(Q34588405)

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Implementation of a population-based epidemiological rare disease registry: study protocol of the amyotrophic lateral sclerosis (ALS)--registry Swabia

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scholarly article

1 reference

Europe PubMed Central

PubMed publication ID

3 August 2017

Implementation of a population-based epidemiological rare disease registry: study protocol of the amyotrophic lateral sclerosis (ALS)--registry Swabia (English)

1 reference

Europe PubMed Central

PubMed publication ID

3 August 2017

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amyotrophic lateral sclerosis

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1 reference

based on heuristic

1 reference

based on heuristic

Dietrich Rothenbacher

5

object named as

Dietrich Rothenbacher

1 reference

Europe PubMed Central

PubMed publication ID

3 August 2017

Albert C. Ludolph

4

object named as

Albert C Ludolph

1 reference

Europe PubMed Central

PubMed publication ID

3 August 2017

author name string

Gabriele Nagel

1

1 reference

Europe PubMed Central

PubMed publication ID

3 August 2017

Hatice Unal

2

1 reference

Europe PubMed Central

PubMed publication ID

3 August 2017

Angela Rosenbohm

3

1 reference

Europe PubMed Central

PubMed publication ID

3 August 2017

ALS Registry Study Group

6

1 reference

Europe PubMed Central

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3 August 2017

publication date

17 February 2013

1 reference

Europe PubMed Central

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3 August 2017

1 reference

Europe PubMed Central

PubMed publication ID

3 August 2017

13

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Europe PubMed Central

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3 August 2017

22

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Europe PubMed Central

PubMed publication ID

3 August 2017

https://scigraph.springernature.com/pub.10.1186/1471-2377-13-22

0 references

Creating a global rare disease patient registry linked to a rare diseases biorepository database: Rare Disease-HUB (RD-HUB)

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3582473

7 July 2018

Translation of rare disease research into orphan drug development: disease matters

1 reference

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7 July 2018

Incidence of amyotrophic lateral sclerosis in Europe

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3582473

7 July 2018

Depression and quality of life in patients with amyotrophic lateral sclerosis

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3582473

7 July 2018

Why rare diseases are an important medical and social issue

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3582473

7 July 2018

The epidemiology of ALS and the role of population-based registries

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3582473

7 July 2018

Defining and improving data quality in medical registries: a literature review, case study, and generic framework

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3582473

7 July 2018

Versailles minimal dataset for diagnosis of ALS: a distillate of the 2nd Consensus Conference on accelerating the diagnosis of ALS. Versailles 2nd Consensus Conference participants

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3582473

7 July 2018

El Escorial revisited: revised criteria for the diagnosis of amyotrophic lateral sclerosis

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3582473

7 July 2018

The FAB: a Frontal Assessment Battery at bedside.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3582473

7 July 2018

Registers and registries: a review

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3582473

7 July 2018

Categorizing the world of registries

1 reference

https://api.crossref.org/works/10.1186%2F1471-2377-13-22

21 January 2018

Amyotrophic lateral sclerosis

1 reference

https://api.crossref.org/works/10.1186%2F1471-2377-13-22

21 January 2018

Smoking and risk for amyotrophic lateral sclerosis: analysis of the EPIC cohort

1 reference

https://api.crossref.org/works/10.1186%2F1471-2377-13-22

21 January 2018

How to get serious answers to the serious question: "How have you been?": subjective quality of life (QOL) as an individual experiential emergent construct.

1 reference

https://api.crossref.org/works/10.1186%2F1471-2377-13-22

21 January 2018

El Escorial World Federation of Neurology criteria for the diagnosis of amyotrophic lateral sclerosis. Subcommittee on Motor Neuron Diseases/Amyotrophic Lateral Sclerosis of the World Federation of Neurology Research Group on Neuromuscular Diseases a

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3582473

27 October 2018

[The version 2.0 of the SF-36 Health Survey: results of a population-representative study]

1 reference

https://pubmed.ncbi.nlm.nih.gov/23414001

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

[Types of medical registries - definitions, methodological aspects and quality of the scientific work with registries]

1 reference

https://pubmed.ncbi.nlm.nih.gov/23414001

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Normative data for the Montreal Cognitive Assessment (MoCA) in a population-based sample

1 reference

https://pubmed.ncbi.nlm.nih.gov/23414001

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Motor neuron disease: urgently needed-biomarkers for amyotrophic lateral sclerosis

1 reference

https://pubmed.ncbi.nlm.nih.gov/23414001

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

The case for a global rare-diseases registry

1 reference

https://pubmed.ncbi.nlm.nih.gov/23414001

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

[Amyotrophic lateral sclerosis]

1 reference

https://pubmed.ncbi.nlm.nih.gov/23414001

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Identifiers

10.1186/1471-2377-13-22

1 reference

Europe PubMed Central

PubMed publication ID

3 August 2017

Dimensions Publication ID

0 references

PMC publication ID

1 reference

Europe PubMed Central

PubMed publication ID

3 August 2017

PubMed publication ID

1 reference

Europe PubMed Central

PubMed publication ID

3 August 2017

ResearchGate publication ID

0 references

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