(Q37148886)

18 August 2017

The beliefs, motivations, and expectations of parents who have enrolled their children in a genetic biorepository (English)

1 reference

18 August 2017

Ingrid A Holm

9

0 references

Robert C. Green

8

object named as

Robert C Green

1 reference

18 August 2017

Erin D Harris

1

1 reference

18 August 2017

Sonja I Ziniel

2

1 reference

18 August 2017

Jonathan G Amatruda

3

1 reference

18 August 2017

Catherine M Clinton

4

1 reference

18 August 2017

Sarah K Savage

5

1 reference

18 August 2017

Patrick L Taylor

6

1 reference

18 August 2017

Noelle L Huntington

7

1 reference

18 August 2017

language of work or name

English

0 references

publication date

26 January 2012

1 reference

18 August 2017

1 reference

18 August 2017

14

1 reference

18 August 2017

3

1 reference

18 August 2017

330-337

1 reference

Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

18 August 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3763713

Evaluation of the Validity and Utility of Genetic Testing for Rare Diseases

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3763713

Handling ethical, legal and social issues in birth cohort studies involving genetic research: responses from studies in six countries

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3763713

Disclosure of research results to research participants: A pilot study of the needs and attitudes of adolescents and parents.

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3763713

Personal utility and genomic information: look before you leap

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3763713

The Scientific Foundation for personal genomics: recommendations from a National Institutes of Health-Centers for Disease Control and Prevention multidisciplinary workshop

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3763713

Providing research results to participants: attitudes and needs of adolescents and parents of children with cancer

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3763713

Public expectations for return of results from large-cohort genetic research

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3763713

Disclosing individual genetic results to research participants

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3763713

Ethical issues arising from the participation of children in genetic research

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3763713

The return of research results to participants: pilot questionnaire of adolescents and parents of children with cancer

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3763713

Ethical issues with genetic testing in pediatrics

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3763713

The return of individual research findings in paediatric genetic research

6 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3763713

What is a meaningful result? Disclosing the results of genomic research in autism to research participants

14 September 2017

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3763713

Multidimensional results reporting to participants in genomic studies: getting it right.

27 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3763713

Evaluating the utility of personal genomic information

3 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3763713

Subjects matter: a survey of public opinions about a large genetic cohort study

3 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3763713

Ethical issues raised by incorporation of genetics into the National Birth Defects Prevention Study.

3 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3763713

Medicine. Reestablishing the researcher-patient compact.

3 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3763713

Tiered disclosure options promote the autonomy and well-being of research subjects.

3 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3763713

Reporting genetic results in research studies: summary and recommendations of an NHLBI working group.

3 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3763713

Informing study participants of research results: an ethical imperative.

3 September 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3763713

Protecting communities in biomedical research

3 September 2018

1 reference

Crossref

https://api.crossref.org/works/10.1038%2FGIM.2011.25

Implications of Disclosing Individual Results of Clinical Research

21 January 2018

1 reference

Crossref

https://api.crossref.org/works/10.1038%2FGIM.2011.25

Ethical implications of including children in a large biobank for genetic-epidemiologic research: a qualitative study of public opinion

21 January 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3763713

Undesirable Implications of Disclosing Individual Genetic Results to Research Participants

4 December 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3763713

The emergence of an ethical duty to disclose genetic research results: international perspectives

4 December 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3763713

Points to consider: ethical, legal, and psychosocial implications of genetic testing in children and adolescents. American Society of Human Genetics Board of Directors, American College of Medical Genetics Board of Directors

4 December 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3763713

Genetic risk estimation in the Coriell Personalized Medicine Collaborative

4 December 2018

1 reference

PubMed

https://pubmed.ncbi.nlm.nih.gov/22241099

inferred from PubMed ID database lookup

12 December 2020

based on heuristic

Implications of Disclosing Individual Results of Clinical Research—Reply

1 reference

Crossref

https://api.crossref.org/works/10.1038%2FGIM.2011.25

inferred from DOI database lookup

7 January 2021

based on heuristic

Identifiers

DOI

10.1038/GIM.2011.25

1 reference

Dimensions Publication ID

18 August 2017

0 references

1 reference

18 August 2017

PubMed publication ID

22241099

1 reference