(Q34960752)

5 August 2017

Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium (English)

1 reference

5 August 2017

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sensitive information

0 references

0 references

0 references

1

Ellen Wright Clayton

0 references

Stephanie M Fullerton

3

Stephanie M Fullerton

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Wylie Burke

4

Wylie Burke

1 reference

5 August 2017

6

Barbara A Koenig

0 references

Catherine A. McCarty

Catherine A McCarty

5

0 references

Amy L McGuire

7

Amy L McGuire

1 reference

5 August 2017

8

Laura M Beskow

1 reference

5 August 2017

2

Maureen Smith

1 reference

5 August 2017

9

Lynn Dressler

1 reference

5 August 2017

11

Erin M Ramos

1 reference

5 August 2017

Laura Lyman Rodriguez

12

Laura Lyman Rodriguez

1 reference

5 August 2017

Amy A Lemke

10

1 reference

5 August 2017

Consent and Community Consultation Working Group of the eMERGE Consortium

13

1 reference

5 August 2017

language of work or name

English

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publication date

1 October 2010

1 reference

5 August 2017

1 reference

5 August 2017

12

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5 August 2017

10

1 reference

5 August 2017

616-620

1 reference

https://scigraph.springernature.com/pub.10.1097/gim.0b013e3181efdbd0

5 August 2017

0 references

cites work

Public and biobank participant attitudes toward genetic research participation and data sharing

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3090678

Attitudes toward genetic research review: results from a national survey of professionals involved in human subjects protection

8 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3090678

A new statistic and its power to infer membership in a genome-wide association study using genotype frequencies

8 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3090678

Disclosure of research results to research participants: A pilot study of the needs and attitudes of adolescents and parents.

8 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3090678

Public expectations for return of results from large-cohort genetic research

8 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3090678

Community consultation and communication for a population-based DNA biobank: the Marshfield clinic personalized medicine research project

8 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3090678

Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays

8 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3090678

Informed consent for biorepositories: assessing prospective participants' understanding and opinions

8 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3090678

Managing incidental findings in human subjects research: analysis and recommendations

8 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3090678

Duty to disclose what? Querying the putative obligation to return research results to participants

8 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3090678

Re-identification of familial database records.

8 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3090678

Informed consent and subject motivation to participate in a large, population-based genomics study: the Marshfield Clinic Personalized Medicine Research Project

8 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3090678

Disclosing individual results of clinical research: implications of respect for participants

8 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3090678

Disclosure of genetic information obtained through research

8 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3090678

How (not) to protect genomic data privacy in a distributed network: using trail re-identification to evaluate and design anonymity protection systems

8 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3090678

Integrating ethics and science in the International HapMap Project

8 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3090678

The Human Genome Project: Lessons from Large-Scale Biology

8 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3090678

Community involvement in the ethical review of genetic research: lessons from American Indian and Alaska Native populations

8 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3090678

Involving study populations in the review of genetic research

8 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3090678

The role of community review in evaluating the risks of human genetic variation research.

8 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3090678

Communal discourse as a supplement to informed consent for genetic research.

8 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3090678

Community engagement in genetic research: results of the first public consultation for the Quebec CARTaGENE project.

8 July 2018

1 reference

https://api.crossref.org/works/10.1097%2FGIM.0B013E3181EFDBD0

Community engagement and informed consent in the International HapMap project.

21 January 2018

1 reference

https://api.crossref.org/works/10.1097%2FGIM.0B013E3181EFDBD0

Assessing the understanding of biobank participants.

21 January 2018

1 reference

https://api.crossref.org/works/10.1097%2FGIM.0B013E3181EFDBD0

Informed consent and biobanks.

21 January 2018

1 reference

https://api.crossref.org/works/10.1097%2FGIM.0B013E3181EFDBD0

Medicine. Reestablishing the researcher-patient compact.

21 January 2018

1 reference

https://api.crossref.org/works/10.1097%2FGIM.0B013E3181EFDBD0

Reporting genetic results in research studies: summary and recommendations of an NHLBI working group.

21 January 2018

1 reference

https://api.crossref.org/works/10.1097%2FGIM.0B013E3181EFDBD0

Informing study participants of research results: an ethical imperative.

21 January 2018

1 reference

https://api.crossref.org/works/10.1097%2FGIM.0B013E3181EFDBD0

Subjects matter: a survey of public opinions about a large genetic cohort study.

21 January 2018

1 reference

https://api.crossref.org/works/10.1097%2FGIM.0B013E3181EFDBD0

21 January 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3090678

The emergence of an ethical duty to disclose genetic research results: international perspectives

26 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3090678

No place to hide--reverse identification of patients from published maps

9 December 2018

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/20733502

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Grappling with groups: protecting collective interests in biomedical research

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/20733502

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Identifiers

DOI

10.1097/GIM.0B013E3181EFDBD0

1 reference

Dimensions Publication ID

5 August 2017

0 references

1 reference

5 August 2017

1 reference