(Q33941167)

30 July 2017

title

Prospective biorepository participants' perspectives on access to research results (English)

1 reference

30 July 2017

1

Laura M Beskow

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30 July 2017

Sondra J Smolek

2

1 reference

30 July 2017

publication date

1 September 2009

1 reference

Journal of Empirical Research on Human Research Ethics

30 July 2017

published in

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30 July 2017

volume

4

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30 July 2017

issue

3

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30 July 2017

page(s)

99-111

1 reference

Informed consent for biorepositories: assessing prospective participants' understanding and opinions

30 July 2017

cites work

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2892166

The impact of sharing results of a randomized breast cancer clinical trial with study participants

5 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2892166

Ethical, legal, and social implications of biobanks for genetics research

5 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2892166

Duty to disclose what? Querying the putative obligation to return research results to participants

5 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2892166

Letting the gene out of the bottle: a comment on returning individual research results to participants

5 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2892166

Disclosing individual genetic results to research participants

5 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2892166

Receiving a summary of the results of a trial: qualitative study of participants' views

5 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2892166

Disclosing individual results of clinical research: implications of respect for participants

5 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2892166

Issues of consent and feedback in a genetic epidemiological study of women with breast cancer

5 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2892166

The debate over research on stored biological samples: what do sources think?

5 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2892166

Informed consent for population-based research involving genetics

5 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2892166

Reporting genetic results in research studies: summary and recommendations of an NHLBI working group.

5 July 2018

1 reference

https://api.crossref.org/works/10.1525%2FJER.2009.4.3.99

Informing study participants of research results: an ethical imperative.

21 January 2018

1 reference

https://api.crossref.org/works/10.1525%2FJER.2009.4.3.99

Subjects matter: a survey of public opinions about a large genetic cohort study

21 January 2018

1 reference

https://api.crossref.org/works/10.1525%2FJER.2009.4.3.99

Assessing the understanding of biobank participants.

21 January 2018

1 reference

https://api.crossref.org/works/10.1525%2FJER.2009.4.3.99

Impact on survivors of retinoblastoma when informed of study results on risk of second cancers

21 January 2018

1 reference

https://api.crossref.org/works/10.1525%2FJER.2009.4.3.99

The consent problem within DNA biobanks.

21 January 2018

1 reference

https://api.crossref.org/works/10.1525%2FJER.2009.4.3.99

Public Expectations for Return of Results—Time to Stop Being Paternalistic?

21 January 2018

1 reference

https://api.crossref.org/works/10.1525%2FJER.2009.4.3.99

Taking Our Obligations to Research Participants Seriously: Disclosing Individual Results of Genetic Research

21 January 2018

1 reference

https://api.crossref.org/works/10.1525%2FJER.2009.4.3.99

Undesirable Implications of Disclosing Individual Genetic Results to Research Participants

21 January 2018

1 reference

https://api.crossref.org/works/10.1525%2FJER.2009.4.3.99

Clinical Utility and Full Disclosure of Genetic Results to Research Participants

21 January 2018

1 reference

https://api.crossref.org/works/10.1525%2FJER.2009.4.3.99

The emergence of an ethical duty to disclose genetic research results: international perspectives

21 January 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2892166

Implications of Disclosing Individual Results of Clinical Research

29 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2892166

Do patients participating in clinical trials want to know study results?

29 October 2018

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/19754239

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Identifiers

DOI

10.1525/JER.2009.4.3.99

1 reference

30 July 2017

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30 July 2017

1 reference