(Q33830867)

29 July 2017

title

Do participants in genome sequencing studies of psychiatric disorders wish to be informed of their results? A survey study (English)

1 reference

29 July 2017

main subject

whole genome sequencing

1 reference

Francis J McMahon

4

0 references

author name string

Elise T Bui

series ordinal

1

1 reference

29 July 2017

Natalie K Anderson

series ordinal

2

1 reference

29 July 2017

Layla Kassem

series ordinal

3

1 reference

29 July 2017

language of work or name

English

0 references

publication date

1 July 2014

1 reference

29 July 2017

1 reference

29 July 2017

volume

9

1 reference

29 July 2017

issue

7

1 reference

29 July 2017

page(s)

e101111

1 reference

Creative Commons CC0 License

29 July 2017

copyright license

start time

1 July 2014

1 reference

April 2022 Public Data File from Crossref

copyright status

copyrighted, dedicated to the public domain by copyright holder

0 references

cites work

Genetics patients' perspectives on clinical genomic testing

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4077756

How could disclosing incidental information from whole-genome sequencing affect patient behavior?

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4077756

Returning genetic research results: study type matters

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4077756

ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4077756

Point-counterpoint. Patient autonomy and incidental findings in clinical genomics

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4077756

Point-counterpoint. Ethics and genomic incidental findings

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4077756

Autonomy and the patient's right 'not to know' in clinical whole-genomic sequencing

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4077756

Intentions to receive individual results from whole-genome sequencing among participants in the ClinSeq study

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4077756

To tell or not to tell? A systematic review of ethical reflections on incidental findings arising in genetics contexts.

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4077756

Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4077756

Public perspectives on returning genetics and genomics research results

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4077756

Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4077756

Offering individual genetic research results: context matters

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4077756

Tailoring the process of informed consent in genetic and genomic research

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4077756

Public expectations for return of results from large-cohort genetic research

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4077756

Research ethics recommendations for whole-genome research: consensus statement

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4077756

Research ethics and the challenge of whole-genome sequencing

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4077756

Primer on medical genomics. Part XIII: Ethical and regulatory issues

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4077756

Offering to return results to research participants: attitudes and needs of principal investigators in the Children's Oncology Group

4 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4077756

Reporting genetic results in research studies: summary and recommendations of an NHLBI working group.

4 July 2018

1 reference

https://api.crossref.org/works/10.1371%2FJOURNAL.PONE.0101111

Informed consent for whole genome sequencing: a qualitative analysis of participant expectations and perceptions of risks, benefits, and harms.

21 January 2018

1 reference

https://api.crossref.org/works/10.1371%2FJOURNAL.PONE.0101111

Potential consumers' attitudes toward psychiatric genetic research and testing and factors influencing their intentions to test.

21 January 2018

1 reference

https://api.crossref.org/works/10.1371%2FJOURNAL.PONE.0101111

Attitudes towards future testing for bipolar disorder susceptibility genes: a preliminary investigation.

21 January 2018

1 reference

https://api.crossref.org/works/10.1371%2FJOURNAL.PONE.0101111

Public Expectations for Return of Results—Time to Stop Being Paternalistic?

21 January 2018

1 reference

https://api.crossref.org/works/10.1371%2FJOURNAL.PONE.0101111

Communication of biobanks' research results: what do (potential) participants want?

21 January 2018

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/24983240

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Informing clinical trial participants about study results

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/24983240

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Identifiers

DOI

10.1371/JOURNAL.PONE.0101111

1 reference

29 July 2017

0 references

1 reference

29 July 2017

1 reference