(Q37157578)

18 August 2017

Providing research results to participants: attitudes and needs of adolescents and parents of children with cancer (English)

1 reference

18 August 2017

1 reference

Justin Nathaniel Baker

7

0 references

Charles Weijer

object named as

Charles Weijer

9

0 references

Eric Kodish

10

object named as

Eric Kodish

1 reference

18 August 2017

Conrad Vincent Fernandez

1

1 reference

18 August 2017

Jun Gao

2

1 reference

18 August 2017

Caron Strahlendorf

3

1 reference

18 August 2017

Albert Moghrabi

4

1 reference

18 August 2017

Rebecca Davis Pentz

5

1 reference

18 August 2017

Raymond Carlton Barfield

6

1 reference

18 August 2017

Darcy Santor

8

1 reference

18 August 2017

language of work or name

English

0 references

publication date

21 January 2009

1 reference

Journal of Clinical Oncology

18 August 2017

1 reference

18 August 2017

27

1 reference

18 August 2017

6

1 reference

18 August 2017

878-883

1 reference

Disclosure of research results to research participants: A pilot study of the needs and attitudes of adolescents and parents.

18 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2668636

Communicating the results of clinical research to participants: attitudes, practices, and future directions

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2668636

Offering results to research subjects: U.S. Institutional Review Board policy

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2668636

Disclosing individual genetic results to research participants

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2668636

The return of research results to participants: pilot questionnaire of adolescents and parents of children with cancer

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2668636

Receiving a summary of the results of a trial: qualitative study of participants' views

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2668636

Informing research participants of research results: analysis of Canadian university based research ethics board policies

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2668636

Disclosing individual results of clinical research: implications of respect for participants

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2668636

Providing research results to study participants: support versus practice of researchers presenting at the American Society of Hematology annual meeting

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2668636

Considerations and costs of disclosing study findings to research participants

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2668636

Informing participants of allocation to placebo at trial closure: postal survey

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2668636

Reactions of participants to the results of a randomised controlled trial: exploratory study

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2668636

Development and validation of brief measures of positive and negative affect: The PANAS scales

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2668636

Oncology physician and nurse practices and attitudes regarding offering clinical trial results to study participants

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2668636

Offering to return results to research participants: attitudes and needs of principal investigators in the Children's Oncology Group

14 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2668636

Workers' response to risk notification

27 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2668636

Disclosure of genetics research results after the death of the patient participant: a qualitative study of the impact on relatives.

27 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2668636

Thresholds and boundaries in the disclosure of individual genetic research results.

3 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2668636

Reporting genetic results in research studies: summary and recommendations of an NHLBI working group.

3 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2668636

Informing study participants of research results: an ethical imperative.

3 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2668636

Impact on survivors of retinoblastoma when informed of study results on risk of second cancers

3 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2668636

Informing subjects of epidemiologic study results. Children's Cancer Group.

3 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2668636

Perception of quality of life before and after disclosure of trial results: a report from the Program on the Surgical Control of the Hyperlipidemias (POSCH).

3 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2668636

Questions, Complexities, and Limitations in Disclosing Individual Genetic Results

3 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2668636

Undesirable Implications of Disclosing Individual Genetic Results to Research Participants

4 December 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2668636

The emergence of an ethical duty to disclose genetic research results: international perspectives

4 December 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2668636

Providing research participants with findings from completed cancer-related clinical trials: not quite as simple as it sounds

4 December 2018

1 reference

12 December 2020

Use of the Internet and E-mail for Health Care Information

1 reference

12 December 2020

Informing clinical trial participants about study results

1 reference

12 December 2020

Do patients participating in clinical trials want to know study results?

1 reference

12 December 2020

Offering participants results of a clinical trial: sharing results of a negative study

1 reference

12 December 2020

Identifiers

DOI

10.1200/JCO.2008.18.5223

1 reference

18 August 2017

1 reference

18 August 2017

PubMed publication ID

19164211

1 reference