(Q36963094)

English

Relationship between clinical outcome measures and parent proxy reports of health-related quality of life in ambulatory children with Duchenne muscular dystrophy

scientific article published on 17 June 2010

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scholarly article

1 reference

Europe PubMed Central

17 August 2017

Relationship between clinical outcome measures and parent proxy reports of health-related quality of life in ambulatory children with Duchenne muscular dystrophy (English)

1 reference

Europe PubMed Central

17 August 2017

Duchenne muscular dystrophy

1 reference

based on heuristic

inferred from title

Craig M. McDonald

object named as

Craig M McDonald

1

0 references

7

object named as

Alina Nicorici

1 reference

Europe PubMed Central

17 August 2017

author name string

Dawn A McDonald

2

1 reference

Europe PubMed Central

17 August 2017

Anita Bagley

3

1 reference

Europe PubMed Central

17 August 2017

Susan Sienko Thomas

4

1 reference

Europe PubMed Central

17 August 2017

Cathleen E Buckon

5

1 reference

Europe PubMed Central

17 August 2017

Eric Henricson

6

1 reference

Europe PubMed Central

17 August 2017

Michael D Sussman

8

1 reference

Europe PubMed Central

17 August 2017

publication date

17 June 2010

1 reference

Europe PubMed Central

17 August 2017

Journal of Child Neurology

1 reference

Europe PubMed Central

17 August 2017

25

1 reference

Europe PubMed Central

17 August 2017

9

1 reference

Europe PubMed Central

17 August 2017

1130-1144

1 reference

Europe PubMed Central

17 August 2017

Development of the International Classification of Functioning, Disability and Health core sets for hand conditions--results of the World Health Organization International Consensus process

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3695468

29 September 2017

The PedsQL in pediatric patients with Duchenne muscular dystrophy: feasibility, reliability, and validity of the Pediatric Quality of Life Inventory Neuromuscular Module and Generic Core Scales

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3695468

29 September 2017

Development of items designed to evaluate activity performance and participation in children and adolescents with spinal cord injury

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3695468

29 September 2017

The PedsQL in pediatric patients with Spinal Muscular Atrophy: feasibility, reliability, and validity of the Pediatric Quality of Life Inventory Generic Core Scales and Neuromuscular Module

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3695468

29 September 2017

A phase I/IItrial of MYO-029 in adult subjects with muscular dystrophy

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3695468

29 September 2017

Pediatric outcomes data collection instrument scores in ambulatory children with cerebral palsy: an analysis by age groups and severity level

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3695468

29 September 2017

New therapies for Duchenne muscular dystrophy: challenges, prospects and clinical trials.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3695468

29 September 2017

Impact of spinal cord dysfunction and obesity on the health-related quality of life of children and adolescents

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3695468

29 September 2017

The Patient-Reported Outcomes Measurement Information System (PROMIS): progress of an NIH Roadmap cooperative group during its first two years

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3695468

29 September 2017

Construction and validation of a quality of life questionnaire for neuromuscular disease (INQoL).

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3695468

29 September 2017

How young can children reliably and validly self-report their health-related quality of life?: an analysis of 8,591 children across age subgroups with the PedsQL 4.0 Generic Core Scales

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3695468

29 September 2017

Computer adaptive testing

1 reference

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29 September 2017

Incorporating the patient's perspective into drug development and communication: an ad hoc task force report of the Patient-Reported Outcomes (PRO) Harmonization Group meeting at the Food and Drug Administration, February 16, 2001.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3695468

29 September 2017

The PedsQL™* 4.0 as a Pediatric Population Health Measure: Feasibility, Reliability, and Validity

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3695468

29 September 2017

Randomized, double-blind six-month trial of prednisone in Duchenne's muscular dystrophy

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3695468

29 September 2017

Profiles of neuromuscular diseases. Duchenne muscular dystrophy.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3695468

27 June 2018

The 6-minute walk test as a new outcome measure in Duchenne muscular dystrophy.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3695468

4 September 2018

The pediatric quality of life inventory: measuring pediatric health-related quality of life from the perspective of children and their parents.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3695468

4 September 2018

The PedsQL 4.0 Generic Core Scales Young Adult Version: feasibility, reliability and validity in a university student population.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3695468

