(Q36197107)

12 August 2017

International Policies on Sharing Genomic Research Results with Relatives: Approaches to Balancing Privacy with Access (English)

1 reference

12 August 2017

Rebecca Branum

1

1 reference

PMC publication ID

4617202

12 August 2017

Susan M Wolf

series ordinal

2

1 reference

12 August 2017

1 September 2015

1 reference

Journal of Law, Medicine, and Ethics

12 August 2017

1 reference

12 August 2017

43

1 reference

12 August 2017

3

1 reference

12 August 2017

576-593

1 reference

Anticipate and communicate: Ethical management of incidental and secondary findings in the clinical, research, and direct-to-consumer contexts (December 2013 report of the Presidential Commission for the Study of Bioethical Issues).

12 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617202

What does the duty to warn require?

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617202

Return of whole-genome sequencing results in paediatric research: a statement of the P3G international paediatrics platform

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617202

Genomic inheritances: disclosing individual research results from whole-exome sequencing to deceased participants' relatives

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617202

Population studies: return of research results and incidental findings Policy Statement

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617202

Managing incidental findings and research results in genomic research involving biobanks and archived data sets

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617202

Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617202

The law of incidental findings in human subjects research: establishing researchers' duties

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617202

Managing incidental findings in human subjects research: analysis and recommendations

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617202

CLIA program and HIPAA privacy rule; patients' access to test reports. Final rule.

1 October 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617202

22 September 2018

HIPAA Privacy Rule 2.0.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617202

International normative perspectives on the return of individual research results and incidental findings in genomic biobanks

22 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617202

The return of results of deceased research participants.

22 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617202

Return of research results: general principles and international perspectives

22 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617202

Return of results: towards a lexicon?

22 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617202

What should the law say about disclosure of genetic information to relatives?

22 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617202

ASHG report. Statement on informed consent for genetic research. The American Society of Human Genetics

21 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617202

Risks to Relatives in Genomic Research: A Duty to Warn?

21 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=4617202

Modifications to the HIPAA Privacy, Security, Enforcement, and Breach Notification rules under the Health Information Technology for Economic and Clinical Health Act and the Genetic Information Nondiscrimination Act; other modifications to the HIPAA

5 December 2018

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/26479568

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

The "duty to warn" a patient's family members about hereditary disease risks

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/26479568

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

ASHG statement. Professional disclosure of familial genetic information. The American Society of Human Genetics Social Issues Subcommittee on Familial Disclosure

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/26479568

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Identifiers

DOI

10.1111/JLME.12301

1 reference

12 August 2017

1 reference

PMC publication ID

4617202

12 August 2017

PubMed publication ID

26479568

1 reference

PMC publication ID

4617202