(Q57386647)

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:22903777%20AND%20SRC:MED&resulttype=core&format=json

11 February 2020

title

"I want to know what's in Pandora's Box": comparing stakeholder perspectives on incidental findings in clinical whole genomic sequencing (English)

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:22903777%20AND%20SRC:MED&resulttype=core&format=json

11 February 2020

0 references

2

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:22903777%20AND%20SRC:MED&resulttype=core&format=json

11 February 2020

Patricia Birch

3

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:22903777%20AND%20SRC:MED&resulttype=core&format=json

11 February 2020

Jan M Friedman

6

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:22903777%20AND%20SRC:MED&resulttype=core&format=json

11 February 2020

author name string

Anne Townsend

1

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:22903777%20AND%20SRC:MED&resulttype=core&format=json

11 February 2020

Zoe Lohn

4

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:22903777%20AND%20SRC:MED&resulttype=core&format=json

11 February 2020

Francois Rousseau

5

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:22903777%20AND%20SRC:MED&resulttype=core&format=json

11 February 2020

language of work or name

English

0 references

publication date

17 August 2012

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:22903777%20AND%20SRC:MED&resulttype=core&format=json

American Journal of Medical Genetics

11 February 2020

published in

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:22903777%20AND%20SRC:MED&resulttype=core&format=json

11 February 2020

volume

158A

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:22903777%20AND%20SRC:MED&resulttype=core&format=json

11 February 2020

issue

10

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:22903777%20AND%20SRC:MED&resulttype=core&format=json

11 February 2020

page(s)

2519-2525

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:22903777%20AND%20SRC:MED&resulttype=core&format=json

Clinical assessment incorporating a personal genome

11 February 2020

cites work

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.A.35554

Consumer perceptions of direct-to-consumer personalized genomic risk assessments

21 January 2018

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.A.35554

Should genetic testing for BRCA1/2 be permitted for minors? Opinions of BRCA mutation carriers and their adult offspring

21 January 2018

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.A.35554

Disclosure of individual genetic data to research participants: the debate reconsidered

21 January 2018

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.A.35554

Personal genomes: no bad news?

21 January 2018

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.A.35554

Understanding incidental findings in the context of genetics and genomics

21 January 2018

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.A.35554

Supporting patient autonomy: the importance of clinician-patient relationships

21 January 2018

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.A.35554

Evaluating the utility of personal genomic information

21 January 2018

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.A.35554

Autonomy and selfishness.

21 January 2018

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.A.35554

Ethics needs principles--four can encompass the rest--and respect for autonomy should be "first among equals"

21 January 2018

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.A.35554

What is the clinical utility of genetic testing?

21 January 2018

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.A.35554

Personalized genomic information: preparing for the future of genetic medicine

21 January 2018

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.A.35554

Public attitudes toward ancillary information revealed by pharmacogenetic testing under limited information conditions

21 January 2018

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.A.35554

The return of individual research findings in paediatric genetic research

21 January 2018

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.A.35554

Qualitative research. Introducing focus groups

21 January 2018

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.A.35554

The incidentalome: a threat to genomic medicine

21 January 2018

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.A.35554

Patients' and health professionals' views on primary care for people with serious mental illness: focus group study.

21 January 2018

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.A.35554

A timely arrival for genomic medicine

21 January 2018

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.A.35554

Research ethics and the challenge of whole-genome sequencing

21 January 2018

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.A.35554

Personal genome research : what should the participant be told?

21 January 2018

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.A.35554

Patient-centredness: a conceptual framework and review of the empirical literature

21 January 2018

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.A.35554

Public expectations for return of results from large-cohort genetic research

21 January 2018

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.A.35554

New challenges for informed consent through whole genome array testing

21 January 2018

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.A.35554

Focus-group interview and data analysis

21 January 2018

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.A.35554

Disclosing individual genetic results to research participants

21 January 2018

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.A.35554

A clinical perspective on ethical issues in genetic testing

21 January 2018

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.A.35554

Comparing genetic counseling with non-genetic health care interactions: two of a kind?

21 January 2018

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.A.35554

Ethical implications of array comparative genomic hybridization in complex phenotypes: points to consider in research

21 January 2018

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.A.35554

Parents' attitudes toward pediatric genetic testing for common disease risk

21 January 2018

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.A.35554

Everyday ethics and help-seeking in early rheumatoid arthritis

21 January 2018

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.A.35554

Genomic research and incidental findings

21 January 2018

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.A.35554

A formal risk-benefit framework for genomic tests: facilitating the appropriate translation of genomics into clinical practice

21 January 2018

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.A.35554

Managing incidental findings in human subjects research: analysis and recommendations

21 January 2018

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.A.35554

Ethical Considerations in the Communication of Unexpected Information with Clinical Implications

21 January 2018

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.A.35554

Deploying whole genome sequencing in clinical practice and public health: meeting the challenge one bin at a time

21 January 2018

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.A.35554

Downsizing genomic medicine: approaching the ethical complexity of whole-genome sequencing by starting small

21 January 2018

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.A.35554

21 January 2018

Identifiers

DOI

10.1002/AJMG.A.35554

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:22903777%20AND%20SRC:MED&resulttype=core&format=json

11 February 2020

1 reference