(Q30455590)

21 June 2017

title

Quality of life and measures of quality of life in patients with neuromuscular disorders (English)

1 reference

21 June 2017

1 reference

Christopher D Graham

2

0 references

Ted Michael Burns

series ordinal

1

object named as

Ted M Burns

1 reference

21 June 2017

Michael R Rose

3

1 reference

21 June 2017

Zachary Simmons

series ordinal

4

1 reference

21 June 2017

language of work or name

English

0 references

publication date

29 May 2012

1 reference

21 June 2017

1 reference

21 June 2017

volume

46

1 reference

21 June 2017

issue

1

1 reference

21 June 2017

page(s)

9-25

1 reference

Less is more, or almost as much: a 15-item quality-of-life instrument for myasthenia gravis

21 June 2017

cites work

1 reference

The ALSSQOL: balancing physical and nonphysical factors in assessing quality of life in ALS.

21 January 2018

1 reference

Errors of measurement affecting the reliability and validity of data acquired from self-assessed quality of life

21 January 2018

1 reference

The MOS 36-ltem Short-Form Health Survey (SF-36)

21 January 2018

1 reference

Quality of life complements traditional outcome measures in immune-mediated polyneuropathies

21 January 2018

1 reference

21 January 2018

1 reference

Understanding the consequences of chronic inflammatory demyelinating polyradiculoneuropathy from impairments to activity and participation restrictions and reduced quality of life: the ICE study

21 January 2018

1 reference

Outcome measures in immune-mediated neuropathies: the need to standardize their use and to understand the clinimetric essentials.

21 January 2018

1 reference

Randomized controlled trial of intravenous immunoglobulin versus oral prednisolone in chronic inflammatory demyelinating polyradiculoneuropathy.

21 January 2018

1 reference

Quality of life in ALS depends on factors other than strength and physical function.

21 January 2018

1 reference

Dermatology Life Quality Index (DLQI)--a simple practical measure for routine clinical use.

21 January 2018

1 reference

Noninvasive ventilation in ALS: indications and effect on quality of life.

21 January 2018

1 reference

Who should measure quality of life, the doctor or the patient?

21 January 2018

1 reference

The PedsQL in pediatric patients with Duchenne muscular dystrophy: feasibility, reliability, and validity of the Pediatric Quality of Life Inventory Neuromuscular Module and Generic Core Scales

21 January 2018

1 reference

The SEIQoL-DW for assessing quality of life in ALS: strengths and limitations.

21 January 2018

1 reference

The MG-QOL15 for following the health-related quality of life of patients with myasthenia gravis

21 January 2018

1 reference

Quality of life in cancer patients--an hypothesis

21 January 2018

1 reference

Integrating response shift into health-related quality of life research: a theoretical model

21 January 2018

1 reference

Relationship of the Tufts Quantitative Neuromuscular Exam (TQNE) and the Sickness Impact Profile (SIP) in measuring progression of ALS. SSNJV/CNTF ALS Study Group

21 January 2018

1 reference

Individual quality of life is not correlated with health-related quality of life or physical function in patients with amyotrophic lateral sclerosis.

21 January 2018

1 reference

Analysis of health-related quality of life and muscle impairment in individuals with amyotrophic lateral sclerosis using the medical outcome survey and the Tufts Quantitative Neuromuscular Exam.

21 January 2018

1 reference

Cross-sectional and longitudinal correlations between disease progression and different health-related quality of life domains in persons with amyotrophic lateral sclerosis.

21 January 2018

1 reference

The ALS Health Profile Study: quality of life of amyotrophic lateral sclerosis patients and carers in Europe.

21 January 2018

1 reference

EuroQol--a new facility for the measurement of health-related quality of life

21 January 2018

1 reference

Patients' health-related quality-of-life and health state values for motor neurone disease/amyotrophic lateral sclerosis.

21 January 2018

1 reference

Social economic costs and health-related quality of life in patients with amyotrophic lateral sclerosis in Spain

21 January 2018

1 reference

A brief quality-of-life measure for ALS clinical trials based on a subset of items from the sickness impact profile. The Syntex-Synergen ALS/CNTF Study Group.

21 January 2018

1 reference

The amyotrophic lateral sclerosis assessment questionnaire (ALSAQ-40): tests of data quality, score reliability and response rate in a survey of patients

21 January 2018

1 reference

Reduced item set for the amyotrophic lateral sclerosis assessment questionnaire: development and validation of the ALSAQ-5

21 January 2018

1 reference

Validity of the Dutch version of the Amyotrophic Lateral Sclerosis Assessment Questionnaire, ALSAQ-40, ALSAQ-5.

