(Q88639866)

English

Understanding How Chorea Affects Health-Related Quality of Life in Huntington Disease: An Online Survey of Patients and Caregivers in the United States

scientific article published on 01 October 2018

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scholarly article

1 reference

Europe PubMed Central

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https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:29750428%20AND%20SRC:MED&resulttype=core&format=json

26 March 2020

Understanding How Chorea Affects Health-Related Quality of Life in Huntington Disease: An Online Survey of Patients and Caregivers in the United States (English)

1 reference

Europe PubMed Central

PMC publication ID

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:29750428%20AND%20SRC:MED&resulttype=core&format=json

26 March 2020

author name string

Eileen Mack Thorley

1

1 reference

Europe PubMed Central

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https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:29750428%20AND%20SRC:MED&resulttype=core&format=json

26 March 2020

Ravi G Iyer

2

1 reference

Europe PubMed Central

PMC publication ID

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:29750428%20AND%20SRC:MED&resulttype=core&format=json

26 March 2020

Paul Wicks

3

1 reference

Europe PubMed Central

PMC publication ID

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:29750428%20AND%20SRC:MED&resulttype=core&format=json

26 March 2020

Chris Curran

4

1 reference

Europe PubMed Central

PMC publication ID

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:29750428%20AND%20SRC:MED&resulttype=core&format=json

26 March 2020

Sanjay K Gandhi

5

1 reference

Europe PubMed Central

PMC publication ID

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:29750428%20AND%20SRC:MED&resulttype=core&format=json

26 March 2020

Victor Abler

6

1 reference

Europe PubMed Central

PMC publication ID

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:29750428%20AND%20SRC:MED&resulttype=core&format=json

26 March 2020

Karen E Anderson

7

1 reference

Europe PubMed Central

PMC publication ID

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:29750428%20AND%20SRC:MED&resulttype=core&format=json

26 March 2020

Noelle E Carlozzi

8

1 reference

Europe PubMed Central

PMC publication ID

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:29750428%20AND%20SRC:MED&resulttype=core&format=json

26 March 2020

publication date

1 October 2018

1 reference

Europe PubMed Central

PMC publication ID

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:29750428%20AND%20SRC:MED&resulttype=core&format=json

26 March 2020

The Patient: Patient-Centered Outcomes Research

1 reference

Europe PubMed Central

PMC publication ID

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:29750428%20AND%20SRC:MED&resulttype=core&format=json

26 March 2020

11

1 reference

Europe PubMed Central

PMC publication ID

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:29750428%20AND%20SRC:MED&resulttype=core&format=json

26 March 2020

5

1 reference

Europe PubMed Central

PMC publication ID

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:29750428%20AND%20SRC:MED&resulttype=core&format=json

26 March 2020

547-559

1 reference

Europe PubMed Central

PMC publication ID

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:29750428%20AND%20SRC:MED&resulttype=core&format=json

26 March 2020

copyright license

Creative Commons Attribution-NonCommercial 4.0 International

11 May 2018

1 reference

April 2022 Public Data File from Crossref

copyright status

0 references

Huntington disease: functional capacities in patients treated with neuroleptic and antidepressant drugs

1 reference

https://pubmed.ncbi.nlm.nih.gov/29750428

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Differences in duration of Huntington's disease based on age at onset

1 reference

https://pubmed.ncbi.nlm.nih.gov/29750428

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Rate of functional decline in Huntington's disease. Huntington Study Group

1 reference

https://pubmed.ncbi.nlm.nih.gov/29750428

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Behavioral changes in Huntington Disease

1 reference

https://pubmed.ncbi.nlm.nih.gov/29750428

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

A diabetes-specific measure of patient desire to participate in medical decision making

1 reference

https://pubmed.ncbi.nlm.nih.gov/29750428

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Impact of the motor complications of Parkinson's disease on the quality of life

1 reference

https://pubmed.ncbi.nlm.nih.gov/29750428

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Three approaches to qualitative content analysis

1 reference

https://pubmed.ncbi.nlm.nih.gov/29750428

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Tetrabenazine as antichorea therapy in Huntington disease: a randomized controlled trial

1 reference

https://pubmed.ncbi.nlm.nih.gov/29750428

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

'When I am together with them I feel more ill.' The stigma of multiple sclerosis experienced in social relationships.

