(Q33320883)

25 July 2017

title

When research seems like clinical care: a qualitative study of the communication of individual cancer genetic research results (English)

1 reference

25 July 2017

Fiona A Miller

1

0 references

author name string

Mita Giacomini

2

1 reference

25 July 2017

Catherine Ahern

3

1 reference

25 July 2017

Jason S Robert

4

1 reference

25 July 2017

Sonya de Laat

5

1 reference

25 July 2017

language of work or name

1 reference

22 February 2008

1 reference

25 July 2017

1 reference

25 July 2017

volume

9

1 reference

25 July 2017

page(s)

4

1 reference

Creative Commons Attribution 2.0 Generic

25 July 2017

copyright license

start time

22 February 2008

1 reference

April 2022 Public Data File from Crossref

copyright status

copyrighted

1 reference

April 2022 Public Data File from Crossref

exact match

https://scigraph.springernature.com/pub.10.1186/1472-6939-9-4

0 references

cites work

Duty to disclose what? Querying the putative obligation to return research results to participants

1 reference

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Letting the gene out of the bottle: a comment on returning individual research results to participants

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2267198

Disclosing individual genetic results to research participants

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2267198

Medicare's requirement for research participation as a condition of coverage: is it ethical?

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2267198

Returning genetic research results to individuals: points-to-consider

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2267198

The return of research results to participants: pilot questionnaire of adolescents and parents of children with cancer

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2267198

Receiving a summary of the results of a trial: qualitative study of participants' views

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2267198

Disclosing individual results of clinical research: implications of respect for participants

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2267198

Providing research results to study participants: support versus practice of researchers presenting at the American Society of Hematology annual meeting

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2267198

Reactions to treatment debriefing among the participants of a placebo controlled trial

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2267198

Considerations and costs of disclosing study findings to research participants

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2267198

Oncology physician and nurse practices and attitudes regarding offering clinical trial results to study participants

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2267198

Issues of consent and feedback in a genetic epidemiological study of women with breast cancer

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2267198

Informing participants of allocation to placebo at trial closure: postal survey

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2267198

The therapeutic misconception: problems and solutions

21 June 2018

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https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2267198

Prevalence and penetrance of germline BRCA1 and BRCA2 mutations in a population series of 649 women with ovarian cancer

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2267198

Ontario familial colon cancer registry: methods and first-year response rates.

21 June 2018

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https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2267198

Ethical, social and economic issues in familial breast cancer: a compilation of views from the E.C. Biomed II Demonstration Project

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2267198

Cancer genetics services in Europe

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2267198

Reactions of participants to the results of a randomised controlled trial: exploratory study

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2267198

Genetic testing for susceptibility to adult-onset cancer. The process and content of informed consent

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2267198

The therapeutic misconception: informed consent in psychiatric research

21 June 2018

2 references

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2267198

21 June 2018

https://api.crossref.org/works/10.1186%2F1472-6939-9-4

Informing study participants of research results: an ethical imperative.

21 January 2018

1 reference

https://api.crossref.org/works/10.1186%2F1472-6939-9-4

Reporting genetic results in research studies: summary and recommendations of an NHLBI working group.

21 January 2018

1 reference

https://api.crossref.org/works/10.1186%2F1472-6939-9-4

Best laid plans for offering results go awry.

21 January 2018

1 reference

https://api.crossref.org/works/10.1186%2F1472-6939-9-4

Unblinding of trial participants to their treatment allocation: lessons from the Prospective Study of Pravastatin in the Elderly at Risk (PROSPER).

21 January 2018

1 reference

https://api.crossref.org/works/10.1186%2F1472-6939-9-4

The Cooperative Familial Registry for Breast Cancer Studies: design and first year recruitment rates in Ontario.

21 January 2018

1 reference

https://api.crossref.org/works/10.1186%2F1472-6939-9-4

Impact on survivors of retinoblastoma when informed of study results on risk of second cancers

21 January 2018

1 reference

https://api.crossref.org/works/10.1186%2F1472-6939-9-4

Misusing informed consent: a critique of limitations on research subjects' access to genetic research results.

21 January 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2267198

Informing subjects of epidemiologic study results. Children's Cancer Group.

31 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2267198

Implications of Disclosing Individual Results of Clinical Research

31 October 2018

1 reference

https://api.crossref.org/works/10.1186%2F1472-6939-9-4

Undesirable Implications of Disclosing Individual Genetic Results to Research Participants

21 January 2018

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https://api.crossref.org/works/10.1186%2F1472-6939-9-4

The emergence of an ethical duty to disclose genetic research results: international perspectives

21 January 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2267198

Research ethics and misguided moral intuition

31 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2267198

Informing clinical trial participants about study results

31 October 2018

1 reference

12 December 2020

Do patients participating in clinical trials want to know study results?

1 reference

12 December 2020

Statement of the American Society of Clinical Oncology: genetic testing for cancer susceptibility, Adopted on February 20, 1996

1 reference

12 December 2020

Architectures of genetic medicine: comparing genetic testing for breast cancer in the USA and the UK

1 reference

12 December 2020

Identifiers

DOI

10.1186/1472-6939-9-4

1 reference

Dimensions Publication ID

25 July 2017

0 references

1 reference

25 July 2017

1 reference