia. UK Galactosaemia Steering Group

13 November 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=1718506

Prospective surveillance study of medium chain acyl-CoA dehydrogenase deficiency in the UK.

25 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=1718506

Reframing the meaning of disability to families: the embrace of paradox

25 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=1718506

Congenital central hypoventilation syndrome and Hirschsprung's disease

25 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=1718506

Birth prevalence, mutation rate, sex ratio, parents' age, and ethnicity in Apert syndrome

25 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=1718506

Risk language and dialects

25 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=1718506

Development of a health-related quality of life instrument for use in children with spina bifida.

25 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=1718506

Spiritual well-being, religiosity, hope, depression, and other mood states in elderly people coping with cancer

25 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=1718506

Epidemiology of Munchausen syndrome by proxy, non-accidental poisoning, and non-accidental suffocation

25 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=1718506

Measuring health-related quality of life

25 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=1718506

Hope and schizophrenia: clinicians identify hope-instilling strategies.

25 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=1718506

The young adult with spina bifida.

25 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=1718506

Values, Preferences, and decisions in the care of children with developmental disabilities.

25 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=1718506

Results of treatment of myelomeningocele. An analysis of 524 unselected cases, with special reference to possible selection for treatment

25 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=1718506

Moral and Ethical Dilemmas in the Special-Care Nursery

25 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=1718506

Spina bifida cystica. Results of treatment of 270 consecutive cases with criteria for selection for the future

25 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=1718506

Results of selective early operation in myelomeningocele

25 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=1718506

Selective surgical management of neural tube malformations

25 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=1718506

Influence of prognosis on decisions regarding the care of newborns with myelodysplasia

25 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=1718506

Assessing the impact of a child with spina bifida on the family.

25 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=1718506

Development of an instrument to measure hope.

25 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=1718506

Illusion and well-being: a social psychological perspective on mental health

25 May 2018

2 references

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=1718506

25 May 2018

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=1718506

Hope-inspiring strategies of the critically ill.

15 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=1718506

Myelomeningocele: current concepts of management

25 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=1718506

Management of the newborn with myelomeningocele: time for a decision-making process

25 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=1718506

Prevalence study of Prader-Willi syndrome in North Dakota

25 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=1718506

Hope, self-esteem and social support in persons with multiple sclerosis

25 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=1718506

Hope, Social Support and Self-Esteem of Patients with Spinal Cord Injuries

25 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=1718506

Relationships among hope, psychosocial development, and locus of control

25 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=1718506

Treating hopelessness: nursing strategies from six countries

25 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=1718506

Predictive Factors in Open Myelomeningocele with Special Reference to Sensory Level

25 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=1718506

Newborns with myelodysplasia--the rest of the story.

25 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=1718506

Leukodystrophy incidence in Germany.

25 May 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=1718506

The principles for family-centered neonatal care.

15 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=1718506

New approach to assess quality of life in neonatal surgical cases: medical providers' subjective assessment of disease- and condition-related factors, using the linear analogue scale.

15 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=1718506

Hope and social support as coping resources for adults waiting for cardiac transplantation.

15 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=1718506

Spina bifida survivors and their parents: a study of problems and services

15 August 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=1718506

Effect of early surgery for spina bifida cystica on survival and quality of life

15 August 2018

1 reference

12 December 2020

Relationship of CSF shunting and IQ in children with myelomeningocele: a retrospective analysis

1 reference

12 December 2020

A methodological framework for assessing health indices

1 reference

12 December 2020

Prognosis for babies with meningomyelocele and high lumbar paraplegia at birth

1 reference

12 December 2020

Nordic children with myelomeningocele. Parents' assessments of the handicap and physicians' classifications of the disabilities

1 reference

12 December 2020

A randomized trial of a nursing intervention to promote the adjustment of children with chronic physical disorders

1 reference

12 December 2020

Symptom distress, coping style and biological variables as predictors of survival after bone marrow transplantation

1 reference

12 December 2020

Identifiers

DOI

10.1136/ADC.83.4.293

1 reference

13 November 2017

1 reference

13 November 2017

PubMed publication ID

10999858

1 reference