(Q30440503)

17 August 2017

1 reference

title

Ethical and methodological issues in pedigree stroke research (English)

1 reference

17 August 2017

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3

J F Meschia

1 reference

17 August 2017

B B Worrall

1

1 reference

PMCID

2613840

17 August 2017

D T Chen

series ordinal

2

1 reference

PMCID

2613840

17 August 2017

language of work or name

English

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publication date

1 June 2001

1 reference

17 August 2017

1 reference

17 August 2017

32

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17 August 2017

1242-1249

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17 August 2017

6

1 reference

The Belmont Report. Ethical principles and guidelines for the protection of human subjects of research

17 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2613840

Protection of patients' rights to privacy

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2613840

Ethics. Protecting communities in biomedical research.

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2613840

Association between the Glu298Asp polymorphism in the endothelial constitutive nitric oxide synthase gene and brain infarction. The GENIC Investigators

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2613840

Iceland's Health Sector Database: a significant head start in the search for the biological grail or an irreversible error?

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2613840

Legal issues concerning electronic health information: privacy, quality, and liability

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2613840

An Icelandic saga on a centralized healthcare database and democratic decision making.

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2613840

Procedure to protect confidentiality of familial data in community genetics and genomic research

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2613840

Ethical issues in the design and conduct of cluster randomised controlled trials

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2613840

Genetic databases. Decoding developments in Iceland

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2613840

The role of community review in evaluating the risks of human genetic variation research.

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2613840

Genetic privacy: orthodoxy or oxymoron?

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2613840

Pedigrees-publish? or perish the thought?

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2613840

Stroke in children and sickle-cell disease: Baltimore-Washington Cooperative Young Stroke Study

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2613840

Notch3 mutations in cerebral autosomal dominant arteriopathy with subcortical infarcts and leukoencephalopathy (CADASIL), a mendelian condition causing stroke and vascular dementia

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2613840

Family history: a comprehensive genetic risk assessment method for the chronic conditions of adulthood

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2613840

Four approaches to doing ethics

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2613840

Drafting the Genetic Privacy Act: science, policy, and practical considerations.

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2613840

Cerebral autosomal dominant arteriopathy with subcortical infarcts and leukoencephalopathy maps to chromosome 19q12

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2613840

Recommendations for standardized human pedigree nomenclature. Pedigree Standardization Task Force of the National Society of Genetic Counselors.

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2613840

Certificates of confidentiality: a valuable tool for protecting genetic data.

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2613840

The natural history of homocystinuria due to cystathionine beta-synthase deficiency.

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2613840

Methodological and design issues: techniques for assessing the representatives of snowball samples.

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2613840

Risk of diabetes in siblings and other relatives of IDDM subjects

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2613840

Ethics, Scientific Validity, and the Design of Epidemiologic Studies

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2613840

HUGO Ethics Committee Statement on DNA sampling: control and access

20 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2613840

A relational perspective on ethics-in-science decisionmaking for research with vulnerable populations.

26 November 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2613840

Rules for research on human genetic variation--lessons from Iceland.

26 November 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2613840

The Icelandic Healthcare Database and informed consent.

26 November 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2613840

Protecting communities in research: current guidelines and limits of extrapolation.

26 November 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2613840

If I am only for myself, what am I? A communitarian look at the privacy stalemate

26 November 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2613840

The assent of a nation: genethics and Iceland.

26 November 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2613840

Familial history of stroke and stroke risk. The Family Heart Study

26 November 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2613840

An introduction to feminist approaches to bioethics: unity in diversity.

26 November 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2613840

ASHG report. Statement on informed consent for genetic research. The American Society of Human Genetics

26 November 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2613840

Generic Consent for Genetic Screening

26 November 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2613840

Policy choices available in genetic counseling for people at-risk for Huntington's disease

26 November 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2613840

World Medical Association declaration of Helsinki. Recommendations guiding physicians in biomedical research involving human subjects

26 November 2018

1 reference

12 December 2020

The natural history of stroke in sickle cell disease

1 reference

12 December 2020

Permission and confidentiality in publishing pedigrees

1 reference

12 December 2020

ASHG statement. Professional disclosure of familial genetic information. The American Society of Human Genetics Social Issues Subcommittee on Familial Disclosure

1 reference

12 December 2020

The cystic fibrosis gene: medical and social implications for heterozygote detection

1 reference

12 December 2020

Geneticists oppose consent ruling

1 reference

12 December 2020

Uniform administrative requirements for grants and agreements with institutions of higher education, hospitals and other non-profit organizations--OMB Circular A-110 (revised)--HUD. Final rule

1 reference

12 December 2020

US geneticists encouraged to play by the book

1 reference

12 December 2020

Generic consent for genetic screening

1 reference

12 December 2020

Relationship between medical genetics and public health: changing the paradigm of disease prevention and the definition of a genetic disease

1 reference

12 December 2020

Genetic information must remain private to prevent discrimination, spur research

1 reference

12 December 2020

Role of primary care providers in the delivery of genetics services

1 reference

12 December 2020

Familial aggregation of stroke. The Framingham Study

1 reference

12 December 2020

Informed consent for publication

1 reference

12 December 2020

Influence of parental history of hypertension on blood pressure

1 reference

12 December 2020

Medicare and Medicaid programs; advance directives--HCFA. Final rule

1 reference

12 December 2020

Identifiers

DOI

10.1161/01.STR.32.6.1242

1 reference

17 August 2017

1 reference

17 August 2017

1 reference

PMCID

2613840