(Q37586400)

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:22244687%20AND%20SRC:MED&resulttype=core&format=json

20 January 2020

title

New directions for patient-centred care in scleroderma: the Scleroderma Patient-centred Intervention Network (SPIN) (English)

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:22244687%20AND%20SRC:MED&resulttype=core&format=json

20 January 2020

1 reference

1

1 reference

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20 January 2020

Susan J. Bartlett

5

1 reference

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Cornelia H M van den Ende

20 January 2020

28

1 reference

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20 January 2020

16

Vanessa L Malcarne

1 reference

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20 January 2020

author name string

Lisa R Jewett

2

1 reference

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20 January 2020

Shervin Assassi

3

1 reference

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20 January 2020

Murray Baron

4

1 reference

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20 January 2020

Angela Costa Maia

6

1 reference

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20 January 2020

Ghassan El-Baalbaki

7

1 reference

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20 January 2020

Daniel E Furst

8

1 reference

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20 January 2020

Karen Gottesman

9

1 reference

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20 January 2020

Jennifer A Haythornthwaite

10

1 reference

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20 January 2020

Marie Hudson

11

1 reference

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20 January 2020

Ann Impens

12

1 reference

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20 January 2020

Annett Korner

13

1 reference

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20 January 2020

Catarina Leite

14

1 reference

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20 January 2020

Maureen D Mayes

15

1 reference

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20 January 2020

Sarosh J Motivala

17

1 reference

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20 January 2020

Luc Mouthon

18

1 reference

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20 January 2020

Warren R Nielson

19

1 reference

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20 January 2020

Diane Plante

20

1 reference

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20 January 2020

Serge Poiraudeau

21

1 reference

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20 January 2020

Janet L Poole

22

1 reference

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20 January 2020

Janet Pope

23

1 reference

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20 January 2020

Maureen Sauve

24

1 reference

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20 January 2020

Russell J Steele

25

1 reference

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20 January 2020

Maria E Suarez-Almazor

26

1 reference

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20 January 2020

Suzanne Taillefer

27

1 reference

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20 January 2020

Erin Arthurs

29

1 reference

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20 January 2020

Marielle Bassel

30

1 reference

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20 January 2020

Vanessa Delisle

31

1 reference

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20 January 2020

Katherine Milette

32

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:22244687%20AND%20SRC:MED&resulttype=core&format=json

20 January 2020

Allison Leavens

33

1 reference

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20 January 2020

Ilya Razykov

34

1 reference

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20 January 2020

Dinesh Khanna

35

1 reference

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20 January 2020

publication date

1 March 2012

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:22244687%20AND%20SRC:MED&resulttype=core&format=json

Clinical and Experimental Rheumatology

20 January 2020

published in

1 reference

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20 January 2020

volume

30

1 reference

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20 January 2020

issue

2 Suppl 71

1 reference

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20 January 2020

page(s)

S23-9

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:22244687%20AND%20SRC:MED&resulttype=core&format=json

Prevalence and correlates of sleep disturbance in systemic sclerosis--results from the UCLA scleroderma quality of life study

20 January 2020

cites work

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

The symptom burden index: development and initial findings from use with patients with systemic sclerosis

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

Psychological health and well-being in systemic sclerosis: State of the science and consensus research agenda.

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

Effects of befriending on depressive symptoms and distress: systematic review and meta-analysis

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

Musculoskeletal rehabilitation in the person with scleroderma

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

(Not) talking about sex: a systematic comparison of sexual impairment in women with systemic sclerosis and other chronic disease samples

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

Effect of peer support on prevention of postnatal depression among high risk women: multisite randomised controlled trial

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

EULAR recommendations for the treatment of systemic sclerosis: a report from the EULAR Scleroderma Trials and Research group (EUSTAR).

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

A systematic comparison of fatigue levels in systemic sclerosis with general population, cancer and rheumatic disease samples.

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

Become your own advocate: advice from women living with scleroderma

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

Incidence and prevalence of systemic sclerosis: a systematic literature review

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

Depression in patients with systemic sclerosis: a systematic review of the evidence

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

Systemic sclerosis - continuing progress in developing clinical measures of response.

