(Q57778792)

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

Course of distress experienced by persons at risk for an autosomal dominant inheritable disorder participating in a predictive testing program: an explorative study. Rotterdam/Leiden Genetics Workgroup

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

The psychological complexity of predictive testing for late onset neurogenetic diseases and hereditary cancers: implications for multidisciplinary counselling and for genetic education.

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

Familial disease with a risk of sudden death: a longitudinal study of the psychological consequences of predictive testing for long QT syndrome.

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

Genetic susceptibility testing for neurodegenerative diseases: ethical and practice issues

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

Disclosing genetic test results to family members

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

Impact of genetic testing for Huntington disease on the family system

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

Redefinition: coping with normal results from predictive gene testing for neurodegenerative disorders

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

Predictive testing for Huntington disease in Canada: adverse effects and unexpected results in those receiving a decreased risk

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

Personal factors associated with reported benefits of Huntington disease family history or genetic testing

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

A worldwide assessment of the frequency of suicide, suicide attempts, or psychiatric hospitalization after predictive testing for Huntington disease.

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

Psychological consequences and predictors of adverse events in the first 5 years after predictive testing for Huntington's disease.

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

Reactions to predictive testing in Huntington disease: case reports of coping with a new genetic status

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

Reluctance to undergo predictive testing: the case of Huntington disease

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

Decreasing uptake of predictive testing for Huntington's disease in a German centre: 12 years' experience (1993-2004).

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

Problems assessing uptake of Huntington disease predictive testing and a proposed solution

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

Fifteen years of experience in predictive testing for Huntington disease at a single testing center in Victoria, Australia

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

Attitudes of persons at risk for Huntington disease toward predictive testing

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

Presymptomatic testing for Huntington's disease in the United Kingdom. The United Kingdom Huntington's Disease Prediction Consortium

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

Predictive testing for Huntington disease: II. Demographic characteristics, life-style patterns, attitudes, and psychosocial assessments of the first fifty-one test candidates

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

Paradox of a better test for Huntington's disease

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

Predictive genetic testing for BRCA1/2 in a UK clinical cohort: three-year follow-up

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

Psychological distress and quality of life associated with genetic testing for breast cancer risk.

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

Adverse psychological events occurring in the first year after predictive testing for Huntington's disease. The Canadian Collaborative Study Predictive Testing

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

Presymptomatic DNA testing for Huntington disease: identifying the need for psychological intervention

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

Loss of self: a fundamental form of suffering in the chronically ill.

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

An evaluation of needs of female BRCA1 and BRCA2 carriers undergoing genetic counselling

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

"Social separation" among women under 40 years of age diagnosed with breast cancer and carrying a BRCA1 or BRCA2 mutation

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

Increasing the use of 'smart' pump drug libraries by nurses: a continuous quality improvement project

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

The impact of social and personal resources on psychological distress in women at risk for hereditary breast cancer.

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

Life trajectories, genetic testing, and risk reduction decisions in 18-39 year old women at risk for hereditary breast and ovarian cancer

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

Beating the biological clock: the compressed family life cycle of young women with BRCA gene alterations

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

Conditions and Consequences of a <i>BRCA</i> Mutation in Young, Single Women of Childbearing Age

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

Guidelines for disclosing genetic information to family members: from development to use.

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

Testing the children: do non-genetic health-care providers differ in their decision to advise genetic presymptomatic testing on minors? A cross-sectional study in five countries in the European Union.

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

Formal and informal support needs of young women with BRCA mutations.

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

The Theory of Genetic Vulnerability: a Roy model exemplar

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

"In sickness and in health"? Disclosures of genetic risks in dating

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

A gift or a yoke? Women's and men's responses to genetic risk information from BRCA1 and BRCA2 testing.

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

Learning to Stand Alone: The Contemporary American Transition to Adulthood in Cultural and Historical Context

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

Emerging adulthood: A theory of development from the late teens through the twenties.

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

"Am I my genes?": Questions of identity among individuals confronting genetic disease

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

Recommendations for returning genomic incidental findings? We need to talk!

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

Exploring concordance and discordance for return of incidental findings from clinical sequencing

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

Incidental findings in clinical genomics: a clarification

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7

To Tell or Not to Tell: Mandating Disclosure of Genetic Testing Results

21 January 2018

1 reference

https://api.crossref.org/works/10.1007%2FS40142-014-0053-7