(Q34211470)

31 July 2017

title

Personal factors associated with reported benefits of Huntington disease family history or genetic testing (English)

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31 July 2017

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Janet K Williams

1

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Jane S. Paulsen

object named as

Jane S Paulsen

6

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author name string

Cheryl Erwin

2

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31 July 2017

Andrew Juhl

3

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31 July 2017

James Mills

4

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31 July 2017

Bradley Brossman

5

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31 July 2017

I-RESPOND-HD Investigators of the Huntington Study Group

7

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31 July 2017

publication date

19 August 2010

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Genetic Testing and Molecular Biomarkers

31 July 2017

published in

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31 July 2017

volume

14

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31 July 2017

issue

5

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31 July 2017

page(s)

629-636

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In their own words: reports of stigma and genetic discrimination by people at risk for Huntington disease in the International RESPOND-HD study

31 July 2017

cites work

1 reference

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5 July 2018

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"Frontal" behaviors before the diagnosis of Huntington's disease and their relationship to markers of disease progression: evidence of early lack of awareness

5 July 2018

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5 July 2018

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Evaluating the interplay between spirituality, personality and stress

5 July 2018

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The role of spirituality in the relationship between religiosity and depression in prostate cancer patients

5 July 2018

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Perceptions of genetic discrimination among people at risk for Huntington's disease: a cross sectional survey

5 July 2018

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Long-term outcome of presymptomatic testing in Huntington disease

5 July 2018

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"You're one of us now": young people describe their experiences of predictive genetic testing for Huntington disease (HD) and familial adenomatous polyposis (FAP).

5 July 2018

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Perceptions of discrimination among persons who have undergone predictive testing for Huntington's disease

5 July 2018

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Predictive testing for Huntington's disease.

5 July 2018

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Predictive testing for Huntington's disease: relationship with partners after testing

5 July 2018

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5 July 2018

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Psychological impact of genetic testing for Huntington's disease: an update of the literature

5 July 2018

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Whatever happened to qualitative description?

5 July 2018

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Physicians and patient spirituality: professional boundaries, competency, and ethics

5 July 2018

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Predicting adaptation to presymptomatic DNA testing for late onset disorders: who will experience distress? Rotterdam Leiden Genetics Workgroup

5 July 2018

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Distinguishing optimism from neuroticism (and trait anxiety, self-mastery, and self-esteem): a reevaluation of the Life Orientation Test

5 July 2018

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A life-span theory of control

5 July 2018

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Managing and analyzing qualitative data. A description of tasks, techniques, and materials

5 July 2018

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The MOS 36-ltem Short-Form Health Survey (SF-36)

5 July 2018

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Predictive testing for Huntington disease in Canada: the experience of those receiving an increased risk

5 July 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2957234

Impact of Event Scale: A Measure of Subjective Stress

5 July 2018

1 reference

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Religiousness/spirituality and health behaviors in younger adult cancer survivors: does faith promote a healthier lifestyle?

5 July 2018

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Existential well-being predicts perceived control in adults with heart failure

28 October 2018

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Well-being of family caregivers of persons with late-stage Huntington's disease: lessons in stress and coping.

28 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2957234

Verification of consumers' experiences and perceptions of genetic discrimination and its impact on utilization of genetic testing

28 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2957234

The impact of Huntington's disease on family life.

28 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2957234

The complexity of reproductive decision-making in asymptomatic carriers of the Huntington mutation

28 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2957234

At risk for Huntington disease: The PHAROS (Prospective Huntington At Risk Observational Study) cohort enrolled

28 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2957234

Preparing for preventive clinical trials: the Predict-HD study

28 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2957234

Attachment in families with Huntington's disease. A paradigm in clinical genetics

28 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2957234

Gender differences in attitudes among those at risk for Huntington's disease

28 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2957234

Using Focus Groups to Develop Culturally Relevant Instruments

28 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2957234

Psychological distress in the 5-year period after predictive testing for Huntington's disease

28 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2957234

Assessment of cognitive coping styles: a closer look at situation-response inventories.

28 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2957234

The MOS 36-Item Short-Form Health Survey (SF-36): II. Psychometric and clinical tests of validity in measuring physical and mental health constructs.

28 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2957234

Self-selection in predictive testing for Huntington's disease

28 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2957234

Monitoring and blunting: validation of a questionnaire to assess styles of information seeking under threat

28 October 2018

1 reference

12 December 2020

Fear of health insurance loss among individuals at risk for Huntington disease

1 reference

12 December 2020

Predictive genetic test decisions for Huntington's disease: context, appraisal and new moral imperatives

1 reference

12 December 2020

Measurement and Some Correlates of Need-Cognition

1 reference

12 December 2020

Mental health and quality of life after genetic testing for Huntington disease: A long-term effect study in Germany

1 reference

12 December 2020

Identifiers

DOI

10.1089/GTMB.2010.0065

1 reference

31 July 2017

1 reference

31 July 2017

1 reference