(Q94476301)

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Creating Accessible Survey Instruments for Use with Autistic Adults and People with Intellectual Disability: Lessons Learned and Recommendations

scientific article published on 11 March 2020

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scholarly article

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Europe PubMed Central

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https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:32355908%20AND%20SRC:MED&resulttype=core&format=json

15 May 2020

Creating Accessible Survey Instruments for Use with Autistic Adults and People with Intellectual Disability: Lessons Learned and Recommendations (English)

1 reference

Europe PubMed Central

PMC publication ID

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:32355908%20AND%20SRC:MED&resulttype=core&format=json

15 May 2020

intellectual disability

1 reference

based on heuristic

inferred from title

lessons learned

1 reference

based on heuristic

inferred from title

disability affecting intellectual abilities

1 reference

based on heuristic

inferred from title

1 reference

based on heuristic

inferred from title

author name string

Christina Nicolaidis

1

1 reference

Europe PubMed Central

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https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:32355908%20AND%20SRC:MED&resulttype=core&format=json

15 May 2020

Dora M Raymaker

2

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https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:32355908%20AND%20SRC:MED&resulttype=core&format=json

15 May 2020

Katherine E McDonald

3

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https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:32355908%20AND%20SRC:MED&resulttype=core&format=json

15 May 2020

Emily M Lund

4

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15 May 2020

Sandra Leotti

5

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15 May 2020

Steven K Kapp

6

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15 May 2020

Marsha Katz

7

1 reference

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15 May 2020

Leanne M Beers

8

1 reference

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15 May 2020

Clarissa Kripke

9

1 reference

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15 May 2020

Joelle Maslak

10

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15 May 2020

Morrigan Hunter

11

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15 May 2020

Kelly Y Zhen

12

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15 May 2020

language of work or name

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publication date

11 March 2020

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15 May 2020

Autism in Adulthood

1 reference

Europe PubMed Central

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https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:32355908%20AND%20SRC:MED&resulttype=core&format=json

15 May 2020

2

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15 May 2020

1

1 reference

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https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:32355908%20AND%20SRC:MED&resulttype=core&format=json

15 May 2020

61-76

1 reference

Europe PubMed Central

PMC publication ID

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:32355908%20AND%20SRC:MED&resulttype=core&format=json

15 May 2020

Development of the AASPIRE Web Accessibility Guidelines for Autistic Web Users

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=7188318

11 February 2021

The Vulnerability Experiences Quotient (VEQ): A Study of Vulnerability, Mental Health and Life Satisfaction in Autistic Adults

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=7188318

11 February 2021

The AASPIRE practice-based guidelines for the inclusion of autistic adults in research as co-researchers and study participants

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=7188318

11 February 2021

Measurement properties of tools used to assess suicidality in autistic and general population adults: A systematic review

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=7188318

11 February 2021

Measurement properties of tools used to assess depression in adults with and without autism spectrum conditions: A systematic review

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=7188318

11 February 2021

Enhancing the Validity of a Quality of Life Measure for Autistic People

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=7188318

11 February 2021

Reflections of a community-based participatory researcher from the intersection of disability advocacy, engineering, and the academy

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=7188318

11 February 2021

Autism spectrum disorder: outcomes in adulthood.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=7188318

11 February 2021

Barriers to healthcare: Instrument development and comparison between autistic adults and adults with and without other disabilities.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=7188318

11 February 2021

A scoping review of what is known of the physical health of adults with autism spectrum disorder.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=7188318

11 February 2021

Longitudinal Predictors of Outcomes for Adults With Autism Spectrum Disorder: Systematic Review

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=7188318

11 February 2021

Is Safety in the Eye of the Beholder? Safeguards in Research With Adults With Intellectual Disability.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=7188318

11 February 2021

The Development and Evaluation of an Online Healthcare Toolkit for Autistic Adults and their Primary Care Providers

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=7188318

11 February 2021

A systematic review and meta-analysis of the long-term overall outcome of autism spectrum disorders in adolescence and adulthood.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=7188318

11 February 2021

Community-Based Participatory Research to Adapt Health Measures for Use by People With Developmental Disabilities

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=7188318

11 February 2021

The Role of Gender in Violence Experienced by Adults With Developmental Disabilities

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=7188318

11 February 2021

"Respect the way I need to communicate with you": Healthcare experiences of adults on the autism spectrum

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=7188318

11 February 2021

Primary care for adults on the autism spectrum

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=7188318

11 February 2021

Assessing the influence of researcher-partner involvement on the process and outcomes of participatory research in autism spectrum disorder and neurodevelopmental disorders: a scoping review

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=7188318

11 February 2021

Development of an audio-computer assisted self-interview to investigate violence and health in the lives of adults with developmental disabilities

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=7188318

11 February 2021

Paradigm shifts in disability and health: toward more ethical public health research

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=7188318

11 February 2021

Comparison of healthcare experiences in autistic and non-autistic adults: a cross-sectional online survey facilitated by an academic-community partnership

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=7188318

11 February 2021

A systematic review of vocational interventions for young adults with autism spectrum disorders

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=7188318

11 February 2021

Services for adults with an autism spectrum disorder

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=7188318

11 February 2021

Collaboration strategies in nontraditional community-based participatory research partnerships: lessons from an academic−community partnership with autistic self-advocates

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=7188318

11 February 2021

Summary health statistics for U.S. adults: National Health Interview Survey, 2007.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=7188318

11 February 2021

Development of measures of abuse among women with disabilities and the characteristics of their perpetrators

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=7188318

11 February 2021

AUDIT-C as a brief screen for alcohol misuse in primary care.

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=7188318

11 February 2021

Comparing health and health care use in Canada and the United States

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=7188318

11 February 2021

Secondary conditions in a community-based sample of women with physical disabilities over a 1-year period

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=7188318

11 February 2021

The PHQ-15: validity of a new measure for evaluating the severity of somatic symptoms

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=7188318

11 February 2021

Effect of a self-management program on patients with chronic disease

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=7188318

11 February 2021

Screening for depression in the older adult: criterion validity of the 10-item Center for Epidemiological Studies Depression Scale (CES-D)

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=7188318

11 February 2021

Relationship of childhood abuse and household dysfunction to many of the leading causes of death in adults. The Adverse Childhood Experiences (ACE) Study

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=7188318

11 February 2021

Psychometric properties of the PTSD Checklist (PCL)

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=7188318

11 February 2021

Screening for depression in well older adults: evaluation of a short form of the CES-D (Center for Epidemiologic Studies Depression Scale)

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=7188318

11 February 2021

A global measure of perceived stress

1 reference

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11 February 2021

The CAGE questionnaire: validation of a new alcoholism screening instrument

1 reference

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11 February 2021

The MOS social support survey

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=7188318

11 February 2021

Identifiers

10.1089/AUT.2019.0074

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Europe PubMed Central

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https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:32355908%20AND%20SRC:MED&resulttype=core&format=json

15 May 2020

PMC publication ID

1 reference

Europe PubMed Central

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https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:32355908%20AND%20SRC:MED&resulttype=core&format=json

15 May 2020

PubMed publication ID

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Europe PubMed Central

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https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:32355908%20AND%20SRC:MED&resulttype=core&format=json

15 May 2020

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