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The tension between data sharing and the protection of privacy in genomics research
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PubMed
title
The tension between data sharing and the protection of privacy in genomics research
(English)
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stated in
PubMed
main subject
data sharing
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data ethics
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information privacy
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genomics
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author
Jane Kaye
series ordinal
1
object named as
Jane Kaye
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language of work or name
English
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PubMed
publication date
2012
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PubMed
published in
Annual Review of Genomics and Human Genetics
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PubMed
volume
13
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PubMed
issue
1
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page(s)
415-31
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PubMed
cites work
From single biobanks to international networks: developing e-governance
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Prepublication data sharing
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PubMed Central
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Data sharing in genomics--re-shaping scientific practice
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DNA data sharing: research participants' perspectives
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Genome-wide association study of 14,000 cases of seven common diseases and 3,000 shared controls
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21 March 2017
Genomics and privacy: implications of the new reality of closed data for the field
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21 March 2017
Data sharing: not as simple as it seems
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Genomics really gets personal: how exome and whole genome sequencing challenge the ethical framework of human genetics research
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Temporal trends in results availability from genome-wide association studies
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Who shares? Who doesn't? Factors associated with openly archiving raw research data
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Ethical and practical challenges of sharing data from genome-wide association studies: the eMERGE Consortium experience
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21 March 2017
The eMERGE Network: a consortium of biorepositories linked to electronic medical records data for conducting genomic studies
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21 March 2017
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21 March 2017
Technical and policy approaches to balancing patient privacy and data sharing in clinical and translational research
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Public access to genome-wide data: five views on balancing research with privacy and protection
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21 March 2017
Recommendations from the 2008 International Summit on Proteomics Data Release and Sharing Policy: the Amsterdam principles
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21 March 2017
Size matters: just how big is BIG?: Quantifying realistic sample size requirements for human genome epidemiology
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New models of collaboration in genome-wide association studies: the Genetic Association Information Network
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Genomics, health care, and society
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Glad you asked: participants' opinions of re-consent for dbGap data submission
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An investigation of patients' motivations for their participation in genetics-related research
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Human genomes, public and private
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Free genome databases finally defeat Celera
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What makes a good genetic association study?
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Deeper into the genome
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Health-information altruists--a potentially critical resource
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Commentary: How small is small?
1 reference
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retrieved
12 December 2020
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Human genome at ten: Science after the sequence
1 reference
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A focus on personal genomics
1 reference
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reference URL
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Identifiers
DOI
10.1146/ANNUREV-GENOM-082410-101454
1 reference
stated in
Consolidated OpenCitations Corpus – April 2017
OpenCitations bibliographic resource ID
1605978
OpenCitations bibliographic resource ID
1605978
1 reference
stated in
Consolidated OpenCitations Corpus – April 2017
OpenCitations bibliographic resource ID
1605978
PMC publication ID
4337968
1 reference
stated in
Consolidated OpenCitations Corpus – April 2017
OpenCitations bibliographic resource ID
1605978
PubMed publication ID
22404490
1 reference
stated in
Consolidated OpenCitations Corpus – April 2017
OpenCitations bibliographic resource ID
1605978
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