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From the principles of genomic data sharing to the practices of data access committees

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From the principles of genomic data sharing to the practices of data access committees (English)

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data access committee

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2

Bartha Maria Knoppers

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Mahsa Shabani

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Mahsa Shabani

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Pascal Borry

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3

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Pascal Borry

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language of work or name

English

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publication date

9 March 2015

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published in

EMBO Molecular Medicine

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volume

7

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issue

5

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page(s)

507-9

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cites work

Data use under the NIH GWAS data sharing policy and future directions

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PubMed Central

reference URL

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17 March 2017

Data sharing policy design for consortia: challenges for sustainability

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PubMed Central

reference URL

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retrieved

17 March 2017

Unpublished genomic data-how to share?

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stated in

PubMed Central

reference URL

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4492813

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17 March 2017

A P3G generic access agreement for population genomic studies

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PubMed Central

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https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4492813

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17 March 2017

Ethical and practical challenges of sharing data from genome-wide association studies: the eMERGE Consortium experience

1 reference

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PubMed Central

reference URL

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17 March 2017

Data sharing in genomics--re-shaping scientific practice

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PubMed Central

reference URL

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4492813

retrieved

17 March 2017

Broad data sharing in genetic research: views of institutional review board professionals

1 reference

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PubMed Central

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https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4492813

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3 June 2018

Genomic databases access agreements: legal validity and possible sanctions

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3 June 2018

Stewardship of human biospecimens, DNA, genotype, and clinical data in the GWAS era.

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PubMed Central

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https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4492813

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3 June 2018

‘Access Arrangements’ for Biobanks: A Fine Line between Facilitating and Hindering Collaboration

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PubMed Central

reference URL

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4492813

retrieved

27 November 2018

Scientific publishing. Paper retracted following genome data breach

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PubMed

reference URL

https://pubmed.ncbi.nlm.nih.gov/25759363

retrieved

12 December 2020

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inferred from PubMed ID database lookup

Framework for responsible sharing of genomic and health-related data

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stated in

PubMed

reference URL

https://pubmed.ncbi.nlm.nih.gov/25759363

retrieved

12 December 2020

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Identifiers

DOI

10.15252/EMMM.201405002

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Consolidated OpenCitations Corpus – April 2017

OpenCitations bibliographic resource ID

3306795

OpenCitations bibliographic resource ID

3306795

1 reference

stated in

Consolidated OpenCitations Corpus – April 2017

OpenCitations bibliographic resource ID

1 reference

Consolidated OpenCitations Corpus – April 2017

OpenCitations bibliographic resource ID

3306795

PubMed publication ID

25759363

1 reference

stated in

Consolidated OpenCitations Corpus – April 2017

OpenCitations bibliographic resource ID

3306795

ResearchGate publication ID

273382350

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(Q28647502)

From the principles of genomic data sharing to the practices of data access committees

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