(Q28659644)

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Attitudes of Canadian researchers toward the return to participants of incidental and targeted genomic findings obtained in a pediatric research setting

scientific article (publication date: July 2013)

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scholarly article

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Attitudes of Canadian researchers toward the return to participants of incidental and targeted genomic findings obtained in a pediatric research setting (English)

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Bartha Knoppers

4

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Bartha M Knoppers

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8

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Nada Jabado

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3

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Denise Avard

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9

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Kym Boycott

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6

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Eric Bouffet

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Conrad V Fernandez

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object named as

Conrad V Fernandez

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Colleen M O'Connell

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Colleen O'Connell

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7

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David Malkin

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author name string

Caron Strahlendorf

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Poul H Sorensen

10

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language of work or name

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publication date

July 2013

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Genetics in Medicine

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15

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7

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558-64

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Genomics really gets personal: how exome and whole genome sequencing challenge the ethical framework of human genetics research

1 reference

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17 March 2017

Ethical and practical challenges of sharing data from genome-wide association studies: the eMERGE Consortium experience

1 reference

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Genomic medicine--an updated primer

1 reference

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17 March 2017

Research ethics recommendations for whole-genome research: consensus statement

1 reference

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17 March 2017

Research ethics and the challenge of whole-genome sequencing

1 reference

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17 March 2017

Rapid whole-genome sequencing for genetic disease diagnosis in neonatal intensive care units

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3910293

3 June 2018

Managing incidental findings and research results in genomic research involving biobanks and archived data sets

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3910293

3 June 2018

Exploring concordance and discordance for return of incidental findings from clinical sequencing

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3910293

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Intersection of biobanking and clinical care: should discrepant diagnoses and pathological findings be returned to research participants?

1 reference

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3 June 2018

Charting a course for genomic medicine from base pairs to bedside

1 reference

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3 June 2018

Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group

1 reference

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3 June 2018

Researcher Perspectives on Disclosure of Incidental Findings in Genetic Research

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3910293

3 June 2018

Offering individual genetic research results: context matters

1 reference

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3 June 2018

IRB Chairs' Perspectives on Genomics Research Involving Stored Biological Materials: Ethical Concerns and Proposed Solutions.

1 reference

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Researchers' preferences and attitudes on ethical aspects of genomics research: a comparative study between the USA and Spain

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3910293

3 June 2018

Managing incidental findings in human subjects research: analysis and recommendations

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3910293

3 June 2018

Communicating the results of clinical research to participants: attitudes, practices, and future directions

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3910293

3 June 2018

Ethical issues arising from the participation of children in genetic research

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=3910293

3 June 2018

Disclosing individual results of clinical research: implications of respect for participants

1 reference

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Providing research results to study participants: support versus practice of researchers presenting at the American Society of Hematology annual meeting

1 reference

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Genetic testing and the clinical laboratory improvement amendments of 1988: present and future

1 reference

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3 June 2018

International normative perspectives on the return of individual research results and incidental findings in genomic biobanks

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2012.183

21 January 2018

Personalized genomic information: preparing for the future of genetic medicine

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2012.183

21 January 2018

Reporting genetic results in research studies: summary and recommendations of an NHLBI working group.

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2012.183

21 January 2018

Familial communication of research results: a need to know?

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2012.183

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An empirical examination of the management of return of individual research results and incidental findings in genomic biobanks

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2012.183

21 January 2018

Obligations in Offering to Disclose Genetic Research Results

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2012.183

21 January 2018

Paediatric biobanks: what makes them so unique?

1 reference

https://api.crossref.org/works/10.1038%2FGIM.2012.183

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Deploying whole genome sequencing in clinical practice and public health: meeting the challenge one bin at a time

1 reference

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Do patients participating in clinical trials want to know study results?

1 reference

https://pubmed.ncbi.nlm.nih.gov/23370450

12 December 2020

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10.1038/GIM.2012.183

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