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English
The Informed Cohort Oversight Board: From Values to Architecture
scientific article published on January 2012
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Statements
instance of
scholarly article
1 reference
stated in
Europe PubMed Central
PMCID
3872117
retrieved
20 August 2017
title
The Informed Cohort Oversight Board: From Values to Architecture
(English)
1 reference
stated in
Europe PubMed Central
PMCID
3872117
retrieved
20 August 2017
author
Ingrid A Holm
series ordinal
1
1 reference
stated in
Europe PubMed Central
PMCID
3872117
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:24371432%20AND%20SRC:MED&resulttype=core&format=json
retrieved
2 June 2020
author name string
Patrick L Taylor
series ordinal
2
1 reference
stated in
Europe PubMed Central
PMCID
3872117
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:24371432%20AND%20SRC:MED&resulttype=core&format=json
retrieved
2 June 2020
publication date
1 January 2012
1 reference
stated in
Europe PubMed Central
PMCID
3872117
retrieved
20 August 2017
published in
Minnesota Journal of Law, Science and Technology
1 reference
stated in
Europe PubMed Central
PMCID
3872117
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:24371432%20AND%20SRC:MED&resulttype=core&format=json
retrieved
2 June 2020
volume
13
1 reference
stated in
Europe PubMed Central
PMCID
3872117
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:24371432%20AND%20SRC:MED&resulttype=core&format=json
retrieved
2 June 2020
issue
2
1 reference
stated in
Europe PubMed Central
PMCID
3872117
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:24371432%20AND%20SRC:MED&resulttype=core&format=json
retrieved
2 June 2020
page(s)
669-690
1 reference
stated in
Europe PubMed Central
PMCID
3872117
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:24371432%20AND%20SRC:MED&resulttype=core&format=json
retrieved
2 June 2020
cites work
The beliefs, motivations, and expectations of parents who have enrolled their children in a genetic biorepository
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3872117
retrieved
6 September 2017
Biobanking in pediatrics: the human nonsubjects approach
1 reference
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PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3872117
retrieved
6 September 2017
Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3872117
retrieved
6 September 2017
Evaluation of the validity and utility of genetic testing for rare diseases
1 reference
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PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3872117
retrieved
6 September 2017
Personal utility and genomic information: look before you leap
1 reference
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PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3872117
retrieved
6 September 2017
The Scientific Foundation for personal genomics: recommendations from a National Institutes of Health-Centers for Disease Control and Prevention multidisciplinary workshop
1 reference
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PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3872117
retrieved
6 September 2017
Research ethics recommendations for whole-genome research: consensus statement
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https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3872117
retrieved
6 September 2017
Disclosing individual genetic results to research participants
1 reference
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PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3872117
retrieved
6 September 2017
Multidimensional results reporting to participants in genomic studies: getting it right.
1 reference
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PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3872117
retrieved
2 September 2018
Evaluating the utility of personal genomic information
1 reference
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PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3872117
retrieved
2 September 2018
Medicine. Reestablishing the researcher-patient compact.
1 reference
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PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3872117
retrieved
2 September 2018
Tiered disclosure options promote the autonomy and well-being of research subjects.
1 reference
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PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3872117
retrieved
2 September 2018
Reporting genetic results in research studies: summary and recommendations of an NHLBI working group.
1 reference
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PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3872117
retrieved
2 September 2018
Undesirable Implications of Disclosing Individual Genetic Results to Research Participants
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3872117
retrieved
3 December 2018
Identifiers
PMCID
3872117
1 reference
stated in
Europe PubMed Central
PMCID
3872117
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:24371432%20AND%20SRC:MED&resulttype=core&format=json
retrieved
2 June 2020
PubMed ID
24371432
1 reference
stated in
Europe PubMed Central
PMCID
3872117
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:24371432%20AND%20SRC:MED&resulttype=core&format=json
retrieved
2 June 2020
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