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

Internet-based chronic disease self-management: a randomized trial

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

Mechanisms and consequences of fibrosis in systemic sclerosis

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

A journey of hope: lessons learned from studies on rare diseases and orphan drugs

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

Self-management interventions for chronic illness

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

Prevalence, incidence, survival, and disease characteristics of systemic sclerosis in a large US population

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

Current status of outcome measure development for clinical trials in systemic sclerosis. Report from OMERACT 6.

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

Psychologic factors in scleroderma

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

The impact of pain and symptoms of depression in scleroderma

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

Altered body image: a fear-avoidance model of psycho-social difficulties following disfigurement

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

Registries in systemic sclerosis: a worldwide experience

23 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

Scleroderma prevalence: demographic variations in a population-based sample

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

Self-perception, social skills, adjustment, and inhibition in young adolescents with craniofacial anomalies.

14 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

Clinical correlates of sleep problems in systemic sclerosis: the prominent role of pain.

25 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

Frequency and impact of symptoms experienced by patients with systemic sclerosis: results from a Canadian National Survey.

1 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

Mood and anxiety disorders in systemic sclerosis patients.

1 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

Development and validation of the brief-satisfaction with appearance scale for systemic sclerosis.

1 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

Comparison of the PHQ-9 and CES-D depression scales in systemic sclerosis: internal consistency reliability, convergent validity and clinical correlates.

1 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

Impaired sexual function in women with systemic sclerosis: a cross-sectional study.

1 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

Sociodemographic, disease, and symptom correlates of fatigue in systemic sclerosis: evidence from a sample of 659 Canadian Scleroderma Research Group Registry patients.

1 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

Mental health in patients with systemic sclerosis: a controlled investigation.

1 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

Quality of life and functional status in systemic sclerosis compared to other rheumatic diseases.

1 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

Evaluation of depression and anxiety in patients with systemic sclerosis

1 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

1 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

Psychiatric symptoms associated with scleroderma.

1 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

An evaluation of the impact of social interaction skills training for facially disfigured people.

1 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

Rethinking pragmatic randomised controlled trials: introducing the "cohort multiple randomised controlled trial" design

1 September 2018

2 references

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

2 October 2018

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

Assessing disability and quality of life in systemic sclerosis: Construct validities of the Cochin Hand Function Scale, Health Assessment Questionnaire (HAQ), Systemic Sclerosis HAQ, and Medical Outcomes Study 36-Item Short Form Health Survey

3 December 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3925434

Work Disability in Systemic Sclerosis

3 December 2018

1 reference

12 December 2020

Prevalence, severity, and clinical correlates of pain in patients with systemic sclerosis

1 reference

12 December 2020

Randomized comparison of a multidisciplinary team care program with usual care in patients with systemic sclerosis

1 reference

12 December 2020

Body image dissatisfaction among women with scleroderma: extent and relationship to psychosocial function

1 reference

12 December 2020

The MACTAR Patient Preference Disability Questionnaire--an individualized functional priority approach for assessing improvement in physical disability in clinical trials in rheumatoid arthritis

1 reference

12 December 2020

A piece of my mind. The need to know

1 reference

12 December 2020

Appearance self-esteem in systemic sclerosis--subjective experience of skin deformity and its relationship with physician-assessed skin involvement, disease status and psychological variables

1 reference

12 December 2020

[Patient-centred care in rare diseases. A patient organisations' perspective]

1 reference

12 December 2020

Daily occupations – performance, satisfaction and time use, and relations with well-being in women with limited systemic sclerosis

1 reference

12 December 2020

Prevalence and clinical correlates of symptoms of depression in patients with systemic sclerosis

1 reference

12 December 2020

Patient preference disability questionnaire in systemic sclerosis: A cross‐sectional survey

1 reference

12 December 2020

Working ability in relation to disease severity, everyday occupations and well-being in women with limited systemic sclerosis

1 reference

12 December 2020

The effect of paraffin and exercise on hand function in persons with scleroderma: a series of single case studies

1 reference

12 December 2020

Identifiers

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:22244687%20AND%20SRC:MED&resulttype=core&format=json

20 January 2020

PubMed publication ID

22244687

1 reference