21 January 2018

1 reference

Quality of life and motor impairment in ALS: Italian validation of ALSAQ.

21 January 2018

1 reference

Evaluation of the psychological status of ventilatory-supported patients with ALS/MND.

21 January 2018

1 reference

Patients with amyotrophic lateral sclerosis receiving long-term mechanical ventilation. Advance care planning and outcomes

21 January 2018

1 reference

Quality of life and psychosocial issues in ventilated patients with amyotrophic lateral sclerosis and their caregivers

21 January 2018

1 reference

Quality of life following spinal cord injury: knowledge and attitudes of emergency care providers

21 January 2018

1 reference

Doctors and patients don't agree: cross sectional study of patients' and doctors' perceptions and assessments of disability in multiple sclerosis

21 January 2018

1 reference

Well-being in patients with amyotrophic lateral sclerosis and their next of kin over time.

21 January 2018

1 reference

The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease: A review

21 January 2018

1 reference

The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability

21 January 2018

1 reference

Existential well-being is an important determinant of quality of life. Evidence from the McGill Quality of Life Questionnaire.

21 January 2018

1 reference

Validity of the McGill Quality of Life Questionnaire in the palliative care setting: a multi-centre Canadian study demonstrating the importance of the existential domain.

21 January 2018

1 reference

The dynamics of quality of life in ALS patients and caregivers.

21 January 2018

1 reference

A new short form individual quality of life measure (SEIQoL-DW): application in a cohort of individuals with HIV/AIDS.

21 January 2018

1 reference

Development of a direct weighting procedure for quality of life domains.

21 January 2018

1 reference

Individual quality of life in patients undergoing hip replacement

21 January 2018

1 reference

The quality of life of cancer patients participating in phase I clinical trials using SEIQoL-DW.

21 January 2018

1 reference

Quality-of-life measurement in advanced cancer: assessing the individual.

21 January 2018

1 reference

Measuring subjective quality of life in people with serious mental illness using the SEIqoL-DW.

21 January 2018

1 reference

Individual quality of life in the healthy elderly

21 January 2018

1 reference

Assessing individual quality of life in amyotrophic lateral sclerosis.

21 January 2018

1 reference

Comparison of instruments addressing quality of life in patients with ALS and their caregivers.

21 January 2018

1 reference

Correlates of Quality of Life in people with motor neuron disease (MND).

21 January 2018

1 reference

Measuring life quality, physical function and psychological well-being in neurological illness.

21 January 2018

1 reference

Religiousness is related to quality of life in patients with ALS

21 January 2018

1 reference

Factors supporting quality of life over time for individuals with amyotrophic lateral sclerosis: the role of positive self-perception and religiosity.

21 January 2018

1 reference

Psychological health in patients with ALS is maintained as physical function declines

21 January 2018

1 reference

Measuring quality of life: Is quality of life determined by expectations or experience?

21 January 2018

1 reference

Meaning in life in patients with amyotrophic lateral sclerosis.

21 January 2018

1 reference

Multidisciplinary ALS care improves quality of life in patients with ALS.

21 January 2018

1 reference

Psychological morbidity in ALS: the importance of psychological assessment beyond depression alone

21 January 2018

1 reference

Experienced fatigue in facioscapulohumeral dystrophy, myotonic dystrophy, and HMSN-I.

21 January 2018

1 reference

Quality of life and pain in patients with facioscapulohumeral muscular dystrophy.

21 January 2018

1 reference

Quality of life in hereditary neuromuscular diseases.

21 January 2018

1 reference

Disability, coping and quality of life in individuals with muscular dystrophy: a prospective study over five years.

21 January 2018

1 reference

21 January 2018

1 reference

What determines quality of life in inclusion body myositis?

21 January 2018

1 reference

The PedsQL in pediatric patients with Spinal Muscular Atrophy: feasibility, reliability, and validity of the Pediatric Quality of Life Inventory Generic Core Scales and Neuromuscular Module

21 January 2018

1 reference

Cutaneous symptoms of dermatomyositis significantly impact patients' quality of life.

21 January 2018

1 reference

Construction and validation of a quality of life questionnaire for neuromuscular disease (INQoL).

21 January 2018

1 reference

Italian validation of INQoL, a quality of life questionnaire for adults with muscle diseases.

21 January 2018

1 reference

Living with muscular dystrophy: health related quality of life consequences for children and adults

21 January 2018

1 reference

Assessment of pain and health-related quality of life in slowly progressive neuromuscular disease

21 January 2018

1 reference

Long-term outcome in polymyositis and dermatomyositis

21 January 2018

1 reference

21 January 2018

1 reference

Functional outcome and quality of life in adult patients with idiopathic inflammatory myositis.

