(Q40179206)

18 September 2017

title

Questioning the Need for Informed Consent: A Case Study of California's Experience with a Pilot Newborn Screening Research Project (English)

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18 September 2017

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2

George Cunningham

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18 September 2017

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Lisa Feuchtbaum

1

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18 September 2017

Stan Sciortino

series ordinal

3

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18 September 2017

publication date

1 September 2007

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Journal of Empirical Research on Human Research Ethics

18 September 2017

published in

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18 September 2017

volume

2

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18 September 2017

issue

3

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18 September 2017

page(s)

3-14

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Ethical issues with genetic testing in pediatrics

18 September 2017

cites work

1 reference

https://api.crossref.org/works/10.1525%2FJER.2007.2.3.3

Newborn screening: toward a uniform screening panel and system

21 January 2018

1 reference

https://api.crossref.org/works/10.1525%2FJER.2007.2.3.3

Newborn screening for developmental disabilities: reframing presumptive benefit.

21 January 2018

1 reference

https://api.crossref.org/works/10.1525%2FJER.2007.2.3.3

Research for newborn screening: developing a national framework.

21 January 2018

1 reference

https://api.crossref.org/works/10.1525%2FJER.2007.2.3.3

Universal newborn screening and adverse medical outcomes: a historical note

21 January 2018

1 reference

https://api.crossref.org/works/10.1525%2FJER.2007.2.3.3

Economic evaluation of tandem mass spectrometry screening in California.

21 January 2018

1 reference

https://api.crossref.org/works/10.1525%2FJER.2007.2.3.3

Informed choice and public health screening for children: the case of blood spot screening

21 January 2018

1 reference

https://api.crossref.org/works/10.1525%2FJER.2007.2.3.3

A review of the psychosocial effects of false-positive results on parents and current communication practices in newborn screening

21 January 2018

1 reference

https://api.crossref.org/works/10.1525%2FJER.2007.2.3.3

Public participation in medical policy-making and the status of consumer autonomy: the example of newborn-screening programs in the United States.

21 January 2018

1 reference

https://api.crossref.org/works/10.1525%2FJER.2007.2.3.3

Newborn screening: new developments, new dilemmas.

21 January 2018

1 reference

https://api.crossref.org/works/10.1525%2FJER.2007.2.3.3

The magnitude and challenge of false-positive newborn screening test results

21 January 2018

1 reference

https://api.crossref.org/works/10.1525%2FJER.2007.2.3.3

Very high compliance in an expanded MS-MS-based newborn screening program despite written parental consent.

21 January 2018

1 reference

https://api.crossref.org/works/10.1525%2FJER.2007.2.3.3

False-positive cancer screens and health-related quality of life

21 January 2018

1 reference

https://api.crossref.org/works/10.1525%2FJER.2007.2.3.3

Newborn screening for Duchenne muscular dystrophy: a psychosocial study

21 January 2018

1 reference

https://api.crossref.org/works/10.1525%2FJER.2007.2.3.3

Pilot programs in newborn screening.

21 January 2018

1 reference

https://api.crossref.org/works/10.1525%2FJER.2007.2.3.3

International perspectives on newborn screening.

21 January 2018

1 reference

https://api.crossref.org/works/10.1525%2FJER.2007.2.3.3

Screening for conditions that do not meet the Wilson and Jungner criteria: the case of Duchenne muscular dystrophy.

21 January 2018

1 reference

https://api.crossref.org/works/10.1525%2FJER.2007.2.3.3

U.S. newborn screening policy dilemmas for the twenty-first century

21 January 2018

1 reference

https://api.crossref.org/works/10.1525%2FJER.2007.2.3.3

Current status of newborn screening: decision-making about the conditions to include in screening programs

21 January 2018

1 reference

https://api.crossref.org/works/10.1525%2FJER.2007.2.3.3

21 January 2018

Identifiers

DOI

10.1525/JER.2007.2.3.3

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18 September 2017

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