(Q28603520)

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Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and Research Feedback: A Qualitative Study

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Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and Research Feedback: A Qualitative Study (English)

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informed consent

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1 reference

based on heuristic

inferred from title

Dynamic consent

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based on heuristic

inferred from title

5

object named as

Jane Kaye

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object named as

David Lund

4

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object named as

Karen Spencer

1

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Caroline Sanders

object named as

Caroline Sanders

2

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Edgar A Whitley

object named as

Edgar A Whitley

3

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object named as

William Gregory Dixon

6

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language of work or name

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publication date

15 April 2016

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Journal of Medical Internet Research

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18

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4

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e66

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Patient and public attitudes towards informed consent models and levels of awareness of Electronic Health Records in the UK

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4851723

17 March 2017

Dynamic consent: a possible solution to improve patient confidence and trust in how electronic patient records are used in medical research

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4851723

17 March 2017

Dynamic consent: a patient interface for twenty-first century research networks

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4851723

17 March 2017

"Let's get the best quality research we can": public awareness and acceptance of consent to use existing data in health research: a systematic review and qualitative study.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4851723

17 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4851723

17 March 2017

Why do people cooperate with medical research? Findings from three studies

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4851723

17 March 2017

Health research access to personal confidential data in England and Wales: assessing any gap in public attitude between preferable and acceptable models of consent

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4851723

29 September 2017

The social licence for research: why care.data ran into trouble

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4851723

29 September 2017

Prevalence of comorbidities in rheumatoid arthritis and evaluation of their monitoring: results of an international, cross-sectional study (COMORA).

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4851723

29 September 2017

Patient and public views on electronic health records and their uses in the United kingdom: cross-sectional survey

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4851723

29 September 2017

Exploring barriers to participation and adoption of telehealth and telecare within the Whole System Demonstrator trial: a qualitative study

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4851723

29 September 2017

Adoption, non-adoption, and abandonment of a personal electronic health record: case study of HealthSpace

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4851723

29 September 2017

Public attitudes to the use in research of personal health information from general practitioners' records: a survey of the Irish general public

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4851723

29 September 2017

How to develop patient-centered research: some perspectives based on surveys among people with rheumatic diseases in Scandinavia.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4851723

29 September 2017

Consent for use of personal information for health research: do people with potentially stigmatizing health conditions and the general public differ in their opinions?

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4851723

29 September 2017

The use of medical records in research: what do patients want?

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4851723

29 September 2017

Trust and the development of health care as a social institution

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4851723

29 September 2017

An Integrative Model Of Organizational Trust

1 reference

https://api.crossref.org/works/10.2196%2FJMIR.5011

21 January 2018

Patient confidentiality in a time of care.data.

1 reference

https://api.crossref.org/works/10.2196%2FJMIR.5011

21 January 2018

Towards 'Engagement 2.0': Insights from a study of dynamic consent with biobank participants.

1 reference

https://api.crossref.org/works/10.2196%2FJMIR.5011

21 January 2018

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