(Q34205284)

31 July 2017

title

Managing incidental findings and research results in genomic research involving biobanks and archived data sets (English)

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31 July 2017

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13

Bartha M Knoppers

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31 July 2017

14

Barbara A Koenig

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Brian Van Ness

3

object named as

Brian Van Ness

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31 July 2017

Pilar Ossorio

19

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Lisa S Parker

object named as

Lisa S Parker

20

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Robert C. Green

9

object named as

Robert C Green

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Isaac S Kohane

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6

Laura M Beskow

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25

Benjamin S Wilfond

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Sharon F Terry

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31 July 2017

7

Mildred K Cho

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11

Judy Illes

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21

Gloria M Petersen

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26

Wendy A Wolf

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1

Susan M Wolf

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31 July 2017

4

Frances Lawrenz

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31 July 2017

12

Moira Keane

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31 July 2017

16

Bonnie Leroy

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31 July 2017

Brittney N Crock

2

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31 July 2017

Jeffrey P Kahn

5

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31 July 2017

Michael F Christman

8

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31 July 2017

Ralph Hall

10

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Karen J Maschke

17

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William McGeveran

18

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Henry S Richardson

22

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31 July 2017

Joan A Scott

23

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31 July 2017

language of work or name

English

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publication date

1 April 2012

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31 July 2017

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31 July 2017

volume

14

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31 July 2017

issue

4

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31 July 2017

page(s)

361-384

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https://scigraph.springernature.com/pub.10.1038/gim.2012.23

31 July 2017

exact match

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cites work

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The legal risks of returning results of genomics research

5 July 2018

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Disclosing pathogenic genetic variants to research participants: quantifying an emerging ethical responsibility

5 July 2018

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Biobanks and the return of research results: out with the old and in with the new?

5 July 2018

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5 July 2018

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Population biobanks and returning individual research results: mission impossible or new directions?

5 July 2018

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5 July 2018

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Disclosure of individual genetic data to research participants: the debate reconsidered

5 July 2018

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5 July 2018

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Returning individual research results: development of a cancer genetics education and risk communication protocol

5 July 2018

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Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium

5 July 2018

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Offering individual genetic research results: context matters

5 July 2018

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Alzheimer's Disease Neuroimaging Initiative biomarkers as quantitative phenotypes: Genetics core aims, progress, and plans

5 July 2018

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Principles of human subjects protections applied in an opt-out, de-identified biobank

5 July 2018

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The disclosure of diagnosis codes can breach research participants' privacy

5 July 2018

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Custodianship as an ethical framework for biospecimen-based research

5 July 2018

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Prospective biorepository participants' perspectives on access to research results

5 July 2018

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The ClinSeq Project: piloting large-scale genome sequencing for research in genomic medicine

5 July 2018

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Disclosure of research results from cancer genomic studies: state of the science

5 July 2018

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Public expectations for return of results from large-cohort genetic research

5 July 2018

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Genomic variation in myeloma: design, content, and initial application of the Bank On A Cure SNP Panel to detect associations with progression-free survival

5 July 2018

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Informed consent for biorepositories: assessing prospective participants' understanding and opinions

5 July 2018

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The law of incidental findings in human subjects research: establishing researchers' duties

5 July 2018

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https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3597341

Incidental findings in genetics research using archived DNA

5 July 2018

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https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3597341

Understanding incidental findings in the context of genetics and genomics

5 July 2018

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https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3597341

Incidental findings in human subjects research: what do investigators owe research participants?

5 July 2018

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https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3597341

Incidental findings and ancillary-care obligations

5 July 2018

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https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3597341

Managing incidental findings in human subjects research: analysis and recommendations

5 July 2018

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5 July 2018

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Partnership in U.K. Biobank: a third way for genomic property?

5 July 2018

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5 July 2018

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Establishing a neurological-psychiatric biobank: banking, informatics, ethics

5 July 2018

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The incidentalome: a threat to genomic medicine

5 July 2018

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5 July 2018

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5 July 2018

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5 July 2018

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5 July 2018

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Human biological materials in research: ethical issues and the role of stewardship in minimizing research risks

5 July 2018

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Informed consent for population-based research involving genetics

5 July 2018

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https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3597341

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5 July 2018

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https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3597341

An empirical examination of the management of return of individual research results and incidental findings in genomic biobanks

5 July 2018

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https://api.crossref.org/works/10.1038%2FGIM.2012.23

Medicine. Reestablishing the researcher-patient compact.

21 January 2018

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https://api.crossref.org/works/10.1038%2FGIM.2012.23

Informing study participants of research results: an ethical imperative.

21 January 2018

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https://api.crossref.org/works/10.1038%2FGIM.2012.23

Is it ethical to deny genetic research participants individualised results?

21 January 2018

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https://api.crossref.org/works/10.1038%2FGIM.2012.23

Solidarity and equity: new ethical frameworks for genetic databases

21 January 2018

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https://api.crossref.org/works/10.1038%2FGIM.2012.23

LINE-1 ORF1 protein enhances Alu SINE retrotransposition.

21 January 2018

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https://api.crossref.org/works/10.1038%2FGIM.2012.23

Collection, Storage, Retrieval and Distribution of Biological Materials for Research

21 January 2018

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https://api.crossref.org/works/10.1038%2FGIM.2012.23

Informed consent and biobanks.

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2012.23

Multidimensional results reporting to participants in genomic studies: getting it right.

21 January 2018

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https://api.crossref.org/works/10.1038%2FGIM.2012.23

Molecular genetic testing for ultra rare diseases: models for translation from the research laboratory to the CLIA-certified diagnostic laboratory.

21 January 2018

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https://api.crossref.org/works/10.1038%2FGIM.2012.23

Tiered disclosure options promote the autonomy and well-being of research subjects.

21 January 2018

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https://api.crossref.org/works/10.1038%2FGIM.2012.23

Estimating risk curves for first-degree relatives of patients with Alzheimer's disease: the REVEAL study.

21 January 2018

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https://api.crossref.org/works/10.1038%2FGIM.2012.23

Benefit sharing and biobanking in Australia

21 January 2018

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https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3597341

Best practices for establishing a biobank

28 October 2018

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https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3597341

The ancillary-care responsibilities of medical researchers. An ethical framework for thinking about the clinical care that researchers owe their subjects

28 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3597341

“Human Non-Subjects Research”: Privacy and Compliance

28 October 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2012.23

Implications of Disclosing Individual Results of Clinical Research

21 January 2018

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2012.23

Public Expectations for Return of Results—Time to Stop Being Paternalistic?

21 January 2018

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https://api.crossref.org/works/10.1038%2FGIM.2012.23

Secondary researchers' duties to return incidental findings and individual research results: a partial-entrustment account

21 January 2018

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Deploying whole genome sequencing in clinical practice and public health: meeting the challenge one bin at a time

21 January 2018

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Ethical implications of including children in a large biobank for genetic-epidemiologic research: a qualitative study of public opinion

21 January 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3597341

The emergence of an ethical duty to disclose genetic research results: international perspectives

28 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3597341

Genetic risk estimation in the Coriell Personalized Medicine Collaborative

28 October 2018

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/22436882

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Genetic research and biobanks

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/22436882

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Informing clinical trial participants about study results

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/22436882

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Identifiers

DOI

10.1038/GIM.2012.23

1 reference

31 July 2017

1 reference

31 July 2017

1 reference