4 September 2018

Gait pattern in Duchenne muscular dystrophy.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3695468

4 September 2018

Parental stress and quality of life in children with neuromuscular disease.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3695468

4 September 2018

Using focus groups to inform the Neuro-QOL measurement tool: exploring patient-centered, health-related quality of life concepts across neurological conditions.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3695468

4 September 2018

Outcome of noninvasive ventilation in children with neuromuscular disease.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3695468

4 September 2018

Challenges in drug development for muscle disease: a stakeholders' meeting.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3695468

4 September 2018

Reliable surrogate outcome measures in multicenter clinical trials of Duchenne muscular dystrophy.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3695468

4 September 2018

CINRG randomized controlled trial of creatine and glutamine in Duchenne muscular dystrophy.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3695468

4 September 2018

Reliability of 4 outcome measures in pediatric spinal muscular atrophy.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3695468

4 September 2018

The PedsQL 4.0 Generic Core Scales: sensitivity, responsiveness, and impact on clinical decision-making

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3695468

4 September 2018

PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3695468

4 September 2018

Clinical evaluator reliability for quantitative and manual muscle testing measures of strength in children.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3695468

4 September 2018

The PedsQL: measurement model for the pediatric quality of life inventory

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3695468

4 September 2018

A Randomized, Placebo-Controlled Trial of Creatine in Children With Spinal Muscular Atrophy

1 reference

https://api.crossref.org/works/10.1177%2F0883073810371509

21 January 2018

The pathomechanics of gait in Duchenne muscular dystrophy

1 reference

https://pubmed.ncbi.nlm.nih.gov/20558672

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

The Pediatric Orthopaedic Society of North America pediatric orthopaedic functional health questionnaire: an analysis of normals

1 reference

https://pubmed.ncbi.nlm.nih.gov/20558672

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Comparison of three outcomes instruments in children

1 reference

https://pubmed.ncbi.nlm.nih.gov/20558672

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Long-term benefit from prednisone therapy in Duchenne muscular dystrophy

1 reference

https://pubmed.ncbi.nlm.nih.gov/20558672

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Clinical trial in Duchenne dystrophy. I. The design of the protocol

1 reference

https://pubmed.ncbi.nlm.nih.gov/20558672

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

The American academy of orthopaedic surgeons outcomes instruments: normative values from the general population

1 reference

https://pubmed.ncbi.nlm.nih.gov/20558672

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

A comparison of daily and alternate-day prednisone therapy in the treatment of Duchenne muscular dystrophy

1 reference

https://pubmed.ncbi.nlm.nih.gov/20558672

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Intellect and Behaviour in Duchenne Muscular Dystrophy

1 reference

https://pubmed.ncbi.nlm.nih.gov/20558672

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

CINRG pilot trial of oxatomide in steroid-naïve Duchenne muscular dystrophy

1 reference

https://pubmed.ncbi.nlm.nih.gov/20558672

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Prednisone in Duchenne dystrophy. A randomized, controlled trial defining the time course and dose response. Clinical Investigation of Duchenne Dystrophy Group

1 reference

https://pubmed.ncbi.nlm.nih.gov/20558672

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

A study of contractures in muscular dystrophy

1 reference

https://pubmed.ncbi.nlm.nih.gov/20558672

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Validation of a model of gross motor function for children with cerebral palsy

1 reference

https://pubmed.ncbi.nlm.nih.gov/20558672

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Maintenance of ambulation in childhood muscular dystrophy

1 reference

https://pubmed.ncbi.nlm.nih.gov/20558672

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Clinical investigation of Duchenne muscular dystrophy. Interesting results in a trial of prednisone

1 reference

https://pubmed.ncbi.nlm.nih.gov/20558672

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

The POSNA pediatric musculoskeletal functional health questionnaire: report on reliability, validity, and sensitivity to change. Pediatric Outcomes Instrument Development Group. Pediatric Orthopaedic Society of North America

1 reference

https://pubmed.ncbi.nlm.nih.gov/20558672

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Identifiers

10.1177/0883073810371509

1 reference

Europe PubMed Central

17 August 2017

1 reference

Europe PubMed Central

17 August 2017

1 reference

Europe PubMed Central

17 August 2017

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