(Q34175545)

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Social and behavioral research in genomic sequencing: approaches from the Clinical Sequencing Exploratory Research Consortium Outcomes and Measures Working Group

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scholarly article

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Europe PubMed Central

PubMed publication ID

31 July 2017

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Europe PubMed Central

Social and behavioral research in genomic sequencing: approaches from the Clinical Sequencing Exploratory Research Consortium Outcomes and Measures Working Group (English)

1 reference

Europe PubMed Central

PubMed publication ID

31 July 2017

Yolanda Martins

object named as

Yolanda Martins

2

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Kurt D Christensen

object named as

Kurt D Christensen

6

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object named as

Christine Rini

8

0 references

10

object named as

Amy L McGuire

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Europe PubMed Central

PubMed publication ID

31 July 2017

Barbara A Bernhardt

4

object named as

Barbara A Bernhardt

1 reference

Europe PubMed Central

PubMed publication ID

31 July 2017

David L Veenstra

9

object named as

David Veenstra

1 reference

Europe PubMed Central

PubMed publication ID

31 July 2017

Barbara B Biesecker

5

object named as

Barbara B Biesecker

1 reference

Europe PubMed Central

PubMed publication ID

31 July 2017

7

object named as

Steven Joffe

1 reference

Europe PubMed Central

PubMed publication ID

31 July 2017

author name string

Stacy W Gray

1

1 reference

Europe PubMed Central

PubMed publication ID

31 July 2017

Lindsay Z Feuerman

3

1 reference

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31 July 2017

CSER Consortium Outcomes and Measures Working Group

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Europe PubMed Central

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31 July 2017

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publication date

13 March 2014

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Europe PubMed Central

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31 July 2017

Genetics in Medicine

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Europe PubMed Central

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31 July 2017

16

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Europe PubMed Central

PubMed publication ID

31 July 2017

10

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Europe PubMed Central

PubMed publication ID

31 July 2017

727-735

1 reference

Europe PubMed Central

PubMed publication ID

31 July 2017

https://scigraph.springernature.com/pub.10.1038/gim.2014.26

0 references

ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing

1 reference

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Biomedical risk assessment as an aid for smoking cessation

1 reference

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Conceptual, methodological, and ethical problems in communicating uncertainty in clinical evidence.

1 reference

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"Grasping the grey": patient understanding and interpretation of an intermediate allele predictive test result for Huntington disease.

1 reference

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5 July 2018

Intentions to receive individual results from whole-genome sequencing among participants in the ClinSeq study

1 reference

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Effect of communicating DNA based risk assessments for Crohn's disease on smoking cessation: randomised controlled trial

1 reference

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5 July 2018

Effects of informed consent for individual genome sequencing on relevant knowledge

1 reference

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5 July 2018

Patients' understanding of and responses to multiplex genetic susceptibility test results

1 reference

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Opportunities and challenges for the integration of massively parallel genomic sequencing into clinical practice: lessons from the ClinSeq project

1 reference

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Cancer genetic risk assessment for individuals at risk of familial breast cancer

1 reference

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"What does it mean?": uncertainties in understanding results of chromosomal microarray testing

1 reference

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Varieties of uncertainty in health care: a conceptual taxonomy

1 reference

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Decision aids for people facing health treatment or screening decisions

1 reference

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5 July 2018

Development and validation of an instrument to measure the impact of genetic testing on self-concept in Lynch syndrome

1 reference

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5 July 2018

Measurement of shared decision making - a review of instruments

1 reference

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5 July 2018

Effect of direct-to-consumer genomewide profiling to assess disease risk

1 reference

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5 July 2018

Effects of communicating DNA-based disease risk estimates on risk-reducing behaviours

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4163120

5 July 2018

Systematic review of psychosocial benefits and harms of genetic testing

1 reference

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5 July 2018

"I know what you told me, but this is what I think:" perceived risk of Alzheimer disease among individuals who accurately recall their genetics-based risk estimate

1 reference

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The role of behavioral science theory in development and implementation of public health interventions

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5 July 2018

Psychometric evaluation of the Health Information Orientation Scale: a brief measure for assessing health information engagement and apprehension.

