(Q33587069)

28 July 2017

title

Sharing medical data for health research: the early personal health record experience (English)

1 reference

28 July 2017

0 references

3

Kenneth D Mandl

1 reference

28 July 2017

1

Elissa R Weitzman

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28 July 2017

2

Liljana Kaci

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28 July 2017

publication date

25 May 2010

1 reference

Journal of Medical Internet Research

28 July 2017

published in

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28 July 2017

volume

12

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28 July 2017

issue

2

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28 July 2017

page(s)

e14

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Consent for use of personal information for health research: do people with potentially stigmatizing health conditions and the general public differ in their opinions?

28 July 2017

cites work

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956225

Acceptability of a personally controlled health record in a community-based setting: implications for policy and design

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956225

Data protection and the promotion of health research: if the laws are not the problem, then what is?

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956225

An ethical framework for sharing patient data without consent.

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956225

Clinical governance and research ethics as barriers to UK low-risk population-based health research?

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956225

Alternatives to project-specific consent for access to personal information for health research: insights from a public dialogue

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956225

How the Social Web Supports patient experimentation with a new therapy: The demand for patient-controlled and patient-centered informatics

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956225

Patient accessible electronic health records: exploring recommendations for successful implementation strategies

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956225

The genetic liability to disability retirement: a 30-year follow-up study of 24,000 Finnish twins

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956225

Integrated personal health records: transformative tools for consumer-centric care

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956225

Social uses of personal health information within PatientsLikeMe, an online patient community: what can happen when patients have access to one another's data

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956225

Assessing the heritability of anorexia nervosa symptoms using a marginal maximal likelihood approach

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956225

Access to medical records for research purposes: varying perceptions across research ethics boards

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956225

Indivo: a personally controlled health record for health information exchange and communication

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956225

Integration of the personally controlled electronic medical record into regional inter-regional data exchanges: a national demonstration

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956225

Sex differences in genetic and environmental determinants of pulse pressure.

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956225

National survey of British public's views on use of identifiable medical data by the National Cancer Registry

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956225

Patients' attitudes towards sharing their health information

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956225

A review and meta-analysis of the genetic epidemiology of anxiety disorders

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2956225

Holding personal information in a disease-specific register: the perspectives of people with multiple sclerosis and professionals on consent and access.

21 June 2018

1 reference

Crossref

Research sharing, ethics and public benefit.

21 January 2018

1 reference

Crossref

Research on medical records without informed consent.

21 January 2018

1 reference

Crossref

21 January 2018

1 reference

Tectonic shifts in the health information economy

21 January 2018

1 reference

12 December 2020

Patients treated across multiple sites of care: a case for personally controlled health records

1 reference

12 December 2020

Health-information altruists--a potentially critical resource

1 reference

12 December 2020

Will PHRs rule the waves or roll out with the tide?

1 reference

12 December 2020

Identifiers

DOI

10.2196/JMIR.1356

1 reference

28 July 2017

1 reference

28 July 2017

1 reference