(Q33713120)

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:19773741%20AND%20SRC:MED&resulttype=core&format=json

8 February 2020

review article

1 reference

title

Accepting risk in clinical research: is the gene therapy field becoming too risk-averse? (English)

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:19773741%20AND%20SRC:MED&resulttype=core&format=json

8 February 2020

0 references

1

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:19773741%20AND%20SRC:MED&resulttype=core&format=json

8 February 2020

Ian E. Alexander

series ordinal

2

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:19773741%20AND%20SRC:MED&resulttype=core&format=json

8 February 2020

Ian Kerridge

series ordinal

3

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:19773741%20AND%20SRC:MED&resulttype=core&format=json

8 February 2020

3

Ian Kerridge

1 reference

28 July 2017

Claire T Deakin

1

1 reference

PubMed ID

19773741

28 July 2017

Ian E Alexander

series ordinal

2

1 reference

28 July 2017

22 September 2009

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:19773741%20AND%20SRC:MED&resulttype=core&format=json

8 February 2020

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:19773741%20AND%20SRC:MED&resulttype=core&format=json

8 February 2020

volume

17

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:19773741%20AND%20SRC:MED&resulttype=core&format=json

8 February 2020

issue

11

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:19773741%20AND%20SRC:MED&resulttype=core&format=json

8 February 2020

page(s)

1842-1848

1 reference

https://www.ebi.ac.uk/europepmc/webservices/rest/search?query=EXT_ID:19773741%20AND%20SRC:MED&resulttype=core&format=json

Rethinking risk in pediatric research

8 February 2020

cites work

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

Clinical trials in gene therapy: ethics of informed consent and the future of experimental medicine.

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

Knowledge and understanding among cancer patients consenting to participate in clinical trials

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

A phase I/II trial of high-dose erythropoietin in extremely low birth weight infants: pharmacokinetics and safety

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

Communicating side effect risks in a tamoxifen prophylaxis decision aid: the debiasing influence of pictographs

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

Comparison of treatment effects between animal experiments and clinical trials: systematic review

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

Lay concepts in informed consent to biomedical research: the capacity to understand and appreciate risk.

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

Successful transduction of liver in hemophilia by AAV-Factor IX and limitations imposed by the host immune response

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

Quantifying the federal minimal risk standard: implications for pediatric research without a prospect of direct benefit.

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

Therapeutic optimism in the consent forms of phase 1 gene transfer trials: an empirical analysis

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

Pyruvate carboxylase deficiency: clinical and biochemical response to anaplerotic diet therapy

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

Recent developments in gene transfer: risk and ethics

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

Pooling of animal experimental data reveals influence of study design and publication bias

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

The trials and tribulations of doing drug research in children

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

Informed consent for enrolling minors in genetic susceptibility research: a qualitative study of at-risk children's and parents' views about children's role in decision-making

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

Informed consent and the capacity for voluntarism

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

Antibiotic therapy for reduction of infant morbidity after preterm premature rupture of the membranes. A randomized controlled trial. National Institute of Child Health and Human Development Maternal-Fetal Medicine Units Network

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

Age and gender differences in perceived accident likelihood and driver competences.

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

Why it won't happen to me: perceptions of risk factors and susceptibility.

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

The therapeutic misconception: informed consent in psychiatric research

21 June 2018

2 references

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

21 June 2018

https://api.crossref.org/works/10.1038%2FMT.2009.223

7 January 2021

inferred from DOI database lookup

False hopes and best data: consent to research and the therapeutic misconception

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

Human gene therapy: why draw a line?

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

Induced hypothermia for infants with hypoxic- ischemic encephalopathy using a servo-controlled fan: an exploratory pilot study.

21 June 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

Lessons learned from the gene therapy trial for ornithine transcarbamylase deficiency

30 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

A call for physiopathological ethics

30 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

Presenting health risk information in different formats: the effect on participants' cognitive and emotional evaluation and decisions

30 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

Trust in early phase research: therapeutic optimism and protective pessimism.

30 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

Adverse events in gene transfer trials and an agenda for the new year

30 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

The ethics of human gene transfer.

30 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

Informed consent in human gene transfer clinical trials.

30 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

If it's broken, shouldn't it be fixed? Informed consent and initial clinical trials of gene therapy

30 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

RAC reviews serious adverse event associated with AAV therapy trial

30 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

Risk perception and decision processes underlying informed consent to research participation

30 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

Survival after treatment with phenylacetate and benzoate for urea-cycle disorders

30 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

Therapeutic misconception in early phase gene transfer trials

30 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

Elements of style: consent form language and the therapeutic misconception in phase 1 gene transfer trials

30 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

Consent forms and the therapeutic misconception: the example of gene transfer research

30 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

A multicenter, randomized, controlled trial of lucinactant versus poractant alfa among very premature infants at high risk for respiratory distress syndrome

30 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

Clinical trials in children.

30 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

Phase 1 trial of prevention of hydrocephalus after intraventricular hemorrhage in newborn infants by drainage, irrigation, and fibrinolytic therapy

30 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

RAC oversight of gene transfer research: a model worth extending?

30 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

The biotech death of Jesse Gelsinger

30 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

Genetic research as therapy: implications of "gene therapy" for informed consent

30 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

Using natural frequencies to improve diagnostic inferences.

30 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

Stable ethics: enrolling non-treatment-refractory volunteers in novel gene transfer trials

30 October 2018

1 reference

https://eutils.ncbi.nlm.nih.gov/entrez/eutils/elink.fcgi?dbfrom=pmc&linkname=pmc_refs_pubmed&retmode=json&id=2835028

Impure science: AIDS, activism, and the politics of knowledge

30 October 2018

1 reference

12 December 2020

Translation of research evidence from animals to humans

1 reference

12 December 2020

A disciplinary perspective on the epistemological status of risk

1 reference

12 December 2020

Protecting research subjects--what must be done

1 reference

12 December 2020

Different formats for communicating surgical risks to patients and the effect on choice of treatment

1 reference

12 December 2020

Greater access to generic drugs. New FDA initiatives to improve drug reviews and reduce legal loopholes

1 reference

12 December 2020

Successful application of the Norwood procedure for infants without hypoplastic left heart syndrome

1 reference

12 December 2020

Socioeconomic determinants of health- and food safety-related risk perceptions

1 reference

12 December 2020

1 reference

12 December 2020

Informed consent and decision-making: patients' experiences of the process of recruitment to phases I and II anti-cancer drug trials

1 reference

12 December 2020

https://api.fatcat.wiki/v0/release/74o3dpvuezbk3g2ofzeb7b7otu

Identifiers

1 reference

30 July 2022

release_74o3dpvuezbk3g2ofzeb7b7otu

Fatcat ID

1 reference

Fatcat

https://api.fatcat.wiki/v0/release/74o3dpvuezbk3g2ofzeb7b7otu

30 July 2022

https://api.fatcat.wiki/v0/release/74o3dpvuezbk3g2ofzeb7b7otu

1 reference

30 July 2022

https://api.fatcat.wiki/v0/release/74o3dpvuezbk3g2ofzeb7b7otu

1 reference

30 July 2022