(Q28658438)

April 2022 Public Data File from Crossref

copyright status

copyrighted

0 references

cites work

Delivering proportionate governance in the era of eHealth: Making linkage and privacy work together

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4053599

Preparing for Responsible Sharing of Clinical Trial Data

17 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4053599

Data sharing in large research consortia: experiences and recommendations from ENGAGE

17 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4053599

Toward a roadmap in global biobanking for health

17 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4053599

Toward Precision Medicine

17 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4053599

Research guidelines in the era of large-scale collaborations: an analysis of Genome-wide Association Study Consortia

17 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4053599

From patients to partners: participant-centric initiatives in biomedical research

17 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4053599

Data sharing: not as simple as it seems

17 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4053599

Developing and implementing an institute-wide data sharing policy

17 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4053599

Towards a data sharing Code of Conduct for international genomic research

17 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4053599

Ethical and practical challenges of sharing data from genome-wide association studies: the eMERGE Consortium experience

17 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4053599

Ethical issues in human genomics research in developing countries

17 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4053599

Whose data set is it anyway? Sharing raw data from randomized trials

17 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4053599

An ethics safe harbor for international genomics research?

17 March 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4053599

Patients would benefit from simplified ethical review and consent procedure

3 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4053599

To share or not to share: that is not the question

3 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4053599

Questioning the limits of genomic privacy

3 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4053599

Genetic discrimination: international perspectives

3 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4053599

Ethical aspects of participation in the database of genotypes and phenotypes of the National Center for Biotechnology Information: the Cancer and Leukemia Group B Experience

3 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4053599

Using PhenX measures to identify opportunities for cross-study analysis

3 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4053599

Genomic databases access agreements: legal validity and possible sanctions

3 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4053599

From genomic databases to translation: a call to action

3 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4053599

The right to enjoy the benefits of scientific progress: in search of state obligations in relation to health

3 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4053599

Power to the people: participant ownership of clinical trial data

3 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4053599

Ethical and legal constraints on data sharing between countries in multinational epidemiological studies in Europe report from a joint workshop of the European League Against Rheumatism standing committee on epidemiology with the "AutoCure" project

3 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4053599

The increasing dominance of teams in production of knowledge

3 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4053599

Human rights and ethics in genomic research: rethinking the model

3 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4053599

The trouble with universal declarations

3 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4053599

‘Access Arrangements’ for Biobanks: A Fine Line between Facilitating and Hindering Collaboration

3 June 2018

1 reference

https://api.crossref.org/works/10.1007%2FS00439-014-1432-6

Of biotechnology and man.

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS00439-014-1432-6

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS00439-014-1432-6

Pharmaceutical knowledge governance: a human rights perspective

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS00439-014-1432-6

Biobanking and public health: is a human rights approach the tie that binds?

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS00439-014-1432-6

De minimis risk: a proposal for a new category of research risk

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS00439-014-1432-6

The haystack is made of needles

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS00439-014-1432-6

Editorial (An Idea Whose Time Has Come? An African Foresight Observatory on Genomics Medicine and Data-Intensive Global Science)

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS00439-014-1432-6

Human rights. A human right to science

21 January 2018

1 reference

12 December 2020

Harmonizing global science

1 reference

12 December 2020

The case for a cohort

1 reference

12 December 2020

Medicine. Life cycle of translational research for medical interventions

1 reference

12 December 2020

10.1007/S00439-014-1432-6

Identifiers

DOI

1 reference

Dimensions Publication ID

1036353801

0 references

1 reference

1 reference

PubMed publication ID

24573176

1 reference