(Q39439391)

12 September 2017

title

Residual newborn screening samples for research: parental information needs for decision-making (English)

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12 September 2017

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4

Jeffrey R Botkin

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12 September 2017

Erin Rothwell

1

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12 September 2017

Lauren Clark

series ordinal

2

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12 September 2017

Rebecca Anderson

series ordinal

3

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12 September 2017

publication date

5 March 2013

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Journal for Specialists in Pediatric Nursing

12 September 2017

published in

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12 September 2017

volume

18

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12 September 2017

issue

2

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12 September 2017

page(s)

115-122

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Newborn screening: ethical, legal, and social implications

12 September 2017

cites work

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https://api.crossref.org/works/10.1111%2FJSPN.12017

Public attitudes regarding the use of residual newborn screening specimens for research

21 January 2018

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https://api.crossref.org/works/10.1111%2FJSPN.12017

Informed consent for genetic research on stored tissue samples

21 January 2018

1 reference

https://api.crossref.org/works/10.1111%2FJSPN.12017

Maintaining your focus in focus groups: avoiding common mistakes.

21 January 2018

1 reference

https://api.crossref.org/works/10.1111%2FJSPN.12017

The qualitative content analysis process

21 January 2018

1 reference

https://api.crossref.org/works/10.1111%2FJSPN.12017

Informed consent for genetic research

21 January 2018

1 reference

https://api.crossref.org/works/10.1111%2FJSPN.12017

State laws regarding the retention and use of residual newborn screening blood samples

21 January 2018

1 reference

https://api.crossref.org/works/10.1111%2FJSPN.12017

Policy issues and stakeholder concerns regarding the storage and use of residual newborn dried blood samples for research

21 January 2018

1 reference

https://api.crossref.org/works/10.1111%2FJSPN.12017

Assessing public attitudes on the retention and use of residual newborn screening blood samples: a focus group study

21 January 2018

1 reference

https://api.crossref.org/works/10.1111%2FJSPN.12017

Informing parents about newborn screening

21 January 2018

1 reference

https://api.crossref.org/works/10.1111%2FJSPN.12017

Information and consent for newborn screening: practices and attitudes of service providers

21 January 2018

1 reference

https://api.crossref.org/works/10.1111%2FJSPN.12017

Informing parents about expanded newborn screening: influences on provider involvement

21 January 2018

1 reference

https://api.crossref.org/works/10.1111%2FJSPN.12017

The problem of rigor in qualitative research

21 January 2018

1 reference

12 December 2020

Informed consent, parental permission, and assent in pediatric practice. Committee on Bioethics, American Academy of Pediatrics

1 reference

12 December 2020

Qualitative content analysis: a guide to paths not taken

1 reference

12 December 2020

Serving the family from birth to the medical home. Newborn screening: a blueprint for the future - a call for a national agenda on state newborn screening programs

1 reference

12 December 2020

A seat at the table: membership in federal advisory committees evaluating public policy in genetics

1 reference

12 December 2020

Storing newborn blood spots: modern controversies

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12 December 2020

Recommendations for effective newborn screening communication: results of focus groups with parents, providers, and experts

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12 December 2020

Identifiers

DOI

10.1111/JSPN.12017

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12 September 2017

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