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English
Empowerment of patients: lessons from the rare diseases community
scientific article published on 01 June 2008
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instance of
scholarly article
1 reference
stated in
Europe PubMed Central
PubMed publication ID
18555918
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:18555918%20AND%20SRC:MED&resulttype=core&format=json
retrieved
9 January 2020
title
Empowerment of patients: lessons from the rare diseases community
(English)
1 reference
stated in
Europe PubMed Central
PubMed publication ID
18555918
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:18555918%20AND%20SRC:MED&resulttype=core&format=json
retrieved
9 January 2020
main subject
rare disease
1 reference
based on heuristic
inferred from title
author
Ségolène Aymé
series ordinal
1
object named as
Ségolène Aymé
1 reference
stated in
Europe PubMed Central
PubMed publication ID
18555918
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:18555918%20AND%20SRC:MED&resulttype=core&format=json
retrieved
9 January 2020
author name string
Anna Kole
series ordinal
2
1 reference
stated in
Europe PubMed Central
PubMed publication ID
18555918
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:18555918%20AND%20SRC:MED&resulttype=core&format=json
retrieved
9 January 2020
Stephen Groft
series ordinal
3
1 reference
stated in
Europe PubMed Central
PubMed publication ID
18555918
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:18555918%20AND%20SRC:MED&resulttype=core&format=json
retrieved
9 January 2020
language of work or name
English
0 references
publication date
1 June 2008
1 reference
stated in
Europe PubMed Central
PubMed publication ID
18555918
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:18555918%20AND%20SRC:MED&resulttype=core&format=json
retrieved
9 January 2020
published in
The Lancet
1 reference
stated in
Europe PubMed Central
PubMed publication ID
18555918
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:18555918%20AND%20SRC:MED&resulttype=core&format=json
retrieved
9 January 2020
volume
371
1 reference
stated in
Europe PubMed Central
PubMed publication ID
18555918
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:18555918%20AND%20SRC:MED&resulttype=core&format=json
retrieved
9 January 2020
issue
9629
1 reference
stated in
Europe PubMed Central
PubMed publication ID
18555918
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:18555918%20AND%20SRC:MED&resulttype=core&format=json
retrieved
9 January 2020
page(s)
2048-2051
1 reference
stated in
Europe PubMed Central
PubMed publication ID
18555918
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:18555918%20AND%20SRC:MED&resulttype=core&format=json
retrieved
9 January 2020
cites work
The coming third health care revolution: personal empowerment
1 reference
stated in
Crossref
reference URL
https://api.crossref.org/works/10.1016%2FS0140-6736%2808%2960875-2
retrieved
7 January 2021
based on heuristic
inferred from DOI database lookup
A policy analysis of the Expert Patient in the United Kingdom: self-care as an expression of pastoral power?
1 reference
stated in
Crossref
reference URL
https://api.crossref.org/works/10.1016%2FS0140-6736%2808%2960875-2
retrieved
7 January 2021
based on heuristic
inferred from DOI database lookup
Virtually he@lthy: the impact of internet use on disease experience and the doctor-patient relationship.
1 reference
stated in
Crossref
reference URL
https://api.crossref.org/works/10.1016%2FS0140-6736%2808%2960875-2
retrieved
7 January 2021
based on heuristic
inferred from DOI database lookup
The 'expert patient': empowerment or medical dominance? The case of weight loss, pharmaceutical drugs and the Internet.
1 reference
stated in
Crossref
reference URL
https://api.crossref.org/works/10.1016%2FS0140-6736%2808%2960875-2
retrieved
7 January 2021
based on heuristic
inferred from DOI database lookup
Patient empowerment and the dilemmas of late-modern medicalisation
1 reference
stated in
Crossref
reference URL
https://api.crossref.org/works/10.1016%2FS0140-6736%2808%2960875-2
retrieved
7 January 2021
based on heuristic
inferred from DOI database lookup
The role of an online community for people with a rare disease: content analysis of messages posted on a primary biliary cirrhosis mailinglist
1 reference
stated in
Crossref
reference URL
https://api.crossref.org/works/10.1016%2FS0140-6736%2808%2960875-2
retrieved
7 January 2021
based on heuristic
inferred from DOI database lookup
Genetics. Patient advocate named co-inventor on patent for the PXE disease gene
1 reference
stated in
Crossref
reference URL
https://api.crossref.org/works/10.1016%2FS0140-6736%2808%2960875-2
retrieved
7 January 2021
based on heuristic
inferred from DOI database lookup
Recurrent de novo point mutations in lamin A cause Hutchinson–Gilford progeria syndrome
1 reference
stated in
Crossref
reference URL
https://api.crossref.org/works/10.1016%2FS0140-6736%2808%2960875-2
retrieved
7 January 2021
based on heuristic
inferred from DOI database lookup
Germline mutations in genes within the MAPK pathway cause cardio-facio-cutaneous syndrome
1 reference
stated in
Crossref
reference URL
https://api.crossref.org/works/10.1016%2FS0140-6736%2808%2960875-2
retrieved
7 January 2021
based on heuristic
inferred from DOI database lookup
Germline KRAS and BRAF mutations in cardio-facio-cutaneous syndrome
1 reference
stated in
Crossref
reference URL
https://api.crossref.org/works/10.1016%2FS0140-6736%2808%2960875-2
retrieved
7 January 2021
based on heuristic
inferred from DOI database lookup
The common problem of rare disease in general practice
1 reference
stated in
Crossref
reference URL
https://api.crossref.org/works/10.1016%2FS0140-6736%2808%2960875-2
retrieved
7 January 2021
based on heuristic
inferred from DOI database lookup
From representation to mediation: the shaping of collective mobilization on muscular dystrophy in France
1 reference
stated in
Crossref
reference URL
https://api.crossref.org/works/10.1016%2FS0140-6736%2808%2960875-2
retrieved
7 January 2021
based on heuristic
inferred from DOI database lookup
The struggle against neuromuscular diseases in France and the emergence of the “partnership model” of patient organisation
1 reference
stated in
Crossref
reference URL
https://api.crossref.org/works/10.1016%2FS0140-6736%2808%2960875-2
retrieved
7 January 2021
based on heuristic
inferred from DOI database lookup
Identifiers
DOI
10.1016/S0140-6736(08)60875-2
1 reference
stated in
Europe PubMed Central
PubMed publication ID
18555918
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:18555918%20AND%20SRC:MED&resulttype=core&format=json
retrieved
9 January 2020
PubMed publication ID
18555918
1 reference
stated in
Europe PubMed Central
PubMed publication ID
18555918
reference URL
https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:18555918%20AND%20SRC:MED&resulttype=core&format=json
retrieved
9 January 2020
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