21 January 2018

1 reference

Quality of life, physical disability, and respiratory impairment in Duchenne muscular dystrophy

21 January 2018

1 reference

Long-term ventilation for patients with Duchenne muscular dystrophy : physicians' beliefs and practices.

21 January 2018

1 reference

Becker and limb-girdle muscular dystrophies: a psychiatric and intellectual level comparative study.

21 January 2018

1 reference

Psychopathological and emotional deficits in myotonic dystrophy

21 January 2018

1 reference

Quality of life and well-being of patients with myasthenia gravis.

21 January 2018

1 reference

Correlation between a patient-derived functional questionnaire and abnormal neuromuscular transmission in Myasthenia Gravis patients.

21 January 2018

1 reference

A trial of mycophenolate mofetil with prednisone as initial immunotherapy in myasthenia gravis

21 January 2018

1 reference

21 January 2018

1 reference

Disease-specific measure of quality of life for myasthenia gravis

21 January 2018

1 reference

Disability and quality of life in Charcot-Marie-Tooth disease type 1.

21 January 2018

1 reference

Diabetic peripheral neuropathy and quality of life.

21 January 2018

1 reference

Development of a health-related quality of life measure for peripheral neuropathy.

21 January 2018

1 reference

Measures of chemotherapy-induced peripheral neuropathy: a systematic review of psychometric properties

21 January 2018

1 reference

The association of psychological factors, physical activity, neuropathy, and quality of life in type 2 diabetes

21 January 2018

1 reference

Pain affects the quality of life of neuropathic patients.

21 January 2018

1 reference

Quality of life in patients with axonal polyneuropathy.

21 January 2018

1 reference

21 January 2018

1 reference

Painful diabetic polyneuropathy: epidemiology, pain description, and quality of life

21 January 2018

1 reference

The development and validation of the Norfolk QOL-DN, a new measure of patients' perception of the effects of diabetes and diabetic neuropathy

21 January 2018

1 reference

German-translated Norfolk quality of life (QOL-DN) identifies the same factors as the English version of the tool and discriminates different levels of neuropathy severity

21 January 2018

1 reference

Relationship between clinical examination, quality of life, disability and depression in CMT patients: Italian multicenter study.

21 January 2018

1 reference

Correlation between clinical/neurophysiological findings and quality of life in Charcot-Marie-Tooth type 1A.

21 January 2018

1 reference

Evidence-based guideline: treatment of painful diabetic neuropathy--report of the American Association of Neuromuscular and Electrodiagnostic Medicine, the American Academy of Neurology, and the American Academy of Physical Medicine & Rehabilitation

21 January 2018

1 reference

The effects of a home exercise program on impairment and health-related quality of life in persons with chronic peripheral neuropathies.

21 January 2018

1 reference

Physical training and fatigue, fitness, and quality of life in Guillain-Barré syndrome and CIDP.

21 January 2018

1 reference

The development and validation of a neuropathy- and foot ulcer-specific quality of life instrument.

21 January 2018

1 reference

Psychosocial issues that face patients with Charcot-Marie-Tooth disease: the role of genetic counseling.

21 January 2018

1 reference

Quality of life in patients with Charcot-Marie-Tooth disease.

21 January 2018

1 reference

Effect of ascorbic acid in patients with Charcot-Marie-Tooth disease type 1A: a multicentre, randomised, double-blind, placebo-controlled trial

21 January 2018

1 reference

Ascorbic acid in Charcot-Marie-Tooth disease type 1A (CMT-TRIAAL and CMT-TRAUK): a double-blind randomised trial

21 January 2018

1 reference

Ascorbic acid for Charcot-Marie-Tooth disease type 1A in children: a randomised, double-blind, placebo-controlled, safety and efficacy trial.

21 January 2018

1 reference

Determinants of reduced health-related quality of life in pediatric inherited neuropathies

21 January 2018

1 reference

Quality of life in children with CMT type 1A.

21 January 2018

1 reference

Patients' health-related quality of life and utilities associated with different stages of amyotrophic lateral sclerosis

21 January 2018

1 reference

Spanish adaptation of the Amyotrophic Lateral Sclerosis Questionnaire ALSAQ-40 for ALS patients

21 January 2018

1 reference

Evidence for the validity and reliability of the ALS assessment questionnaire: The ALSAQ-40

21 January 2018

1 reference

Erratum to: A systematic review of quality of life in adults with muscle disease

21 January 2018

1 reference

21 January 2018

Identifiers

DOI

10.1002/MUS.23245

1 reference

21 June 2017

1 reference