(Q34561966)

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In their own words: reports of stigma and genetic discrimination by people at risk for Huntington disease in the International RESPOND-HD study

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scholarly article

1 reference

Europe PubMed Central

PubMed publication ID

3 August 2017

In their own words: reports of stigma and genetic discrimination by people at risk for Huntington disease in the International RESPOND-HD study (English)

1 reference

Europe PubMed Central

PubMed publication ID

3 August 2017

Huntington's disease

0 references

Kimberly Quaid de Cordon

7

object named as

Kimberly Quaid

0 references

Michelle A Mengeling

object named as

Michelle Mengeling

4

0 references

Janet K. Williams

object named as

Janet K Williams

1

0 references

Jane S. Paulsen

object named as

Jane S Paulsen

10

0 references

Michael R. Hayden

object named as

Michael R Hayden

6

0 references

Sandra D Taylor

9

object named as

Sandra Taylor

1 reference

Europe PubMed Central

PubMed publication ID

3 August 2017

8

object named as

Ira Shoulson

1 reference

Europe PubMed Central

PubMed publication ID

3 August 2017

author name string

Cheryl Erwin

2

1 reference

Europe PubMed Central

PubMed publication ID

3 August 2017

Andrew R Juhl

3

1 reference

Europe PubMed Central

PubMed publication ID

3 August 2017

Yvonne Bombard

5

1 reference

Europe PubMed Central

PubMed publication ID

3 August 2017

Kimberly Quaid

7

1 reference

Europe PubMed Central

PubMed publication ID

3 August 2017

I-RESPOND-HD Investigators of the Huntington Study Group

11

1 reference

Europe PubMed Central

PubMed publication ID

3 August 2017

language of work or name

1 reference

based on heuristic

inferred from title

publication date

1 September 2010

1 reference

Europe PubMed Central

PubMed publication ID

3 August 2017

American Journal of Medical Genetics Part B: Neuropsychiatric Genetics

1 reference

Europe PubMed Central

PubMed publication ID

3 August 2017

153B

1 reference

Europe PubMed Central

PubMed publication ID

3 August 2017

6

1 reference

Europe PubMed Central

PubMed publication ID

3 August 2017

1150-1159

1 reference

Europe PubMed Central

PubMed publication ID

3 August 2017

Perception, experience, and response to genetic discrimination in Huntington disease: the international RESPOND-HD study

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3035936

7 July 2018

Perceptions of genetic discrimination among people at risk for Huntington's disease: a cross sectional survey

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3035936

7 July 2018

The emotional experiences of family carers in Huntington disease

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3035936

7 July 2018

Obsessive and compulsive symptoms in prediagnosed Huntington's disease

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3035936

7 July 2018

Investigating genetic discrimination in Australia: a large-scale survey of clinical genetics clients

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3035936

7 July 2018

Detection of Huntington's disease decades before diagnosis: the Predict-HD study

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3035936

7 July 2018

Engagement with genetic discrimination: concerns and experiences in the context of Huntington disease

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3035936

7 July 2018

Perceptions of discrimination among persons who have undergone predictive testing for Huntington's disease

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3035936

7 July 2018

Managing genetic discrimination: strategies used by individuals found to have the Huntington disease mutation

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3035936

7 July 2018

Uncommon dementia and the carer's perspective

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3035936

7 July 2018

Methodological considerations in the study of genetic discrimination

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3035936

7 July 2018

Cognitive interviewing: verbal data in the design and pretesting of questionnaires

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3035936

7 July 2018

Whatever happened to qualitative description?

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3035936

7 July 2018

Managing and analyzing qualitative data. A description of tasks, techniques, and materials

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3035936

7 July 2018

Clinical markers of early disease in persons near onset of Huntington's disease.

1 reference

https://api.crossref.org/works/10.1002%2FAJMG.B.31080

21 January 2018

Verification of consumers' experiences and perceptions of genetic discrimination and its impact on utilization of genetic testing

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3035936

27 October 2018

At risk for Huntington disease: The PHAROS (Prospective Huntington At Risk Observational Study) cohort enrolled

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3035936

27 October 2018

Preparing for preventive clinical trials: the Predict-HD study

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3035936

27 October 2018

Is there a pink slip in my gene? Genetic discrimination in the workplace.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3035936

27 October 2018

Fear of health insurance loss among individuals at risk for Huntington disease

1 reference

https://pubmed.ncbi.nlm.nih.gov/20468062

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

What is genetic discrimination, and when and how can it be prevented?

1 reference

https://pubmed.ncbi.nlm.nih.gov/20468062

12 December 2020

based on heuristic

inferred from PubMed ID database lookup

Identifiers

10.1002/AJMG.B.31080

1 reference

Europe PubMed Central

PubMed publication ID

3 August 2017

PMC publication ID

1 reference

Europe PubMed Central

PubMed publication ID

3 August 2017

PubMed publication ID

1 reference

Europe PubMed Central

PubMed publication ID

3 August 2017

ResearchGate publication ID

0 references

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