(Q45299882)

11 December 2017

title

More appreciation of life or regretting the test? Experiences of living as a mutation carrier of Huntington's disease (English)

1 reference

11 December 2017

More Appreciation of Life or Regretting the Test? Experiences of Living as a Mutation Carrier of Huntington's Disease (English)

1 reference

https://api.crossref.org/works/10.1007/S10897-010-9329-6

genetic carrier screening

22 July 2024

main subject

Huntington's disease

0 references

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?resulttype=core&format=json&query=SRC%3AMED%20AND%20EXT_ID%3A20878217

22 July 2024

author name string

Anette Hagberg

series ordinal

1

1 reference

11 December 2017

The-Hung Bui

series ordinal

2

1 reference

11 December 2017

Elisabeth Winnberg

series ordinal

3

1 reference

11 December 2017

language of work or name

1 reference

28 September 2010

1 reference

full work available at URL

11 December 2017

https://onlinelibrary.wiley.com/doi/pdfdirect/10.1007/s10897-010-9329-6

file format

Portable Document Format

online access status

open access

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?resulttype=core&format=json&query=SRC%3AMED%20AND%20EXT_ID%3A20878217

https://onlinelibrary.wiley.com/doi/pdf/10.1007/s10897-010-9329-6

22 July 2024

1 reference

https://api.crossref.org/works/10.1007/S10897-010-9329-6

https://onlinelibrary.wiley.com/doi/full-xml/10.1007/s10897-010-9329-6

22 July 2024

1 reference

https://api.crossref.org/works/10.1007/S10897-010-9329-6

Journal of Genetic Counseling

22 July 2024

published in

1 reference

11 December 2017

volume

20

1 reference

11 December 2017

issue

1

1 reference

11 December 2017

page(s)

70-79

1 reference

Risk reversals in predictive testing for Huntington disease.

11 December 2017

cites work

1 reference

https://api.crossref.org/works/10.1007%2FS10897-010-9329-6

Psychological consequences and predictors of adverse events in the first 5 years after predictive testing for Huntington's disease.

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS10897-010-9329-6

Predictive testing for Huntington disease: II. Demographic characteristics, life-style patterns, attitudes, and psychosocial assessments of the first fifty-one test candidates

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS10897-010-9329-6

Predictive testing for Huntington disease in Canada: the experience of those receiving an increased risk

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS10897-010-9329-6

Psychological costs and benefits of predictive testing for Huntington's disease

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS10897-010-9329-6

Psychological distress in the 5-year period after predictive testing for Huntington's disease

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS10897-010-9329-6

The qualitative research interview.

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS10897-010-9329-6

Psychological studies in Huntington's disease: making up the balance

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS10897-010-9329-6

"You're one of us now": young people describe their experiences of predictive genetic testing for Huntington disease (HD) and familial adenomatous polyposis (FAP).

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS10897-010-9329-6

Long-term outcome of presymptomatic testing in Huntington disease

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS10897-010-9329-6

A polymorphic DNA marker genetically linked to Huntington's disease

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS10897-010-9329-6

Predictive testing for Huntington disease in Canada: adverse effects and unexpected results in those receiving a decreased risk

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS10897-010-9329-6

Content analysis: review of methods and their applications in nutrition education

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS10897-010-9329-6

Understanding the decision to take the predictive test for Huntington disease.

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS10897-010-9329-6

Reactions to predictive testing in Huntington disease: case reports of coping with a new genetic status

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS10897-010-9329-6

Impact of genetic testing for Huntington disease on the family system

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS10897-010-9329-6

A novel gene containing a trinucleotide repeat that is expanded and unstable on Huntington's disease chromosomes.

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS10897-010-9329-6

Presymptomatic DNA-testing for Huntington disease: pretest attitudes and expectations of applicants and their partners in the Dutch program

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS10897-010-9329-6

On attitudes and appreciation 6 months after predictive DNA testing for Huntington disease in the Dutch program

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS10897-010-9329-6

Psychological effects of presymptomatic DNA testing for Huntington's disease in the Dutch program

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS10897-010-9329-6

Adverse effects of predictive testing for Huntington disease underestimated: long-term effects 7-10 years after the test

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS10897-010-9329-6

When to tell and test for genetic carrier status: perspectives of adolescents and young adults from fragile X families.

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS10897-010-9329-6

The psychological consequences of predictive testing for Huntington's disease. Canadian Collaborative Study of Predictive Testing

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS10897-010-9329-6

Impact on couple relationships of predictive testing for Huntington disease: a longitudinal study

21 January 2018

1 reference

12 December 2020

Three-year follow-up after presymptomatic testing for Huntington's disease in tested individuals and partners

1 reference

12 December 2020

Couples' experiences of predictive testing and living with the risk or reality of Huntington disease: a qualitative study

1 reference

12 December 2020

Thematic evidence of psychosocial thriving in childhood cancer survivors

1 reference

12 December 2020

Mental health and quality of life after genetic testing for Huntington disease: A long-term effect study in Germany

1 reference

12 December 2020

Posttraumatic stress associated with cancer history and BRCA1/2 genetic testing

1 reference

12 December 2020

Long Term Follow-up of HNPCC Gene Mutation Carriers: Compliance with Screening and Satisfaction with Counseling and Screening Procedures

1 reference

12 December 2020

Identifiers

1 reference

11 December 2017

1 reference