1 reference

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5 July 2018

What can interest tell us about uptake of genetic testing? Intention and behavior amongst smokers related to patients with lung cancer

1 reference

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5 July 2018

Valuing the benefit of diagnostic testing for genetic causes of idiopathic developmental disability: willingness to pay from families of affected children

1 reference

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5 July 2018

A new scale measuring psychologic impact of genetic susceptibility testing for Alzheimer disease

1 reference

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5 July 2018

Economic methods for valuing the outcomes of genetic testing: beyond cost-effectiveness analysis

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4163120

5 July 2018

Psychosocial issues in genetic testing for familial adenomatous polyposis: a review of the literature.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4163120

5 July 2018

A systematic review of perceived risks, psychological and behavioral impacts of genetic testing

1 reference

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The Rapid Assessment of Physical Activity (RAPA) among older adults.

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5 July 2018

Development and first validation of the shared decision-making questionnaire (SDM-Q).

1 reference

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5 July 2018

A brief measure for assessing generalized anxiety disorder: the GAD-7.

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5 July 2018

Design and psychometric evaluation of the Psychological Adaptation to Genetic Information Scale

1 reference

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Collection of health-economic data alongside clinical trials: is there a future for piggyback evaluations?

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The PHQ-9: validity of a brief depression severity measure

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Predictive genetic testing in children and adults: a study of emotional impact

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5 July 2018

Quality of informed consent: a new measure of understanding among research subjects

1 reference

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5 July 2018

Psychological consequences of predictive genetic testing: a systematic review

1 reference

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Anticipated versus actual emotional reactions to disclosure of results of genetic tests for cancer susceptibility: findings from p53 and BRCA1 testing programs

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The impact of population based screening for carriers of cystic fibrosis

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Validation of a decisional conflict scale

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The hospital anxiety and depression scale

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Changing AIDS-risk behavior

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Genetic testing for melanoma risk: a prospective cohort study of uptake and outcomes among Australian families

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Psychological studies in Huntington's disease: making up the balance

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https://api.crossref.org/works/10.1038%2FGIM.2014.26

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https://api.crossref.org/works/10.1038%2FGIM.2014.26

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Critical periods of suicide risk in Huntington's disease

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2014.26

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Genetic susceptibility testing in smoking-cessation treatment: one-year outcomes of a randomized trial.

1 reference

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21 January 2018

The Health Information National Trends Survey (HINTS): development, design, and dissemination.

1 reference

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An unwelcome side effect of direct-to-consumer personal genome testing: raiding the medical commons

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Informed choice: understanding knowledge in the context of screening uptake

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https://api.crossref.org/works/10.1038%2FGIM.2014.26

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Assessment of Psychosocial Outcomes in Genetic Counseling Research: An Overview of Available Measurement Scales

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2014.26

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Validation of a decision regret scale.

1 reference

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Satisfaction with genetic counseling for BRCA1 and BRCA2 mutations among African American women

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2014.26

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All in the family: evaluation of the process and content of sisters' communication about BRCA1 and BRCA2 genetic test results.

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Genetic testing for hereditary melanoma and pancreatic cancer: a longitudinal study of psychological outcome.

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The Control Preferences Scale.

1 reference

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https://pubmed.ncbi.nlm.nih.gov/24625446

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1 reference

https://pubmed.ncbi.nlm.nih.gov/24625446

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What does "a gene for heart disease" mean? A focus group study of public understandings of genetic risk factors

1 reference

https://pubmed.ncbi.nlm.nih.gov/24625446

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based on heuristic

inferred from PubMed ID database lookup

Genetic testing for cancer susceptibility: the promise and the pitfalls

1 reference

https://pubmed.ncbi.nlm.nih.gov/24625446

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based on heuristic

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The BRCA Self-Concept Scale: a new instrument to measure self-concept in BRCA1/2 mutation carriers

1 reference

https://pubmed.ncbi.nlm.nih.gov/24625446

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based on heuristic

inferred from PubMed ID database lookup

Identifiers

10.1038/GIM.2014.26

1 reference

Europe PubMed Central

PubMed publication ID

31 July 2017

PMC publication ID

1 reference

Europe PubMed Central

PubMed publication ID

31 July 2017

PubMed publication ID

1 reference

Europe PubMed Central

PubMed publication ID

31 July 2017

ResearchGate publication ID

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