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Rare disease research: Breaking the privacy barrier
scientific article
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instance of
scholarly article
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title
Rare disease research: Breaking the privacy barrier
(English)
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main subject
rare disease
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data sharing
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author
Deborah Mascalzoni
series ordinal
1
object named as
Deborah Mascalzoni
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author name string
Angelo Paradiso
series ordinal
2
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Matts Hansson
series ordinal
3
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language of work or name
English
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publication date
1 June 2014
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published in
Applied & translational genomics
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stated in
Crossref
volume
3
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issue
2
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page(s)
23-9
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cites work
Informed consent in the genomics era
1 reference
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PubMed Central
reference URL
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Genetics. No longer de-identified
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PubMed Central
reference URL
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The tension between data sharing and the protection of privacy in genomics research
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7 April 2017
From patients to partners: participant-centric initiatives in biomedical research
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7 April 2017
Balancing the risks and benefits of genomic data sharing: genome research participants' perspectives
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7 April 2017
Genomics really gets personal: how exome and whole genome sequencing challenge the ethical framework of human genetics research
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Fast and accurate genotype imputation in genome-wide association studies through pre-phasing
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Rare diseases and now rare data?
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Where should we draw the line between quality of care and other ethical concerns related to medical registries and biobanks?
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Does consent bias research?
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The Havasupai Indian tribe case--lessons for research involving stored biologic samples.
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Convention for the protection of human rights and dignity of the human being with regard to the application of biology and medicine: convention on human rights and biomedicine (adopted by the Committee of Ministers on 19 November 1996). Council of E
1 reference
stated in
PubMed
reference URL
https://pubmed.ncbi.nlm.nih.gov/27275410
retrieved
12 December 2020
based on heuristic
inferred from PubMed ID database lookup
Identifiers
DOI
10.1016/J.ATG.2014.04.003
1 reference
stated in
Consolidated OpenCitations Corpus – April 2017
OpenCitations bibliographic resource ID
3063004
OpenCitations bibliographic resource ID
3063004
1 reference
stated in
Consolidated OpenCitations Corpus – April 2017
OpenCitations bibliographic resource ID
3063004
PMC publication ID
4882025
0 references
PubMed publication ID
27275410
0 references
ResearchGate publication ID
261717327
0 references
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