(Q34436672)

2 August 2017

title

Approaches to informed consent for hypothesis-testing and hypothesis-generating clinical genomics research (English)

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2 August 2017

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hypothesis generation

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4

Leslie G Biesecker

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2 August 2017

Flavia M Facio

1

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2 August 2017

Julie C Sapp

series ordinal

2

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2 August 2017

Amy Linn

series ordinal

3

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2 August 2017

publication date

10 October 2012

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2 August 2017

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2 August 2017

volume

5

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2 August 2017

page(s)

45

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Intentions to receive individual results from whole-genome sequencing among participants in the ClinSeq study

2 August 2017

cites work

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3495642

Motivators for participation in a whole-genome sequencing study: implications for translational genomics research

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3495642

Disclosure of individual genetic data to research participants: the debate reconsidered

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3495642

Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3495642

Informed consent in genomics and genetic research

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3495642

Personal genome research : what should the participant be told?

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3495642

Tailoring the process of informed consent in genetic and genomic research

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3495642

6 July 2018

Whole genome sequencing

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3495642

The ClinSeq Project: piloting large-scale genome sequencing for research in genomic medicine

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3495642

Changing perspectives in biobank research: from individual rights to concerns about public health regarding the return of results

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3495642

Informed consent in the genomics era

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3495642

Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3495642

Managing incidental findings in human subjects research: analysis and recommendations

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3495642

Disclosing individual results of clinical research: implications of respect for participants

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3495642

Genetics. Genomic research and human subject privacy

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3495642

The mutational load due to detrimental genes in man

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3495642

The detection and estimation of linkage between the genes for elliptocytosis and the Rh blood type.

6 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3495642

Reporting genetic results in research studies: summary and recommendations of an NHLBI working group.

6 July 2018

1 reference

https://api.crossref.org/works/10.1186%2F1755-8794-5-45

Broadening research consent in the era of genome-informed medicine

21 January 2018

1 reference

https://api.crossref.org/works/10.1186%2F1755-8794-5-45

Informing study participants of research results: an ethical imperative.

21 January 2018

1 reference

https://api.crossref.org/works/10.1186%2F1755-8794-5-45

Multidimensional results reporting to participants in genomic studies: getting it right.

21 January 2018

1 reference

https://api.crossref.org/works/10.1186%2F1755-8794-5-45

Medicine. Reestablishing the researcher-patient compact.

21 January 2018

1 reference

https://api.crossref.org/works/10.1186%2F1755-8794-5-45

New challenges for informed consent through whole genome array testing

21 January 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3495642

27 October 2018

Identifiers

DOI

10.1186/1755-8794-5-45

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Dimensions Publication ID

2 August 2017

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2 August 2017

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