1 reference

https://pubmed.ncbi.nlm.nih.gov/29750428

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Physical therapy intervention for people with Huntington disease

1 reference

https://pubmed.ncbi.nlm.nih.gov/29750428

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Stigma of epilepsy

1 reference

https://pubmed.ncbi.nlm.nih.gov/29750428

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Biological and clinical manifestations of Huntington's disease in the longitudinal TRACK-HD study: cross-sectional analysis of baseline data

1 reference

https://pubmed.ncbi.nlm.nih.gov/29750428

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Treatment of hyperkinetic movement disorders

1 reference

https://pubmed.ncbi.nlm.nih.gov/29750428

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Sharing health data for better outcomes on PatientsLikeMe

1 reference

https://pubmed.ncbi.nlm.nih.gov/29750428

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005–2008

1 reference

https://pubmed.ncbi.nlm.nih.gov/29750428

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Huntington's disease: a clinical review

1 reference

https://pubmed.ncbi.nlm.nih.gov/29750428

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Huntington's disease

1 reference

https://pubmed.ncbi.nlm.nih.gov/29750428

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Impact of Huntington's across the entire disease spectrum: the phases and stages of disease from the patient perspective

1 reference

https://pubmed.ncbi.nlm.nih.gov/29750428

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Neuro-QOL: quality of life item banks for adults with neurological disorders: item development and calibrations based upon clinical and general population testing

1 reference

https://pubmed.ncbi.nlm.nih.gov/29750428

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

The neurology quality-of-life measurement initiative

1 reference

https://pubmed.ncbi.nlm.nih.gov/29750428

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

An International Survey-based Algorithm for the Pharmacologic Treatment of Chorea in Huntington's Disease

1 reference

https://pubmed.ncbi.nlm.nih.gov/29750428

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

'All the burden on all the carers': exploring quality of life with family caregivers of Huntington's disease patients.

1 reference

https://pubmed.ncbi.nlm.nih.gov/29750428

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Huntington's disease from the patient, caregiver and physician's perspectives: three sides of the same coin?

1 reference

https://pubmed.ncbi.nlm.nih.gov/29750428

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Identification of health-related quality of life (HRQOL) issues relevant to individuals with Huntington disease

1 reference

https://pubmed.ncbi.nlm.nih.gov/29750428

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

The incidence and prevalence of Huntington's disease: a systematic review and meta-analysis

1 reference

https://pubmed.ncbi.nlm.nih.gov/29750428

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Evidence-based guideline: pharmacologic treatment of chorea in Huntington disease: report of the guideline development subcommittee of the American Academy of Neurology

1 reference

https://pubmed.ncbi.nlm.nih.gov/29750428

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Pharmacological treatment of chorea in Huntington's disease-good clinical practice versus evidence-based guideline

1 reference

https://pubmed.ncbi.nlm.nih.gov/29750428

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Huntington disease: natural history, biomarkers and prospects for therapeutics

1 reference

https://pubmed.ncbi.nlm.nih.gov/29750428

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

The many facets of unawareness in huntington disease

1 reference

https://pubmed.ncbi.nlm.nih.gov/29750428

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Patients optimizing epilepsy management via an online community: the POEM Study

1 reference

https://pubmed.ncbi.nlm.nih.gov/29750428

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

The development of a new computer adaptive test to evaluate chorea in Huntington disease: HDQLIFE Chorea

1 reference

https://pubmed.ncbi.nlm.nih.gov/29750428

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Effect of Deutetrabenazine on Chorea Among Patients With Huntington Disease: A Randomized Clinical Trial

1 reference

https://pubmed.ncbi.nlm.nih.gov/29750428

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

HDQLIFE: development and assessment of health-related quality of life in Huntington disease (HD).

1 reference

https://pubmed.ncbi.nlm.nih.gov/29750428

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Patient-reported outcomes in Huntington's disease: Quality of life in neurological disorders (Neuro-QoL) and Huntington's disease health-related quality of life (HDQLIFE) physical function measures

1 reference

https://pubmed.ncbi.nlm.nih.gov/29750428

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Physical Therapy and Exercise Interventions in Huntington's Disease: A Mixed Methods Systematic Review

1 reference

https://pubmed.ncbi.nlm.nih.gov/29750428

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Agreement between clinician-rated versus patient-reported outcomes in Huntington disease.

1 reference

https://pubmed.ncbi.nlm.nih.gov/29750428

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Identifiers

10.1007/S40271-018-0312-X

1 reference

Europe PubMed Central

PMC publication ID

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:29750428%20AND%20SRC:MED&resulttype=core&format=json

26 March 2020

PMC publication ID

1 reference

Europe PubMed Central

PMC publication ID

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:29750428%20AND%20SRC:MED&resulttype=core&format=json

26 March 2020

PubMed publication ID

1 reference

Europe PubMed Central

PMC publication ID

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:29750428%20AND%20SRC:MED&resulttype=core&format=json

26 March 2020

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