(Q36820946)

16 August 2017

Perceptions of discrimination among persons who have undergone predictive testing for Huntington's disease (English)

1 reference

16 August 2017

0 references

Janet K Williams

2

0 references

Jane S. Paulsen

object named as

Jane S Paulsen

8

0 references

Michael R. Hayden

object named as

Michael R Hayden

7

0 references

author name string

Elizabeth Penziner

1

1 reference

16 August 2017

Cheryl Erwin

3

1 reference

16 August 2017

Yvonne Bombard

4

1 reference

16 August 2017

Anne Wallis

5

1 reference

16 August 2017

Leigh J Beglinger

6

1 reference

16 August 2017

1 April 2008

1 reference

American Journal of Medical Genetics Part B: Neuropsychiatric Genetics

16 August 2017

1 reference

16 August 2017

147

1 reference

16 August 2017

3

1 reference

16 August 2017

320-325

1 reference

Risk Perception and Decision-making Processes in Candidates for Genetic Testing for Huntington's Disease: An Interpretative Phenomenological Analysis

16 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Methodological considerations in the study of genetic discrimination

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Psychological consequences and predictors of adverse events in the first 5 years after predictive testing for Huntington's disease.

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

A vision for the future of genomics research

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Population screening in the age of genomic medicine

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Genomic medicine--a primer

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Major study commencing into genetic discrimination in Australia

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Redefinition: coping with normal results from predictive gene testing for neurodegenerative disorders

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Qualitative research in health care. Analysing qualitative data

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Adults seeking presymptomatic gene testing for Huntington disease

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Predicting adaptation to presymptomatic DNA testing for late onset disorders: who will experience distress? Rotterdam Leiden Genetics Workgroup

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

A descriptive study of BRCA1 testing and reactions to disclosure of test results

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Prediction of psychological functioning one year after the predictive test for Huntington's disease and impact of the test result on reproductive decision making

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Psychological costs and benefits of predictive testing for Huntington's disease

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

The human genome exposed: a glimpse of promise, predicament, and impact on practice

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Objective knowledge about Huntington's disease and attitudes towards predictive tests of persons at risk

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Managing and analyzing qualitative data. A description of tasks, techniques, and materials

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Discrimination as a consequence of genetic testing

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Using a Grid for Interpreting and Presenting Qualitative Data

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

The motivation of at-risk individuals and their partners in deciding for or against predictive testing for Huntington's disease

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Psychosocial impact of predictive testing for Huntington disease on support persons

29 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Attitudes of persons at risk for Huntington disease toward predictive testing

27 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Genetic testing for neurologic diseases. A rose with thorns

27 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Testing for Huntington's disease with support for all parties

27 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Predictive testing for Huntington disease in Canada: adverse effects and unexpected results in those receiving a decreased risk

27 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

The psychological consequences of predictive testing for Huntington's disease. Canadian Collaborative Study of Predictive Testing

27 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Genetic testing and Huntington's disease: issues of employment

27 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Discovering fragile X syndrome: family experiences and perceptions.

5 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Individual, family, and societal dimensions of genetic discrimination: a case study analysis

5 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Genetic privacy laws and patients' fear of discrimination by health insurers: the view from genetic counselors.

5 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Will genetics revolutionize psychiatry?

5 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Reactions to predictive testing in Huntington disease: case reports of coping with a new genetic status

5 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Genetic discrimination: perspectives of consumers.

5 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Reluctance to undergo predictive testing: the case of Huntington disease

5 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

Hunting for Huntington's disease.

5 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3645880

"No one else sees the difference: "family members' perceptions of changes in persons with preclinical Huntington disease

5 September 2018

1 reference

Crossref

https://api.crossref.org/works/10.1002%2FAJMG.B.30600

A model protocol for evaluating the behavioral and psychosocial effects of BRCA1 testing

21 January 2018

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/17948904

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

BRCA1 testing in families with hereditary breast-ovarian cancer. A prospective study of patient decision making and outcomes

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/17948904

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Identifiers

DOI

10.1002/AJMG.B.30600

1 reference

16 August 2017

1 reference

16 August 2017

1 reference