(Q30542602)

English

The Scleroderma Patient-centered Intervention Network (SPIN) Cohort: protocol for a cohort multiple randomised controlled trial (cmRCT) design to support trials of psychosocial and rehabilitation interventions in a rare disease context.

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scholarly article

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7 March 2020

The Scleroderma Patient-centered Intervention Network (SPIN) Cohort: protocol for a cohort multiple randomised controlled trial (cmRCT) design to support trials of psychosocial and rehabilitation interventions in a rare disease context (English)

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7 March 2020

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Linda Kwakkenbos

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7 March 2020

Susan J. Bartlett

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7 March 2020

Vanessa L Malcarne

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7 March 2020

Serge Poiraudeau

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7 March 2020

Isabelle Boutron

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7 March 2020

Cornelia H M van den Ende

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7 March 2020

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7 March 2020

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7 March 2020

author name string

Lisa R Jewett

2

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7 March 2020

Murray Baron

3

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7 March 2020

Dan Furst

5

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7 March 2020

Karen Gottesman

6

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7 March 2020

Dinesh Khanna

7

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7 March 2020

Maureen D Mayes

9

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7 March 2020

Luc Mouthon

10

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7 March 2020

Maureen Sauve

12

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7 March 2020

Warren R Nielson

13

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7 March 2020

Janet L Poole

14

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7 March 2020

Shervin Assassi

15

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7 March 2020

Carolyn Ells

17

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7 March 2020

Marie Hudson

19

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7 March 2020

Ann Impens

20

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7 March 2020

Annett Körner

21

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7 March 2020

Catarina Leite

22

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7 March 2020

Cindy Mendelson

24

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7 March 2020

Russell J Steele

26

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7 March 2020

Maria E Suarez-Almazor

27

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7 March 2020

Sara Ahmed

28

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7 March 2020

Stephanie Coronado-Montoya

29

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7 March 2020

Vanessa C Delisle

30

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7 March 2020

Shadi Gholizadeh

31

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7 March 2020

Yeona Jang

32

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7 March 2020

Brooke Levis

33

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7 March 2020

Katherine Milette

34

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7 March 2020

Sarah D Mills

35

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7 March 2020

Ilya Razykov

36

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7 March 2020

Rina S Fox

37

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7 March 2020

Angela Costa Maia

23

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7 March 2020

publication date

7 August 2013

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7 March 2020

1 reference

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7 March 2020

3

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7 March 2020

8

1 reference

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7 March 2020

New directions for patient-centred care in scleroderma: the Scleroderma Patient-centred Intervention Network (SPIN).

1 reference

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20 June 2018

Validity of two new patient-reported outcome measures in systemic sclerosis: Patient-Reported Outcomes Measurement Information System 29-item Health Profile and Functional Assessment of Chronic Illness Therapy-Dyspnea short form

1 reference

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20 June 2018

Self-guided psychological treatment for depressive symptoms: a meta-analysis

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The Patient Health Questionnaire Somatic, Anxiety, and Depressive Symptom Scales: a systematic review

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20 June 2018

The efficacy of internet interventions for depression and anxiety disorders: a review of randomised controlled trials.

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20 June 2018

Psychological health and well-being in systemic sclerosis: State of the science and consensus research agenda.

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20 June 2018

Ain't necessarily so: review and critique of recent meta-analyses of behavioral medicine interventions in health psychology

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20 June 2018

A tutorial on pilot studies: the what, why and how.

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20 June 2018

Psychoeducation for depression, anxiety and psychological distress: a meta-analysis

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20 June 2018

Scleroderma prevalence: demographic variations in a population-based sample

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20 June 2018

EULAR recommendations for the treatment of systemic sclerosis: a report from the EULAR Scleroderma Trials and Research group (EUSTAR).

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20 June 2018

Improving the reporting of pragmatic trials: an extension of the CONSORT statement

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The PHQ-8 as a measure of current depression in the general population

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20 June 2018

Assessing body image in patients with systemic sclerosis (scleroderma): validation of the adapted Satisfaction with Appearance Scale

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20 June 2018

Incidence and prevalence of systemic sclerosis: a systematic literature review

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20 June 2018

Esophageal involvement in scleroderma: gastroesophageal reflux, the common problem

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20 June 2018

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20 June 2018

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20 June 2018

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1 reference

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20 June 2018

Psychologic factors in scleroderma

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20 June 2018

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1 reference

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20 June 2018

Towards a global definition of patient centred care

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20 June 2018

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20 June 2018

The value of the Health Assessment Questionnaire and special patient-generated scales to demonstrate change in systemic sclerosis patients over time

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20 June 2018

Utility of the Patient Health Questionnaire-9 to assess suicide risk in patients with systemic sclerosis.

1 reference

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Need for online information and support of patients with systemic sclerosis.

1 reference

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26 November 2018

Computer intervention impact on psychosocial adaptation of rural women with chronic conditions

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26 November 2018

Frequency and impact of symptoms experienced by patients with systemic sclerosis: results from a Canadian National Survey.

1 reference

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26 November 2018

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1 reference

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26 November 2018

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26 November 2018

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26 November 2018

Effect of a self-management program on patients with chronic disease

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26 November 2018

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1 reference

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26 November 2018

[Patient-centred care in rare diseases. A patient organisations' perspective]

1 reference

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12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Development and validation of a rheumatoid hand functional disability scale that assesses functional handicap

1 reference

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12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Living in a rural area with advanced chronic respiratory illness: a qualitative study

1 reference

https://pubmed.ncbi.nlm.nih.gov/23929922

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Identifiers

10.1136/BMJOPEN-2013-003563

1 reference

Europe PubMed Central

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7 March 2020

1 reference

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7 March 2020

1 reference

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7 March 2020

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