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Patient awareness and approval for an opt-out genomic biorepository.
scientific article published on June 2013
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instance of
scholarly article
1 reference
stated in
Europe PubMed Central
PMC publication ID
3882901
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:24416062%20AND%20SRC:MED&resulttype=core&format=json
retrieved
5 March 2020
title
Patient awareness and approval for an opt-out genomic biorepository
(English)
1 reference
stated in
Europe PubMed Central
PMC publication ID
3882901
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:24416062%20AND%20SRC:MED&resulttype=core&format=json
retrieved
5 March 2020
main subject
patient
1 reference
based on heuristic
inferred from title
author
Kyle Brothers
series ordinal
1
1 reference
stated in
Europe PubMed Central
PMC publication ID
3882901
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:24416062%20AND%20SRC:MED&resulttype=core&format=json
retrieved
5 March 2020
Daniel R Morrison
series ordinal
5
1 reference
stated in
Europe PubMed Central
PMC publication ID
3882901
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:24416062%20AND%20SRC:MED&resulttype=core&format=json
retrieved
5 March 2020
Ellen Wright Clayton
series ordinal
8
1 reference
stated in
Europe PubMed Central
PMC publication ID
3882901
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:24416062%20AND%20SRC:MED&resulttype=core&format=json
retrieved
5 March 2020
Jill M. Pulley
series ordinal
7
object named as
Jill M Pulley
1 reference
stated in
Europe PubMed Central
PMC publication ID
3882901
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:24416062%20AND%20SRC:MED&resulttype=core&format=json
retrieved
5 March 2020
author name string
Mathew J Westbrook
series ordinal
2
1 reference
stated in
Europe PubMed Central
PMC publication ID
3882901
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:24416062%20AND%20SRC:MED&resulttype=core&format=json
retrieved
5 March 2020
M Frances Wright
series ordinal
3
1 reference
stated in
Europe PubMed Central
PMC publication ID
3882901
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:24416062%20AND%20SRC:MED&resulttype=core&format=json
retrieved
5 March 2020
John A Myers
series ordinal
4
1 reference
stated in
Europe PubMed Central
PMC publication ID
3882901
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:24416062%20AND%20SRC:MED&resulttype=core&format=json
retrieved
5 March 2020
Jennifer L Madison
series ordinal
6
1 reference
stated in
Europe PubMed Central
PMC publication ID
3882901
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:24416062%20AND%20SRC:MED&resulttype=core&format=json
retrieved
5 March 2020
language of work or name
English
0 references
publication date
1 June 2013
1 reference
stated in
Europe PubMed Central
PMC publication ID
3882901
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:24416062%20AND%20SRC:MED&resulttype=core&format=json
retrieved
5 March 2020
published in
Personalized Medicine
1 reference
stated in
Europe PubMed Central
PMC publication ID
3882901
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:24416062%20AND%20SRC:MED&resulttype=core&format=json
retrieved
5 March 2020
volume
10
1 reference
stated in
Europe PubMed Central
PMC publication ID
3882901
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:24416062%20AND%20SRC:MED&resulttype=core&format=json
retrieved
5 March 2020
issue
4
1 reference
stated in
Europe PubMed Central
PMC publication ID
3882901
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:24416062%20AND%20SRC:MED&resulttype=core&format=json
retrieved
5 March 2020
cites work
Identifying personal genomes by surname inference
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3882901
retrieved
23 August 2017
Challenges in creating an opt-in biobank with a registrar-based consent process and a commercial EHR.
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3882901
retrieved
23 August 2017
Biobanking in pediatrics: the human nonsubjects approach
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3882901
retrieved
23 August 2017
Research ethics. Research practice and participant preferences: the growing gulf.
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3882901
retrieved
23 August 2017
Principles of human subjects protections applied in an opt-out, de-identified biobank
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3882901
retrieved
23 August 2017
Research understanding, attitude and awareness towards biobanking: a survey among Italian twin participants to a genetic epidemiological study
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3882901
retrieved
23 August 2017
Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays
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PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3882901
retrieved
23 August 2017
Development of a large-scale de-identified DNA biobank to enable personalized medicine.
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3882901
retrieved
23 August 2017
Quality of informed consent in cancer clinical trials: a cross-sectional survey
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3882901
retrieved
23 August 2017
The Belmont Report. Ethical principles and guidelines for the protection of human subjects of research
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3882901
retrieved
23 August 2017
Informed consent. The whole truth for patients?
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3882901
retrieved
28 September 2017
Pediatric research hospitalization: its meaning to parents.
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3882901
retrieved
26 June 2018
Two large-scale surveys on community attitudes toward an opt-out biobank.
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3882901
retrieved
2 September 2018
Assessing the understanding of biobank participants.
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3882901
retrieved
2 September 2018
Evaluation of the effectiveness of posters to provide information to patients about a DNA database and their opportunity to opt out.
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3882901
retrieved
2 September 2018
Assessing recall and understanding of informed consent in a contraceptive clinical trial
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3882901
retrieved
2 September 2018
Informed consent to biomedical research in Veterans Administration Hospitals
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3882901
retrieved
2 September 2018
Effectiveness of the informed consent process for a pediatric resuscitation trial
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3882901
retrieved
2 October 2018
How informed is informed consent? The BHAT experience
1 reference
stated in
PubMed Central
reference URL
https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3882901
retrieved
2 October 2018
“Human Non-Subjects Research”: Privacy and Compliance
1 reference
stated in
Crossref
reference URL
https://api.crossref.org/works/10.2217%2FPME.13.34
retrieved
21 January 2018
Identifiers
DOI
10.2217/PME.13.34
1 reference
stated in
Europe PubMed Central
PMC publication ID
3882901
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:24416062%20AND%20SRC:MED&resulttype=core&format=json
retrieved
5 March 2020
PMC publication ID
3882901
1 reference
stated in
Europe PubMed Central
PMC publication ID
3882901
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:24416062%20AND%20SRC:MED&resulttype=core&format=json
retrieved
5 March 2020
PubMed publication ID
24416062
1 reference
stated in
Europe PubMed Central
PMC publication ID
3882901
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:24416062%20AND%20SRC:MED&resulttype=core&format=json
retrieved
5 March 2020
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