(Q34326961)

1 August 2017

0 references

Biological sample collections from minors for genetic research: a systematic review of guidelines and position papers (English)

1 reference

1 August 2017

1 reference

Jean-Jacques Cassiman

series ordinal

3

object named as

Jean-Jacques Cassiman

0 references

Herman Nys

series ordinal

2

object named as

Herman Nys

1 reference

1 August 2017

4

Kris Dierickx

1 reference

1 August 2017

Kristien Hens

1

1 reference

1 August 2017

publication date

1 August 2009

1 reference

European Journal of Human Genetics

1 August 2017

published in

1 reference

1 August 2017

volume

17

1 reference

1 August 2017

issue

8

1 reference

1 August 2017

page(s)

979-990

1 reference

The informed consent aftermath of the genetic revolution. An Italian example of implementation

1 August 2017

cites work

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2986563

[Ethical problems presented by collections of biological material and associated data: "biobanks", "bioethics"].

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2986563

Should donors be allowed to give broad consent to future biobank research?

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2986563

UK Biobank: from concept to reality

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2986563

Potential harms, anonymization, and the right to withdraw consent to biobank research

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2986563

Biobanking: international norms

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2986563

The Avon Longitudinal Study of Parents and Children (ALSPAC): a resource for genetic epidemiology

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2986563

International ethical guidelines for biomedical research involving human subjects.

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2986563

Data storage and DNA banking for biomedical research: informed consent, confidentiality, quality issues, ownership, return of benefits. A professional perspective

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2986563

Human genetic research, DNA banking and consent: a question of 'form'?

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2986563

Privacy rules for DNA databanks. Protecting coded 'future diaries'.

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2986563

Population-based retrieval of newborn dried blood spots for researching paediatric cancer susceptibility genes.

6 July 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2009.9

Integration of DNA sample collection into a multi-site birth defects case-control study.

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2009.9

Solidarity and equity: new ethical frameworks for genetic databases

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2009.9

Informed consent and biobanks.

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2009.9

DNA Testing, Banking, and Genetic Privacy

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2009.9

Human genetic banking: altruism, benefit and consent

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2009.9

Ethical and policy issues in pediatric genetics.

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2009.9

Crossing species boundaries.

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2009.9

Children's consent to research participation: social context and personal experience invalidate fixed cutoff rules

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2009.9

Minors and informed consent: a comparative approach

21 January 2018

2 references

https://api.crossref.org/works/10.1038%2FEJHG.2009.9

21 January 2018

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2986563

Guidelines for the retention, storage, and use of residual dried blood spot samples after newborn screening analysis: statement of the Council of Regional Networks for Genetic Services.

27 October 2018

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2009.9

Declaration of Helsinki. Ethical principles for medical research involving human subjects.

21 January 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2986563

Proxy consent and a national DNA databank: an unethical and discriminatory combination

27 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2986563

Should children decide whether they are enrolled in nonbeneficial research?

27 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2986563

Ethical implications of including children in a large biobank for genetic-epidemiologic research: a qualitative study of public opinion

27 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2986563

Data storage and DNA banking for biomedical research: technical, social and ethical issues

27 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2986563

HUGO Ethics Committee Statement on DNA sampling: control and access

27 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2986563

Body of research--ownership and use of human tissue

27 October 2018

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/19223929

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

'Biobanks' "engagements": engendering trust or engineering consent?'.

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2009.9

inferred from DOI database lookup

7 January 2021

based on heuristic

Informed Consent and the Bio-banking of Material from Children.

1 reference

https://api.crossref.org/works/10.1038%2FEJHG.2009.9

inferred from DOI database lookup

7 January 2021

based on heuristic

Identifiers

DOI

10.1038/EJHG.2009.9

1 reference

1 August 2017

1 reference

1 August 2017

1 reference