(Q33689894)

28 July 2017

title

Glad you asked: participants' opinions of re-consent for dbGap data submission (English)

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28 July 2017

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Stephanie M Fullerton

2

Stephanie M Fullerton

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Wylie Burke

8

Wylie Burke

1 reference

28 July 2017

4

Susan Brown Trinidad

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Gail P. Jarvik

6

Gail P Jarvik

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Evette Ludman

1

Evette J Ludman

1 reference

28 July 2017

Leslie Spangler

3

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28 July 2017

Monica M Fujii

5

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28 July 2017

Eric B Larson

7

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28 July 2017

publication date

1 September 2010

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Journal of Empirical Research on Human Research Ethics

28 July 2017

published in

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28 July 2017

volume

5

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28 July 2017

issue

3

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28 July 2017

page(s)

9-16

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Genomic research and wide data sharing: views of prospective participants

28 July 2017

cites work

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3071850

Public opinion about the importance of privacy in biobank research

28 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3071850

The ethical use of existing samples for genome research

28 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3071850

Constraints on data sharing: experience from the nurses' health study

28 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3071850

From genetic privacy to open consent

28 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3071850

Research ethics recommendations for whole-genome research: consensus statement

28 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3071850

The NCBI dbGaP database of genotypes and phenotypes

28 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3071850

Alternatives to project-specific consent for access to personal information for health research: what is the opinion of the Canadian public?

28 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3071850

The uneasy ethical and legal underpinnings of large-scale genomic biobanks

28 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3071850

The debate over research on stored biological samples: what do sources think?

28 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3071850

Dementia and Alzheimer disease incidence: a prospective cohort study.

28 July 2018

1 reference

Crossref

https://api.crossref.org/works/10.1525%2FJER.2010.5.3.9

DNA data sharing: research participants' perspectives

21 January 2018

1 reference

Crossref

https://api.crossref.org/works/10.1525%2FJER.2010.5.3.9

Retrospective access to data: the ENGAGE consent experience

21 January 2018

1 reference

Crossref

https://api.crossref.org/works/10.1525%2FJER.2010.5.3.9

Ethical framework for previously collected biobank samples

21 January 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3071850

30 October 2018

Identifiers

DOI

10.1525/JER.2010.5.3.9

1 reference

28 July 2017

1 reference

28 July 2017

1 reference