(Q35546287)

8 August 2017

title

Parental attitudes toward ethical and social issues surrounding the expansion of newborn screening using new technologies (English)

1 reference

https://api.crossref.org/works/10.1159/000314644

8 August 2017

Parental Attitudes toward Ethical and Social Issues Surrounding the Expansion of Newborn Screening Using New Technologies (English)

1 reference

17 June 2024

0 references

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?resulttype=core&format=json&query=SRC%3AMED%20AND%20EXT_ID%3A20689248

17 June 2024

ethics

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?resulttype=core&format=json&query=SRC%3AMED%20AND%20EXT_ID%3A20689248

17 June 2024

author name string

L. E. Hasegawa

1

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?resulttype=core&format=json&query=SRC%3AMED%20AND%20EXT_ID%3A20689248

17 June 2024

K. A. Fergus

2

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?resulttype=core&format=json&query=SRC%3AMED%20AND%20EXT_ID%3A20689248

17 June 2024

N. Ojeda

3

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?resulttype=core&format=json&query=SRC%3AMED%20AND%20EXT_ID%3A20689248

17 June 2024

S. M. Au

4

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?resulttype=core&format=json&query=SRC%3AMED%20AND%20EXT_ID%3A20689248

17 June 2024

language of work or name

English

1 reference

National Center for Biotechnology Information

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/esummary.fcgi?db=pubmed&retmode=json&id=20689248

17 June 2024

publication date

30 July 2010

1 reference

full work available at URL

8 August 2017

https://www.karger.com/Article/Pdf/314644

file format

Portable Document Format

online access status

open access

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?resulttype=core&format=json&query=SRC%3AMED%20AND%20EXT_ID%3A20689248

https://www.ncbi.nlm.nih.gov/pmc/articles/pmid/20689248/pdf/?tool=EBI

17 June 2024

file format

Portable Document Format

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?resulttype=core&format=json&query=SRC%3AMED%20AND%20EXT_ID%3A20689248

https://www.ncbi.nlm.nih.gov/pmc/articles/pmid/20689248/?tool=EBI

17 June 2024

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?resulttype=core&format=json&query=SRC%3AMED%20AND%20EXT_ID%3A20689248

https://europepmc.org/articles/PMC3214890

17 June 2024

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?resulttype=core&format=json&query=SRC%3AMED%20AND%20EXT_ID%3A20689248

https://europepmc.org/articles/PMC3214890?pdf=render

17 June 2024

file format

Portable Document Format

online access status

open access

content deliverer

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?resulttype=core&format=json&query=SRC%3AMED%20AND%20EXT_ID%3A20689248

https://doi.org/10.1159/000314644

17 June 2024

online access status

open access

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?resulttype=core&format=json&query=SRC%3AMED%20AND%20EXT_ID%3A20689248

https://www.karger.com/Article/Pdf/314644

17 June 2024

1 reference

https://api.crossref.org/works/10.1159/000314644

17 June 2024

published in

Public Health Genomics

1 reference

8 August 2017

volume

14

1 reference

8 August 2017

issue

4-5

1 reference

8 August 2017

page(s)

298-306

1 reference

The blurred distinction between treatable and untreatable conditions in newborn screening

8 August 2017

cites work

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3214890

Questioning the Need for Informed Consent: A Case Study of California's Experience with a Pilot Newborn Screening Research Project

27 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3214890

Information and informed consent for neonatal screening: opinions and preferences of parents

27 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3214890

The current revolution in newborn screening: new technology, old controversies

27 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3214890

Genetic testing of children for adult-onset diseases: is testing in the child's best interests?

27 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3214890

Status of newborn screening programs in the United States

27 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3214890

American Academy of Pediatrics Newborn Screening Task Force recommendations: how far have we come?

27 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3214890

Newborn screening technology: proceed with caution

27 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3214890

Informed choice and public health screening for children: the case of blood spot screening

27 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3214890

Neonatal screening by DNA microarray: spots and chips

27 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3214890

Clinical effectiveness and cost-effectiveness of neonatal screening for inborn errors of metabolism using tandem mass spectrometry: a systematic review.

27 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3214890

Patient and parent understanding of informed consent in orthodontics

27 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3214890

Examination of the communication practices between state newborn screening programs and the medical home

27 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3214890

Newborn screening: the role of the obstetrician

27 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3214890

Supports and obstacles to cancer survival for Hawaii's native people

27 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3214890

Information about screening - is it to achieve high uptake or to ensure informed choice?

27 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3214890

Neonatal screening for cystic fibrosis: present and future

27 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3214890

Genetic testing for children and adolescents. Who decides?

27 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3214890

The genetic testing of children. Working Party of the Clinical Genetics Society (UK)

27 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3214890

Ethical issues with genetic testing in pediatrics

27 July 2018

1 reference

Genetic testing in asymptomatic minors: Recommendations of the European Society of Human Genetics

21 January 2018

1 reference

Parental attitudes and beliefs regarding the genetic testing of children

21 January 2018

1 reference

Parental attitudes regarding newborn screening of PKU and DMD.

21 January 2018

1 reference

The newborn screening educational gap: what prenatal care providers do compared with what is expected

21 January 2018

1 reference

Newborn screening for developmental disabilities: reframing presumptive benefit.

21 January 2018

1 reference

An international survey of predictive genetic testing in children for adult onset conditions

21 January 2018

1 reference

Screening for conditions that do not meet the Wilson and Jungner criteria: the case of Duchenne muscular dystrophy.

21 January 2018

1 reference

Why test children for adult-onset genetic diseases?

21 January 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3214890

A vision of the future of newborn screening

26 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3214890

Information and consent for newborn screening: practices and attitudes of service providers

26 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3214890

A survey to evaluate parental consent as public policy for neonatal screening

24 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3214890

Ethics, evidence, and cost in newborn screening

24 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3214890

Points to consider: ethical, legal, and psychosocial implications of genetic testing in children and adolescents. American Society of Human Genetics Board of Directors, American College of Medical Genetics Board of Directors

7 December 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3214890

Parental Opinions about the Expansion of the Neonatal Screening Programme

7 December 2018

1 reference

12 December 2020

Predictive genetic testing of children for adult-onset diseases and psychological harm

1 reference

12 December 2020

Serving the family from birth to the medical home. Newborn screening: a blueprint for the future - a call for a national agenda on state newborn screening programs

1 reference

12 December 2020

ACOG committee opinion number 287, October 2003: newborn screening

1 reference

12 December 2020

Recommendations for effective newborn screening communication: results of focus groups with parents, providers, and experts

1 reference

12 December 2020

Expanding newborn screening: process, policy, and priorities

1 reference

12 December 2020

Newborn screening: should explicit parental consent be required?

1 reference

12 December 2020

Newborn screening--should it be part of prenatal care?

1 reference

12 December 2020

The obstetrician's role in newborn metabolic screening: a physician survey

1 reference

12 December 2020

Identifiers

DOI

10.1159/000314644

1 reference

8 August 2017

1 reference

8 August 2017

1 reference