(Q36794705)

16 August 2017

Online information exchanges for parents of children with a rare health condition: key findings from an online support community (English)

1 reference

16 August 2017

Florin Oprescu

1

0 references

author name string

Shelly Campo

2

1 reference

16 August 2017

John Lowe

3

1 reference

16 August 2017

Julie Andsager

4

1 reference

16 August 2017

Jose A Morcuende

5

1 reference

16 August 2017

22 January 2013

1 reference

Journal of Medical Internet Research

16 August 2017

1 reference

16 August 2017

15

1 reference

16 August 2017

1

1 reference

16 August 2017

e16

1 reference

Crowdsourced health research studies: an important emerging complement to clinical trials in the public health research ecosystem

16 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3636206

Developing health promotion interventions on social networking sites: recommendations from The FaceSpace Project

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3636206

Results of an online community needs assessment for psychoeducational interventions among partners of hereditary breast cancer previvors and survivors

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3636206

Benefits of peer support in online Japanese breast cancer communities: differences between lurkers and posters

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3636206

Using natural language processing to enable in-depth analysis of clinical messages posted to an Internet mailing list: a feasibility study

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3636206

Creating a bond between caregivers online: effect on caregivers' coping strategies.

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3636206

Internet use and eHealth literacy of low-income parents whose children have special health care needs

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3636206

Management of congenital talipes equinovarus using the Ponseti method: a systematic review

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3636206

Internet-Based Interactive Support for Cancer Patients: Are Integrated Systems Better?

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3636206

Use of an online community to develop patient-reported outcome instruments: the Multiple Sclerosis Treatment Adherence Questionnaire (MS-TAQ).

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3636206

An online community improves adherence in an internet-mediated walking program. Part 1: results of a randomized controlled trial

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3636206

Bracing in the treatment of children with clubfoot: past, present, and future

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3636206

Information-seeking at a caregiving website: a qualitative analysis

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3636206

The role of the Internet in supporting and informing carers of people with cancer: a literature review

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3636206

Parenthood, information and support on the internet. A literature review of research on parents and professionals online

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3636206

Gender differences in computer-mediated communication: a systematic literature review of online health-related support groups

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3636206

Advice-giving and the management of uncertainty for cancer survivors

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3636206

The early postnatal period: exploring women's views, expectations and experiences of care using focus groups in Victoria, Australia.

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3636206

Social support in cyberspace: a content analysis of communication within a Huntington's disease online support group.

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3636206

Patients using the Internet to obtain health information: how this affects the patient-health professional relationship

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3636206

The many meanings of uncertainty in illness: toward a systematic accounting

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3636206

Socially unbiased parenting support on the Internet: a cross-sectional study of users of a large Swedish parenting website

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3636206

The role of the Internet in patient-practitioner relationships: findings from a qualitative research study

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3636206

Characteristics of online and offline health information seekers and factors that discriminate between them

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3636206

Online pediatric information seeking among mothers of young children: results from a qualitative study using focus groups

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3636206

Radical reduction in the rate of extensive corrective surgery for clubfoot using the Ponseti method

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3636206

Use of the Internet by women with breast cancer

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3636206

Empirical studies assessing the quality of health information for consumers on the world wide web: a systematic review

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3636206

Evidence based patient information. is important, so there needs to be a national strategy to ensure it.

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3636206

Uncertainty in illness across the HIV/AIDS trajectory

27 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3636206

Reconceptualization of the uncertainty in illness theory.

27 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3636206

The current management of idiopathic clubfoot revisited: results of a survey of the POSNA membership

27 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3636206

Why is Facebook so successful? Psychophysiological measures describe a core flow state while using Facebook

5 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3636206

The diagnosis and management of common childhood orthopedic disorders.

5 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3636206

Producing genetic knowledge and citizenship through the Internet: mothers, pediatric genetics, and cybermedicine

5 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3636206

Evaluation of an internet support group for women with primary breast cancer

5 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3636206

Impact of the media and the internet on oncology: survey of cancer patients and oncologists in Canada

5 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3636206

Readability levels of patient education material on the World Wide Web.

5 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3636206

Communication and Uncertainty Management

5 September 2018

1 reference

Crossref

https://api.crossref.org/works/10.2196%2FJMIR.2423

Parenting a child with clubfoot: A qualitative study

21 January 2018

1 reference

Crossref

https://api.crossref.org/works/10.2196%2FJMIR.2423

THE DETERMINATION OF HISTORICAL POPULAR READING HABITS: A CASE STUDY

21 January 2018

1 reference

Crossref

https://api.crossref.org/works/10.2196%2FJMIR.2423

Ponseti method compared with surgical treatment of clubfoot: a prospective comparison

21 January 2018

1 reference

12 December 2020

Parents on the web: risks for quality management of cough in children

1 reference

12 December 2020

The Internet as a health information source: findings from the 2007 Health Information National Trends Survey and implications for health communication

1 reference

12 December 2020

Communication of social support in computer-mediated groups for people with disabilities

1 reference

12 December 2020

Computer-mediated support group intervention for parents

1 reference

12 December 2020

Treatment results of late-relapsing idiopathic clubfoot previously treated with the Ponseti method

1 reference

12 December 2020

Relapse after tibialis anterior tendon transfer in idiopathic clubfoot treated by the Ponseti method

1 reference

12 December 2020

Online solutions to support needs and preferences of parents of children with asthma and allergies

1 reference

12 December 2020

‘One wants to know what a chromosome is’: the internet as a coping resource when adjusting to life parenting a child with a rare genetic disorder

1 reference

12 December 2020

Understanding the educational needs for parents of children with clubfoot

1 reference

12 December 2020

Online participation: a content analysis of differences in utilization of two online cancer communities by men and women, patients and family members

1 reference

12 December 2020

First step in obtaining child health care: selecting a physician

1 reference

12 December 2020

Identifiers

DOI

10.2196/JMIR.2423

1 reference

16 August 2017

1 reference

16 August 2017

PubMed publication ID

23470259

1 reference